This guidance looks at the practical implications of the Mental Capacity Act for end of life care. It takes into account subsequent developments, including the publication of the Code of Practice and the establishment of the Independent Mental Capacity Advocate (IMCA) service; the new Court of Protection; and the Office of the Public Guardian. It explains the MCA in the context of the current developments in palliative care, and sets out NCPC’s future work plans in relation to the MCA. This guidance is principally written for professionals and organisations in all settings that provide palliative care services, either within specialist services or as part of their day-to-day care. People working in specialist palliative care units, hospices, hospitals, care homes, and primary and community care will all find it relevant. However, it is also intended to help patients, care home residents, people who want to understand how they can influence their future care and informal and family carers.
(Edited publisher abstract)
This guidance looks at the practical implications of the Mental Capacity Act for end of life care. It takes into account subsequent developments, including the publication of the Code of Practice and the establishment of the Independent Mental Capacity Advocate (IMCA) service; the new Court of Protection; and the Office of the Public Guardian. It explains the MCA in the context of the current developments in palliative care, and sets out NCPC’s future work plans in relation to the MCA. This guidance is principally written for professionals and organisations in all settings that provide palliative care services, either within specialist services or as part of their day-to-day care. People working in specialist palliative care units, hospices, hospitals, care homes, and primary and community care will all find it relevant. However, it is also intended to help patients, care home residents, people who want to understand how they can influence their future care and informal and family carers.
(Edited publisher abstract)
Subject terms:
informed consent, mental capacity, palliative care, service users, social care staff, staff, assessment, attitudes, carers, decision making, end of life care, health professionals, Mental Capacity Act 2005;
NEWMAN Alisha, CARDIFF UNIVERSITY. Marie Curie Palliative Care Research Centre
Publisher:
NationalCouncil for PalliativeCare
Publication year:
2017
Pagination:
49
Place of publication:
Cardiff
Centre, with input from the NationalCouncil for PalliativeCare and Hospice UK. The results provide quantitative data, examples of good practice, quotes and vignettes. Of those surveyed, 84 per cent provided education or training to care homes. High turnover of staff was a big obstacle to improving end of life care in care homes, affecting continuity of care and uptake of training. The report also
(Edited publisher abstract)
This report aims to increase understanding of how specialist palliative care services support adult care homes in England. It discusses the results of a survey of 108 specialist palliative care services based in hospices, the community or hospitals organisations who provide support to care homes. The survey was commissioned by Public Health England, and carried out by the Marie Curie Research Centre, with input from the NationalCouncil for PalliativeCare and Hospice UK. The results provide quantitative data, examples of good practice, quotes and vignettes. Of those surveyed, 84 per cent provided education or training to care homes. High turnover of staff was a big obstacle to improving end of life care in care homes, affecting continuity of care and uptake of training. The report also found that specialist palliative care performance measures were more focussed on processes than outcomes and that there could be more emphasis on capturing patient and carer experiences. Recommendations from the report include the need for better data collection, a focus on patient related outcomes rather than numbers, and ways to improve staff training including raising awareness and attainment of key competencies in palliative care.
(Edited publisher abstract)
Subject terms:
surveys, care homes, palliative care, older people, training, good practice, care providers, collaboration;
The aim of the report is to be a practical guide to help extend the asset based approach already existing in end of life care into a learning and development model. Part one forms a short summary of the findings of a project that looked at ways to build a more sustainable asset based approach to workforce development and provides detail on what an asset based approach can look like and what factors need to be in place, incorporating lessons learnt, case studies and tips from those who have already explored the approach. It also contains examples of innovative resources that can be used to support learning facilitators. Part two looks at the project brief from which the practical guide originated, the methodology and the underpinning literature. It provides additional case studies and further detail on the work of Dying Matters and Dementia Friends, both networks bringing together communities to support end of life care raising awareness activities, which also offer valuable opportunities for workforce learning and development.
