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Journal article

Application of the Rasch rating scale model to the assessment of quality of life of persons with intellectual disability

Authors:
GOMEZ Laura E., et al
Journal article citation:
Journal of Intellectual and Developmental Disability, 37(2), June 2012, pp.141-150.
Publisher:
Informa Healthcare

Individual quality of life is a concept referring to core domains influenced by personal characteristics and environmental factors, and has received increasing attention in the field of intellectual disability. This study aimed to test and improve the psychometric properties of the INTEGRAL quality of life scale (a questionnaire to measure quality of life for adults with intellectual disability), including the observed fit of data to the Rasch model. The research involved a sample of 271 adults from provinces across Spain who had intellectual disability and used social services, and questionnaires were completed by qualified interviewers. The article describes and discusses the methodology, data analysis and results.

Journal article

Love and loving relationships in people with learning disabilities: a scientific approach

Authors:
MORENTIN Raquel, et al
Journal article citation:
Tizard Learning Disability Review, 13(2), August 2008, pp.33-41.
Publisher:
Emerald

The study reported here was based on research with 376 people with learning disabilities in Spain, and aimed to analyse their appraisal of love, loving relationships and related issues (satisfaction, role of the family and self-determination). A Likert-type measure was developed, and the outcomes indicate that the measures have satisfactory psychometric characteristics. It is also evident that the theoretical model of love for people without disabilities can be applied to individuals with disabilities, and includes three key factors: commitment, stability and idealisation; passion and physiological arousal; and intimacy and romanticism. It also indicates that the perceptions of love in people with learning disabilities are relatively idealised and influenced by context, and interference from family and self-determination are key issues.

Book

Support network on disability: a resource guide to disability groups and organisations

Author:
ARAMAYO Manuel
Publisher:
Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
Publication year:
2000
Pagination:
98p.
Place of publication:
Manchester

Directory and resource guide to disability groups and organisations arranged alphabetically by disability.

Journal article

Quality of life of workers with an intellectual disability in supported employment

Authors:
VERDUGO M.A., et al
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 19(4), December 2006, pp.309-316.
Publisher:
Wiley-Blackwell

This study investigate what characteristics of supported employment increase quality of life and whether quality of life is higher in supported employment workers or the sheltered ones in Spain. Typicalness, the degree to which the characteristics of a job are the same as those of co-workers without a disability in the same company, was considered as one of the supported employment characteristics in the analysis. Two groups were put together to obtain the data using two questionnaires that were administered by trained professionals. Correlational analysis of the data and manova were also employed. No differences were found between the two groups regarding quality of life but results indicate that in supported employment, high levels of typicalness are associated with a higher quality of life and that the handling of certain characteristics of support and the job, for example the hours of direct external support, are related to the enhancement of quality of life of the workers. Workers in supported employment show the same quality of life as those in sheltered employment centers. In Spain, the greater the typicalness of the employment, the higher the quality of life. The implications of this for the amount of direct external support for workers with disability is that such support should be used only when absolutely necessary – the minimum support necessary to encourage development.

Journal article

Place in Europe

Author:
HOPKINS Graham
Journal article citation:
Community Care, 27.01.05, 2005, pp.46-47.
Publisher:
Reed Business Information

Phil Madden, Director of service development at the Home Farm Trust, describes the organisations involvement in a one year project 'Families In' funded by the European Commission. The project involved partners from Sweden, Finland, Spain, Belgium and Hungary. He describes the challenges and rewards of the project.

Journal article

Work integration of people with disabilities in the regular labour market: what can we do to improve these processes?

Authors:
VILA Montserrat, PALLISERA Maria, FULLANA Judit
Journal article citation:
Journal of Intellectual and Developmental Disability, 32(1), March 2007, pp.10-18.
Publisher:
Informa Healthcare

In this Spanish research thematic content analysis techniques, using semi-structured group interviews, were used to identify analyse how different factors related to family, work and training, interact to influence work integration of people with disabilities by means of supported employment. Thirty-two professionals from 17 agencies provided information regarding the role of the family, training, workplace monitoring, the work setting, and personal resources of the worker. The results indicated that family, training (prior to and during the integration service), monitoring of the worker in the workplace, and work setting were relevant and contributing aspects of the process of work integration. A real and effective commitment on the part of the government is required to regulate and provide resources to create supported employment services and to allow these services to plan their own interventions, keeping in mind the relevance of and relationship between aspects such as family, training, workplace monitoring, the work setting and personal resources of the worker.

