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Book

Paths to empowerment

Editors:
BARNES Marian, WARREN Lorna
Publisher:
Policy Press
Publication year:
1999
Pagination:
148p.,bibliog.
Place of publication:
Bristol

In two sections. Section one looks at definitions of empowerment, and existing models and practice. Section two discusses issues for research and researchers. Includes illustrations of different, and sometimes conflicting, voices to emerge from within the user movement and from among voluntary and statutory sector allies.

Journal article

Bringing difference into deliberation? Disabled people survivors and local governance

Author:
BARNES Marian
Journal article citation:
Policy and Politics, 30(3), July 2002, pp.319-331.
Publisher:
Policy Press

This article discusses the engagement of disabled people and mental health service users/survivors in the process of participatory democracy. The article considers how notions of "legitimate participants" are constructed within official discourse, and how those can be challenged by autonomous groups of disabled people. It also explores assumptions about appropriate forms of deliberation within participation forums and how an appeal to rational debate can exclude the emotional content of the experience of living with mental health problems from deliberation about mental health policy.

Book

Unequal partners: user groups and community care

Authors:
BARNES Marian, et al
Publisher:
Policy Press
Publication year:
1999
Pagination:
114p.,bibliog.
Place of publication:
Bristol

Empirical study looking at user groups and 'officials' in two policy areas: mental health and disability. Examines the strategies user groups adopt to seek their objectives, and explores conceptual issues relating to notions of consumerism and citizenship. Discusses the way in which self organisation may be supported without being controlled by officials in statutory agencies, highlighting the need to understand and distinguish between user self organisation and user involvement. Concludes that if policy makers are genuinely committed to greater user involvement in design, planning and delivery of services, then user self organisation needs to be both encouraged and supported without being subsumed into 'management'.

Journal article Full text available online for free

Effective consumers and active citizens: strategies for users' influence on service and beyond

Authors:
BARNES Marian, SHARDLOW Polly
Journal article citation:
Research Policy and Planning, 14(1), 1996, pp.33-38.
Publisher:
Social Services Research Group

Draws on research undertaken as part of the ESRC Local Governance Programme investigating the objectives and strategies of mental health service users' and disabled people's groups. It distinguishes between strategies based on 'consumerism' and those based on 'citizenship' and provides examples of practical achievements by, as well as barriers to the influence of, service user activists.

Journal article

Users as citizens: collective action and the local governance of welfare

Author:
BARNES Marian
Journal article citation:
Social Policy and Administration, 33(1), March 1999, pp.73-90.
Publisher:
Wiley-Blackwell

Drawing on theories of new social movements and of citizenship, this article considers the developing place of user organisations within systems of local governance. It looks at the way in which groups have sought to assert the legitimacy both of experimental knowledge and of their position as citizens in the face of official responses which have constructed them as self-interested pressure groups. It draws on empirical research investigating local groups of disabled people and of mental health service users conducted in the first part of the 1990s. The article considers likely future roles for groups comprising of people often excluded from community.

Book

Care, communities and citizens

Author:
BARNES Marian
Publisher:
Longman
Publication year:
1997
Pagination:
213p.,bibliog.
Place of publication:
Harlow

Looks at the policy of community care for disabled people and older people in the context of transformations in health and social care systems over the last decade. Focuses on the challenges presented to providers of services by users of services and examines the growth of user movements, the self-organisation of carers, and the voices of services users. Explores potential conflicts and differences in priorities which become evident when users and carers are enabled to contribute to policy and service development. Also looks at conceptual, policy and practice developments which need to be made of community care is to be experienced as an empowering service option.

Journal article

Users, officials and citizens in health and social care

Authors:
BARNES Marian, et al
Journal article citation:
Local Government Policy Making, 22(4), March 1996, pp.9-17.
Publisher:
University of Birmingham. Institute of Local Government Studies

Looks at the empowerment of public service users from the point of view of groups of disabled people and people with mental health problems, and the 'officials' (purchasers and providers of health and social care services and politicians) with whom they come into contact. This article focuses on the way in which both user groups and officials view the notion of citizenship and its relationship to empowerment.

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