(Edited publisher abstract)
The aim of the report is to be a practical guide to help extend the asset based approach already existing in end of life care into a learning and development model. Part one forms a short summary of the findings of a project that looked at ways to build a more sustainable asset based approach to workforce development and provides detail on what an asset based approach can look like and what factors need to be in place, incorporating lessons learnt, case studies and tips from those who have already explored the approach. It also contains examples of innovative resources that can be used to support learning facilitators. Part two looks at the project brief from which the practical guide originated, the methodology and the underpinning literature. It provides additional case studies and further detail on the work of Dying Matters and Dementia Friends, both networks bringing together communities to support end of life care raising awareness activities, which also offer valuable opportunities for workforce learning and development.
(Edited publisher abstract)
Subject terms:
asset based approach, strengths-based approach, community development, voluntary sector, end of life care, palliative care, organisational learning;
Content types:
practice example, practice guidance, research review
Building on good practice examples, this resource provides a step-by-step practical approach to support commissioners to plan, design, commission and evaluate end of life care coordination between health and care providers in their local areas. It highlights the importance of care co-ordination and its impacts on individuals, their families, and practitioners. It looks designing and planning services; identifying benefits and outcomes; and monitoring and evaluating performance. It identifies the key features in each stage and provides details of, and links to, examples of good care coordination systems. The guide has been developed through consultation with a wide range of stakeholders, including commissioners, health care professionals, and people working in the voluntary sector and social care. It is aligned to Ambition Four of ‘Ambitions for Palliative and End of Life Care: A national framework for local action 2015–2020’ and should be read in the context of NHS England’s Commissioning Toolkit for End of Life Care.
(Edited publisher abstract)
Building on good practice examples, this resource provides a step-by-step practical approach to support commissioners to plan, design, commission and evaluate end of life care coordination between health and care providers in their local areas. It highlights the importance of care co-ordination and its impacts on individuals, their families, and practitioners. It looks designing and planning services; identifying benefits and outcomes; and monitoring and evaluating performance. It identifies the key features in each stage and provides details of, and links to, examples of good care coordination systems. The guide has been developed through consultation with a wide range of stakeholders, including commissioners, health care professionals, and people working in the voluntary sector and social care. It is aligned to Ambition Four of ‘Ambitions for Palliative and End of Life Care: A national framework for local action 2015–2020’ and should be read in the context of NHS England’s Commissioning Toolkit for End of Life Care.
(Edited publisher abstract)
Subject terms:
commissioning, good practice, palliative care, end of life care, case studies, integrated care, performance evaluation, person-centred care;
This report provides examples of how health and social care organisations in different settings have implemented a community development approach as part of their provision of end of life care and describes some of the early benefits of the approach. It highlights the achievements of the eight pathfinder communities who were selected to pioneer the public health approach to palliative and end of life care, following the publication of the Dying Well Community Charter. The areas selected were: Birmingham, Cheshire, Dorset, Hackney, Hull and East Riding of Yorkshire, Lancashire, Liverpool, and North Somerset. Each Pathfinder held launch events to engage with the wider community, completed a baseline assessment process followed by prioritisation, and based on their prioritisation implemented local improvement work and/or a community based capacity building project. The work of the Pathfinders included raising awareness around death and dying to the general public and specific professional groups and developing capacity building projects with specific populations. The evaluation concludes with key lessons learned from the project. It is published in conjunction with ‘Each community is prepared to help: community development in end of life care', which provides a theoretical framework to developing a public health approach to end of life care.
(Edited publisher abstract)
This report provides examples of how health and social care organisations in different settings have implemented a community development approach as part of their provision of end of life care and describes some of the early benefits of the approach. It highlights the achievements of the eight pathfinder communities who were selected to pioneer the public health approach to palliative and end of life care, following the publication of the Dying Well Community Charter. The areas selected were: Birmingham, Cheshire, Dorset, Hackney, Hull and East Riding of Yorkshire, Lancashire, Liverpool, and North Somerset. Each Pathfinder held launch events to engage with the wider community, completed a baseline assessment process followed by prioritisation, and based on their prioritisation implemented local improvement work and/or a community based capacity building project. The work of the Pathfinders included raising awareness around death and dying to the general public and specific professional groups and developing capacity building projects with specific populations. The evaluation concludes with key lessons learned from the project. It is published in conjunction with ‘Each community is prepared to help: community development in end of life care', which provides a theoretical framework to developing a public health approach to end of life care.
