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Journal article

Tales of hidden lives: a critical examination of life history research with people who have learning difficulties

Author:
GOODLEY Danny
Journal article citation:
Disability and Society, 11(3), September 1996, pp.333-348.
Publisher:
Taylor and Francis,

Explores the use of life history research with people who have learning difficulties. A number of strengths and weaknesses associated with the life history as a method of imparting live experiences are examined. Particular emphasis is given to the dilemmas that researchers may face in explicating the life histories of informants labelled as having learning difficulties. With reference to literature on narrative-based research and by drawing upon their own research experiences, the author argues that life histories reaffirm the personal in social theorising, whilst providing a methodology in which individual and social worlds may be drawn together. Also draws attention to dilemmas that arise in making links between an individual's life history and social theory, and looks at problems relating to uses of bias and power. In research involving people with learning difficulties, it is concluded that life histories cogently expose the experiences of people so-labelled and therefore deserve further usage albeit with critical assessment.

Journal article

Sounds of silence: narrative research with inarticulate subjects

Authors:
BOOTH Tim, BOOTH Wendy
Journal article citation:
Disability and Society, 11(1), March 1996, pp.55-69.
Publisher:
Taylor and Francis,

Addresses the challenge of using narrative methods with people who have learning difficulties. Such informants present four particular interviews problems: inarticulateness; unresponsiveness; a concrete frame of reference; and difficulties with the concept of time. The authors focus on the first two of these problems and argue that neither of them constitutes an insuperable barrier to people telling their story. Drawing on detailed interview material from an informant with learning difficulties, the authors set out to show in practical terms how these problems might be tackled, emphasising in particular the importance of being attentive to what goes unsaid. Concludes that researchers should put more emphasis on overcoming the barriers that impede the involvement of inarticulate subjects in narrative research instead of dwelling on their limitations as informants.

Book

Life without jargon: how to help people with learning difficulties understand what you are saying

Author:
MOFFATT Virginia
Publisher:
Choice
Publication year:
1996
Pagination:
67p.,list of orgs.,bibliog.
Place of publication:
London

Draws together practical information on how to make information accessible to people with learning difficulties.

Book

Residential provision for people with learning disabilities: summary report

Authors:
EMERSON Eric, et al
Publisher:
University of Manchester. Hester Adrian Research Centre
Publication year:
1996
Pagination:
19p.,bibliog.
Place of publication:
Manchester

Summary of a review, commissioned by the Department of Health, of residential provision for people with learning difficulties. The review aims to: produce a summary of existing research relating to the cost, quality and differing forms of residential provision in the UK; to utilise the 1991 Census to describe current provision; to begin to map out, through consultation and visits, the defining characteristics and differing approaches to residential provision; and to generate a list of recommendations concerning the conduct of future research into the subject.

Book

Still a chance to learn?: report of a project by the Joseph Rowntree Foundation on the Further and Higher Education Act (1992) and adults with learning difficulties

Authors:
MACADAM Margaret, SUTCLIFFE Jeannie
Publisher:
National Institute for Adult Continuing Education
Publication year:
1996
Pagination:
94p.
Place of publication:
Leicester

This book is of a survey of the impact of the Further and Higher Education Act (1992) on education for adults with learning difficulties, carried out with the Norah Fry Research Centre and supported by the Joseph Rowntree Foundation. The work showed that the Act's impact has been mixed and that in particular, people with profound/multiple learning difficulties are starting to miss out.

Book

Residential provision for people with learning disabilities: a research review

Authors:
HATTON Chris, EMERSON Eric
Publisher:
University of Manchester. Hester Adrian Research Centre
Publication year:
1996
Pagination:
25p.
Place of publication:
Manchester

The aims of the review were fourfold: to produce an authoritative comprehensive summary of existing research relating to the characteristics, quality and costs of differing forms of residential provision for people with learning disabilities in the UK; to utilise 1991 Census data to describe the nature of current residential provision for this client group; to begin to map out, through a process of consultation with a wide range of organisations and visits to services, the defining characteristics and aims of differing approaches to residential provision; and to generate a list of recommendations concerning the conduct of future research  into alternative forms of residential provision for people with learning disabilities.

Book

Choosing staff: involving people with learning difficulties in staff recruitment

Authors:
TOWNSLEY Ruth, MACADAM Margaret
Publisher:
Policy Press
Publication year:
1996
Pagination:
94p.
Place of publication:
Bristol

More organisations are beginning to involve people with learning difficulties in choosing staff, and service users themselves have highlighted this issue as crucial if they are to be fully involved in planning and delivering services. The authors explored the extent and nature of user involvement in recruiting staff for statutory, voluntary and private day and residential services.

Journal article

Cross-cultural measurement of critical quality of life concepts

Authors:
KEITH Kenneth D., HEAL Laird W., SCHALOCK Robert L.
Journal article citation:
Journal of Intellectual and Developmental Disability, 21(4), December 1996, pp.273-293.
Publisher:
Informa Healthcare

A semantic differential technique was used to assess the meaning of 10 quality of life (QOL) concepts across seven cultures: Australia, England, Finland, Germany, Japan, Republic of China, and the United States. Each concept was rated on nine pairs of adjectives representing three dimensions (value, potency, or activity). Across the 7 countries all 10 of the QOL concepts received strong positive ratings on the value dimension, and lower positive ratings on the potency and activity dimensions. Japan, however, was an exception to the general pattern with Japanese raters assigning negative ratings for value and activity and positive ratings for potency. The results are discussed in relation to the differences between individualistic and collective cultures.

Journal article

Changing children's attitudes

Author:
HEVICON Ruth
Journal article citation:
Community Nurse, 2(9), October 1996, p.44.
Publisher:
Emap Healthcare

Describes how the author, a community nurse for people with learning disabilities, helped to increase school children's awareness of people with learning disabilities.

Journal article

Sexuality and profound and multiple impairment

Authors:
DOWNS Caroline, CRAFT Ann
Journal article citation:
Tizard Learning Disability Review, 1(4), October 1996, pp.17-22.
Publisher:
Emerald

This article addresses issues of concerns relating to the group whose needs in relation to sexuality have for too long been ignored, namely those with profound and multiple disabilities. Outlines the development of a specialist project to meet those needs and some of the difficulties and dilemmas faced along the way. Emphasises the importance of staff training and support for staff to explore their own values and feelings towards the sexuality of this client group.

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