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Journal article

Conceptualizing inclusive research with people with intellectual disability

Authors:
BIGBY Christine, FRAWLEY Patsie, RAMCHARAN Paul
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 27(1), 2013, pp.3-12.
Publisher:
Wiley-Blackwell

A comprehensive review of the peer reviewed literature and key texts was undertaken to more clearly conceptualize inclusive research with people with intellectual disability and identify the issues associated with ways of approaching it. Three approaches to inclusive research were identified: advisory, leading and controlling, and collaborative group. Using the literature and the authors' own experience, each approach is illustrated and discussed. A clearer conceptual framework is developed to guide researchers and administrators as they consider inclusive research and its feasibility to particular research questions. A strong self-advocacy movement is identified as one of the conditions necessary for inclusive research to flourish. (Edited publisher abstract)

Journal article Full text available online for free

Out of order

Authors:
RAMCHARAN Paul, McCLIMENS Alex, ROBERTS Bronwen
Journal article citation:
Community Care, 22.06.06, 2006, pp.34-35.
Publisher:
Reed Business Information

Community care, as it affects individuals labelled with learning difficulties, offers a chance of inclusion within mainstream society. More recently, the government's policy on antisocial behaviour orders threatens to encroach on ideas of tolerance, acceptance and diversity. The authors discuss the potential effects on people with learning difficulties.

Book

Reconciling value-directed and value-relative approaches to evaluation research: the case of the service packaging project

Authors:
RAMCHARAN Paul, GRANT Gordon, MCGRATH Morag
Publisher:
University of Wales. Centre for Social Policy Research and Development
Publication year:
1990
Pagination:
34p.,bibliog.
Place of publication:
Bangor

Paper explaining a research approach which looked at the outcomes of services provided to people with learning difficulties in Wales. Part of the All Wales Strategy.

Journal article

A collaborative group method of inclusive research

Authors:
BIGBY Christine, FRAWLEY Patsie, RAMCHARAN Paul
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 27(1), 2013, pp.54-56.
Publisher:
Wiley-Blackwell

This study proposes one method of inclusive research with people with learning disabilities, the ‘collaborative group' approach. It examines the processes used to conduct a study involving academics and self-advocates, presenting findings derived from an inductive analysis of field note data, interview and meeting transcripts. Five components are identified: shared and distinct purposes of participants equally valued, shared involvement and distinct contributions equally valued, flexible, adapted research methods, working as a group with trusting relationships and dispersed power, and scaffolding for inclusion. This collaborative group method potentially results in better research than either academics or self-advocates could achieve alone and has multiple knowledge outcomes with differing accessibility and complexity. (Edited publisher abstract)

Journal article

Valuing People and research: outcomes of the Learning Disability Research Initiative

Authors:
GRANT Gordon, RAMCHARAN Paul
Journal article citation:
Tizard Learning Disability Review, 14(2), April 2009, pp.25-34.
Publisher:
Emerald

Prior to the launch of Valuing People (DH, 2001), Gordon Grant and Paul Ramcharan were appointed by the Department of Health as co-ordinators of the Learning Disability Research Initiative (LDRI). The LDRI was a £2m research initiative, funded through the Department of Health's Policy Research Programme, linked to the implementation of Valuing People. The LDRI was brought to a conclusion in November 2007. This paper summarises the main findings of the LDRI and includes a listing of the resultant 13 studies. Reference is made to Valuing People's main principles of rights, choice, inclusion and independence. The authors conclude by suggesting priorities for extending the evidence base.

Journal article

Resilience in families with children and adult members with intellectual disabilities: tracing elements of a psycho-social model

Authors:
GRANT Gordon, RAMCHARAN Paul, FLYNN Margaret
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 20(6), November 2007, pp.563-575.
Publisher:
Wiley-Blackwell

This paper seeks to illumine how families with children and adult members with intellectual disabilities manage to manifest a buoyant and durable capacity over time. It is therefore concerned centrally with the idea of resilience. Drawing from diverse theoretical literatures from child development and protection and gerontology, the paper begins with a review of constructions of resilience. In an attempt to assess where there seems to be support for resilience in families, the core of the paper tests empirical evidence about positive experiences of families supporting children and adults with intellectual disabilities against the theoretical literature on resilience. The findings are used to suggest conditions under which resilience is produced and maintained, and to identify emergent elements of a psycho-social model of resilience in families with children and adult members with intellectual disabilities.

Journal article

Views and experiences of people with intellectual disabilities and their families: (1) the user perspective

Authors:
RAMCHARAN Paul, GRANT Gordon
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 14(4), 2001, pp.348-363.
Publisher:
Wiley-Blackwell

Presents a descriptive summary of the views and experiences of people with intellectual disabilities (IDs) as they have been represented in research and other literature. The authors develop further the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, a review report commissioned by the Department of Health on the views and experiences of users and family carers focusing on the ways in which research might contribute to policy and practice. The literature review of user views and experiences produced three broad categories: testaments of life, which are mainly ethnographies and life histories; user movement media produced in an accessible format for people with IDs or by people with IDs themselves; and research based studies in their varying forms. It is demonstrated that no single approach is able to encompass all the interests of knowledge production, policy planning, and action or practice on its own. A more coordinated and broad-based research approach to user views and experiences is advocated.

Journal article

Views and experiences of people with intellectual disabilities and their families: (2) the family perspective

Authors:
GRANT Gordon, RAMCHARAN Paul
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 14(4), 2001, pp.364-380.
Publisher:
Wiley-Blackwell

Examines findings from research into the views and experiences of families of people with intellectual disabilities (IDs). It draws from the authors' report on the views and experiences of users and carers, the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, which was commissioned by the Department of Health, and was intended to inform some of the thinking behind Valuing People and the associated research programme. This article traces the development and scope of research on family carers in relation to the personal and psychological experience of care as well as in relation to receipt of services. Theoretical and methodological gaps in the literature are outlined. Social systems theory is proposed as a means of addressing the requirements of a future research agenda about family care.

Book Full text available online for free

Valuing people and research: the learning disability research initiative: overview report

Authors:
GRANT Gordon, RAMCHARAN Paul
Publisher:
Great Britain. Department of Health
Publication year:
2007
Pagination:
146p., bibliog.
Place of publication:
London

This initiative is designed to address two main questions: What are the main lessons to be drawn from the learning disability research initiative (LDRI), a programme of 13 studies commissioned to examine different aspects of the implementation of Valuing People?; and What is the future for research linked to a refreshed Valuing People and the service modernisation agenda building on existing research capability and knowledge

Journal article

Researching Valuing People

Authors:
GRANT Gordon, RAMCHARAN Paul
Journal article citation:
Tizard Learning Disability Review, 7(3), July 2002, pp.27-33.
Publisher:
Emerald

Prior to the launch of Valuing People, the authors were appointed by the Department of Health as co-coordinators of the learning disability research initiative People with Learning Disabilities: Services, Inclusion and Partnership, which was intended to inform the implementation and outcome of the White Paper Valuing People during its early years. In this article the authors describe the development of the research initiative, the research commissioning process and intentions for a research communication strategy.

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