(Edited publisher abstract)
Subject terms:
palliative care, end of life care, communities, participation, capacity building, community development, co-production, case studies, public health;
This toolkit has been written for everyone who is interested in extending end-of-life care to community settings and developing public health responses to death, dying and loss. The public health approach involves a blended approach of direct service provision, community participation, and individual responsibility to death, dying and loss. Section one of the toolkit provides an introduction to the development of end of life care, and describes the policy and practice similarities between Healthy Cities approaches to health care and Compassionate Cities approaches to end of life care. Section two describes a public health approach to end of life care in more detail, where communities organise in ways in which the responsibility of care for experiences of death, dying and loss is shared between community members. It also presents three community practice models for palliative and end of life care: community-based, community engagement, and community development. Section three provides suggestions for evaluating public health programmes in end of life care and includes links to additional resources.
(Edited publisher abstract)
This toolkit has been written for everyone who is interested in extending end-of-life care to community settings and developing public health responses to death, dying and loss. The public health approach involves a blended approach of direct service provision, community participation, and individual responsibility to death, dying and loss. Section one of the toolkit provides an introduction to the development of end of life care, and describes the policy and practice similarities between Healthy Cities approaches to health care and Compassionate Cities approaches to end of life care. Section two describes a public health approach to end of life care in more detail, where communities organise in ways in which the responsibility of care for experiences of death, dying and loss is shared between community members. It also presents three community practice models for palliative and end of life care: community-based, community engagement, and community development. Section three provides suggestions for evaluating public health programmes in end of life care and includes links to additional resources.
(Edited publisher abstract)
Subject terms:
public health, end of life care, communities, community development, palliative care;
This report summarises some of the key issues facing the health and social care workforce in delivering end of life care. It suggests that a much greater commitment to workforce planning and development is needed at national and local level. It identifies gaps in what is known about workforce numbers; the data that is available signals possible succession planning problems, with a large proportion of senior specialist nurses aged over 50 and due to retire in the next decade. Key chapters in the report focus specifically on: the data gap; the ageing workforce; community nurses; training staff with the right skills; and the provision of social care. The report makes a number of recommendations, including that that staff who are not specialised in the provision of palliative care receive regular training to enable them to deliver high quality care to people at the end of their lives; and that social care be appropriately valued for the important part it plays in allowing people to die in their place of usual residence and that initiatives continue to be put in place to enable health and social care services to work in a coordinated way.
(Edited publisher abstract)
This report summarises some of the key issues facing the health and social care workforce in delivering end of life care. It suggests that a much greater commitment to workforce planning and development is needed at national and local level. It identifies gaps in what is known about workforce numbers; the data that is available signals possible succession planning problems, with a large proportion of senior specialist nurses aged over 50 and due to retire in the next decade. Key chapters in the report focus specifically on: the data gap; the ageing workforce; community nurses; training staff with the right skills; and the provision of social care. The report makes a number of recommendations, including that that staff who are not specialised in the provision of palliative care receive regular training to enable them to deliver high quality care to people at the end of their lives; and that social care be appropriately valued for the important part it plays in allowing people to die in their place of usual residence and that initiatives continue to be put in place to enable health and social care services to work in a coordinated way.
