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Journal article

Support networks and transitions over two years among adults with a mental handicap

Author:
GRANT Gordon
Journal article citation:
Mental Handicap Research, 6(1), 1993, pp.36-55.
Publisher:
BIMH Publications

Begins by tracing the development of policy and research interest in the idea of social networks as something which provides important clues about the social behaviour of individuals. An argument is made for closer consideration of dimensions of support networks as a way of understanding the lives and lifestyles of adults with a mental handicap and of those who support them. Draws on data from a longitudinal study which examined the change and stability of informal support networks of adults persons with a mental handicap over an initial period of two years, and raises questions about policy, practice and future research.

Book

Reconciling value-directed and value-relative approaches to evaluation research: the case of the service packaging project

Authors:
RAMCHARAN Paul, GRANT Gordon, MCGRATH Morag
Publisher:
University of Wales. Centre for Social Policy Research and Development
Publication year:
1990
Pagination:
34p.,bibliog.
Place of publication:
Bangor

Paper explaining a research approach which looked at the outcomes of services provided to people with learning difficulties in Wales. Part of the All Wales Strategy.

Book

Towards participation in the All Wales Strategy: Issues and processes

Author:
GRANT Gordon
Publisher:
University College of North Wales. Department of Social Theory and Institutions
Publication year:
1986
Pagination:
12p., bibliog.
Place of publication:
Bangor
Book

Towards joint teams with joint budgets: the case of the All Wales Strategy

Author:
GRANT Gordon
Publisher:
University College of North Wales. Department of Social Theory and Institutions
Publication year:
1985
Pagination:
18p., bibliog.
Place of publication:
Bangor
Book

Learning disability: a life cycle approach

Editors:
GRANT Gordon, et al, (eds.)
Publisher:
Open University Press
Publication year:
2010
Pagination:
515p.
Place of publication:
Maidenhead
Edition:
2nd ed.

This second edition is intended for students planning to work with people with learning disabilities and severe learning disabilities at every stage of their lives. Issues surrounding the life cycle of people with learning disabilities, and their families/carers from birth, childhood and early parenting are covered. Separate sections cover: adolescence and transition to adulthood; adult identities and community inclusion; old age; and end of life. The text includes case studies and user views from service users and their families/carers. It is written for students and is also relevant for researchers, practitioners s and policy makers.

Journal article

Valuing People and research: outcomes of the Learning Disability Research Initiative

Authors:
GRANT Gordon, RAMCHARAN Paul
Journal article citation:
Tizard Learning Disability Review, 14(2), April 2009, pp.25-34.
Publisher:
Emerald

Prior to the launch of Valuing People (DH, 2001), Gordon Grant and Paul Ramcharan were appointed by the Department of Health as co-ordinators of the Learning Disability Research Initiative (LDRI). The LDRI was a £2m research initiative, funded through the Department of Health's Policy Research Programme, linked to the implementation of Valuing People. The LDRI was brought to a conclusion in November 2007. This paper summarises the main findings of the LDRI and includes a listing of the resultant 13 studies. Reference is made to Valuing People's main principles of rights, choice, inclusion and independence. The authors conclude by suggesting priorities for extending the evidence base.

Journal article

Resilience in families with children and adult members with intellectual disabilities: tracing elements of a psycho-social model

Authors:
GRANT Gordon, RAMCHARAN Paul, FLYNN Margaret
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 20(6), November 2007, pp.563-575.
Publisher:
Wiley-Blackwell

This paper seeks to illumine how families with children and adult members with intellectual disabilities manage to manifest a buoyant and durable capacity over time. It is therefore concerned centrally with the idea of resilience. Drawing from diverse theoretical literatures from child development and protection and gerontology, the paper begins with a review of constructions of resilience. In an attempt to assess where there seems to be support for resilience in families, the core of the paper tests empirical evidence about positive experiences of families supporting children and adults with intellectual disabilities against the theoretical literature on resilience. The findings are used to suggest conditions under which resilience is produced and maintained, and to identify emergent elements of a psycho-social model of resilience in families with children and adult members with intellectual disabilities.

Book

Learning disability: a life cycle approach to valuing people

Editors:
GRANT Gordon, GOWARD Peter, RICHARDSON Maolcolm, (eds.)
Publisher:
Open University Press
Publication year:
2005
Pagination:
757p.
Place of publication:
Maidenhead

What kinds of transitions and discontinuities in their life experiences do people with learning disabilities and their families face over the life cycle? How can people with learning disabilities and their families be helped to lead more valued, healthy and socially included lives? How best can practitioners and others support people with learning disabilities? This book adopts a life cycle approach in order to reveal important dimensions in the lives of people with learning disabilities and the effects upon them and their families. It tackles issues about transitions in people's lives and how services, professionals, advocates, allies and wider communities of interest can support people with learning disabilities in achieving healthy and valued lives. Different voices are heard in this book, but prominence has been given to the views and experiences of people with learning disabilities and their families. Each major life stage section of the book begins with one such narrative-based chapter, followed by chapters that develop practice, policy and theoretical themes that inform an evidence-based approach to supporting people.

Journal article

Views and experiences of people with intellectual disabilities and their families: (1) the user perspective

Authors:
RAMCHARAN Paul, GRANT Gordon
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 14(4), 2001, pp.348-363.
Publisher:
Wiley-Blackwell

Presents a descriptive summary of the views and experiences of people with intellectual disabilities (IDs) as they have been represented in research and other literature. The authors develop further the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, a review report commissioned by the Department of Health on the views and experiences of users and family carers focusing on the ways in which research might contribute to policy and practice. The literature review of user views and experiences produced three broad categories: testaments of life, which are mainly ethnographies and life histories; user movement media produced in an accessible format for people with IDs or by people with IDs themselves; and research based studies in their varying forms. It is demonstrated that no single approach is able to encompass all the interests of knowledge production, policy planning, and action or practice on its own. A more coordinated and broad-based research approach to user views and experiences is advocated.

Journal article

Views and experiences of people with intellectual disabilities and their families: (2) the family perspective

Authors:
GRANT Gordon, RAMCHARAN Paul
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 14(4), 2001, pp.364-380.
Publisher:
Wiley-Blackwell

Examines findings from research into the views and experiences of families of people with intellectual disabilities (IDs). It draws from the authors' report on the views and experiences of users and carers, the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, which was commissioned by the Department of Health, and was intended to inform some of the thinking behind Valuing People and the associated research programme. This article traces the development and scope of research on family carers in relation to the personal and psychological experience of care as well as in relation to receipt of services. Theoretical and methodological gaps in the literature are outlined. Social systems theory is proposed as a means of addressing the requirements of a future research agenda about family care.

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