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Book

Finding a voice

Authors:
BURKE Peter, MONTGOMERY Sue
Publisher:
Venture Press
Publication year:
2003
Pagination:
39p.
Place of publication:
Birmingham

This book recognises the importance of supporting the siblings of disabled children. The research report provides a further source of evidence underpinning work in supporting services to disabled children and their families.

Book

Disability and impairment: working with children and families

Author:
BURKE Peter
Publisher:
Jessica Kingsley
Publication year:
2008
Pagination:
168p., bibliog.
Place of publication:
London

Peter C Burke shows how social attitudes shape the world of the 'disabled family' either positively or negatively and the effects of stigma. He demonstrates the normality of disability - that children are children whatever their label - and the need for a sensitive professional understanding of the impact of both physical and learning disabilities on family members, in order to improve their quality of life. This book covers the spectrum of disability issues, and offers information and advice for professionals working with families and disability, explaining the value of family support, how to validate the feelings of siblings with disabled brothers and sisters, tackling social exclusion and understanding the role of lifelong professional help.

Journal article Full text available online for free

Research into practice

Author:
BURKE Peter
Journal article citation:
Community Care, 27.11.03, 2003, p.49.
Publisher:
Reed Business Information

Briefly reports on research from the University of Hull into the feelings, expectations and needs of disabled children's siblings. The study, 'Finding a voice', found that being in a support group helped siblings to express feelings within an environment where there is some understanding of the difficulties they share.

Journal article

Brothers and sisters: supporting the siblings of children with disabilities

Authors:
BURKE Peter, MONTGOMERY Sue
Journal article citation:
Practice: Social Work in Action, 13(1), 2001, pp.27-38.
Publisher:
Taylor and Francis

Examines the support needs of siblings of children with disabilities. Siblings often help and share some caring responsibilities at home; they need the opportunity to share their feelings with other in a different environment. The authors find that siblings benefit from attending a support group where opportunities to share their feelings and to take part in various activities are available to them, opportunities which otherwise might not be provided at home or at school. Also notes that the support function of the sibling group is highly valued by the siblings themselves. Recommends that practitioners should recognise that meeting the needs of siblings is an essential part of their responsibilities in providing support and assistance for the whole family.

Journal article

Best of both worlds

Author:
BURKE Peter
Journal article citation:
Social Work Today, 13.6.91, 1991, pp.18-19.
Publisher:
British Association of Social Workers

Describes the use of family respite care, in which rather than the handicapped child of a family being taken to a respite care unit, the whole family moved into the unit to receive 24-hour support.

Journal article Full text available online for free

Research into practice

Author:
BURKE Peter
Journal article citation:
Community Care, 12.2.04, 2004, p.47.
Publisher:
Reed Business Information

Briefly reports on the findings of recent research which found that siblings of disabled children sometimes emulate a disability themselves in order to gain the reward and attention from adults. The study examined interview data with 22 families and more than 30 children.

Book

Brothers and sisters of children with disabilities

Author:
BURKE Peter
Publisher:
Jessica Kingsley
Publication year:
2004
Pagination:
159p.,bibliog.
Place of publication:
London

Examining the overlooked subject of non-disabled siblings in families where there is a disabled child, Brothers and Sisters of Disabled Children details the experiences of these children and explores what it means to them to have a disabled brother or sister. Through family interviews and one-to-one meetings, the author records siblings’ views on issues ranging from the everyday social restrictions on their lives, the discrimination they face at school, through to their concerns about the future. He also considers the difficulties for siblings of finding their own identity in ‘disabled’ families, competition for parental attention and the phenomenon of ‘disability by association’ – the tendency for siblings to emulate a disabled brother’s or sister’s behaviour in an attempt to gain recognition for themselves at home, school and socially.Putting this within the context of the existing framework of professional practice for sibling and family support services, the author stresses the importance and proven success of sibling support groups as models of empowerment and inclusion, and makes clear recommendations for future practice.

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