Journal article

Prose learning in children and adults with Down syndrome: the use of visual and mental image strategies to improve recall

Authors:
CARMEN J., et al
Journal article citation:
Journal of Intellectual and Developmental Disability, 30(4), December 2005, pp.199-206.
Publisher:
Informa Healthcare

 Research indicates that the use of mental imagery is a rich source of possibilities for improving learning in participants with learning disabilities and intellectual disability. The authors undertook two experiments designed to assess the effectiveness of using imagery in prose learning for participants with Down syndrome (DS). The samples comprised 22 children with DS aged between 7 and 12, and 30 adults with DS aged between 18 and 57. Three prose texts were learned using colour drawings, mental imagery and auditory learning. The results for recall using the first two strategies were then compared to those for auditory learning. The immediate and delayed recall of words and ideas obtained by learning with drawings was higher than that obtained using either mental images or the auditory condition. Learning using mental images was also found to be more effective than the auditory condition. Training in the use of mental imagery appears to be an efficient strategy for improving recall in participants with DS.

Journal article

Spain

Authors:
SALVADOR-CARULLA Luis, et al
Journal article citation:
Tizard Learning Disability Review, 9(1), January 2004, pp.40-47.
Publisher:
Emerald

Provides an overview of services for people with learning difficulties in Spain. Three parallel processes have taken place during the last 20 years: decentralisation, a health reform and a mental health reform. These processes have produced an extremely complex situation in support and care for people with learning difficulties. The decentraliation process was not accompanied by a clear definition of the co-ordination mechanisms among local authorities, and as a result many different health and social care systems have emerged at different times. An important characteristic of the Spanish system is the major role of NGOs in care and policy-making and planning in this area. A shift from institutional to community care has begun for both psychiatric patients and people with learning difficulties, but compared with neighbouring countries and published standards, the provision of intermediate services and non-hospital residential care is very low, and the situation is worst for people with learning difficulties and psychiatric problems. The article covers: definition, legal status and eligibility; policy framework; service structures and funding of services.

Book

Sheltered employment in five member states of the Council of Europe: Austria, Finland, Norway, Sweden and Switzerland

Authors:
SAMOY Erik, WATERPLAS Lina
Publisher:
Council of Europe
Publication year:
1997
Pagination:
67p.,bibliogs.
Place of publication:
Strasbourg

Comparative study looking at the situation of sheltered employment in the twelve Member States of the European Union. The data for each country is grouped under the following headings: institutional context; target population; access to sheltered employment; characteristics of the people in sheltered employment; and a discussion of the topics currently under debate around sheltered employment in each country.

Journal article

Internet use, risks and online behaviour: the view of internet users with intellectual disabilities and their caregivers

Authors:
CHINER Esther, GOMEZ-PUERTA Marcos, CARDONA-MOLTO Maria
Journal article citation:
British Journal of Learning Disabilities, 45(3), 2017, pp.190-197.
Publisher:
Wiley-Blackwell

Background: Internet offers opportunities to people with intellectual disabilities, but it also involves some risks. The aim of this study was to explore these issues considering caregivers and people with intellectual disabilities’ perspectives. Materials and Methods: A descriptive, cross-sectional study was conducted. The sample consisted of 77 adults with intellectual disabilities and 68 caregivers from a Spanish service provider organisation. Results: Compared to previous research, findings show an increasing use of electronic devices such as smartphones and the Internet by people with intellectual disabilities. Some online risks (e.g., being insulted, being threatened, someone using their personal information) and undesirable behaviours of this group (e.g., insulting, threatening or flirting with someone who did not want to) were also identified. Differences between the responses of people with intellectual disabilities and their caregivers were found with regard to people with intellectual disabilities’ online behaviour. Conclusions: It is important to design, validate and implement strategies to promote risk management and positive risk-taking actions for people with intellectual disabilities. (Publisher abstract)

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