(Edited publisher abstract)
Subject terms:
end of life care, training, staff development, skills, care workforce;
This report sets out key steps that commissioners can take in collaboration with service providers to enable people who are approaching the end of life to avoid being admitted to hospital when this is possible and appropriate, as well as enabling those who are admitted to make a transition to a community setting quickly. The report argues that as well as reducing the costs to the NHS, enabling people to stay out of hospital at the end of life can make a significant difference to the experiences of dying people and their families. The report makes a number of recommendations for commissioners, service providers and health and social care staff, including: commissioning the increased provision of 24/7 care in community settings, through care homes and hospices, and community health and social care services that can provide care in people’s homes; commissioning anticipatory prescribing of medicines for people approaching the end of life; using available funding, through System Resilience Groups, the Better Care Fund, and Integrated Personal Commissioning, to improve co-ordination between hospitals and community settings, including hospices, for people approaching the end of life; and health and social care staff identifying carers of people who are approaching the end of life and referring them for local authority assessments.
(Edited publisher abstract)
This report sets out key steps that commissioners can take in collaboration with service providers to enable people who are approaching the end of life to avoid being admitted to hospital when this is possible and appropriate, as well as enabling those who are admitted to make a transition to a community setting quickly. The report argues that as well as reducing the costs to the NHS, enabling people to stay out of hospital at the end of life can make a significant difference to the experiences of dying people and their families. The report makes a number of recommendations for commissioners, service providers and health and social care staff, including: commissioning the increased provision of 24/7 care in community settings, through care homes and hospices, and community health and social care services that can provide care in people’s homes; commissioning anticipatory prescribing of medicines for people approaching the end of life; using available funding, through System Resilience Groups, the Better Care Fund, and Integrated Personal Commissioning, to improve co-ordination between hospitals and community settings, including hospices, for people approaching the end of life; and health and social care staff identifying carers of people who are approaching the end of life and referring them for local authority assessments.
(Edited publisher abstract)
Subject terms:
prevention, end of life care, palliative care, community care, care homes, nursing homes, hospital admission;
Reports on key issues raised at the NationalCouncil for PalliativeCare (NCPC) conference 'Refreshing the strategy: the next five years for end of life care: what do we need to do?', which was held at the halfway point of the 10-year 2008 End of Life Care Strategy. Key challenges identified at the conference included: the need to commission personalised care on the basis of local needs
(Edited publisher abstract)
Reports on key issues raised at the NationalCouncil for PalliativeCare (NCPC) conference 'Refreshing the strategy: the next five years for end of life care: what do we need to do?', which was held at the halfway point of the 10-year 2008 End of Life Care Strategy. Key challenges identified at the conference included: the need to commission personalised care on the basis of local needs; the complex nature of end of life care in relation to the number of services involved; improving data and intelligence in end of life care, ensuring end of life care is available to everyone who needs it, better communication about death. The report also includes additional recommendations and thoughts about what next in end of life care which will be developed by NCPC in the future.
(Edited publisher abstract)
...based care; support for the workforce to enable them to deliver compassionate and competent care; and fairness and equality in the access and quality of end of life care. The report argues that the scale and rate of change needs to be stepped up to improve the quality of care for people at end of life. The NationalCouncil for PalliativeCare (NCPC) also calls for a review into how dying, death
(Edited publisher abstract)
This short report draws out four key themes from the findings of three independent reports from the Parliamentary and Health Ombudsman, the Health Select Committee and the Choice in End of Life Care Programme Board ('Choice Review') on end of life care. The key themes identified are: the need for leadership to give end of life care greater priority; an increase in the well-coordinated community-based care; support for the workforce to enable them to deliver compassionate and competent care; and fairness and equality in the access and quality of end of life care. The report argues that the scale and rate of change needs to be stepped up to improve the quality of care for people at end of life. The NationalCouncil for PalliativeCare (NCPC) also calls for a review into how dying, death and bereavement are dealt with across government departments and public bodies. This would not only focus on improving end of life care, but on issues such as how the benefits system supports people who are terminally ill, are carers or who have been bereaved; and bereavement support in the workplace.
(Edited publisher abstract)
Subject terms:
end of life care, palliative care, government policy, community health care, leadership, staff development, access to services;