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The experiences of working parents of disabled children: family case studies
- Authors:
- KAGAN Carolyn, LEWIS Suzan, HEATON Patricia
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 1997
- Pagination:
- 47p.
- Place of publication:
- Manchester
Parents of disabled children are no different from any other parents. Some want to work, others choose to stay at home to look after the children, at least for a while. These families have lower average incomes, higher living costs, greater levels of stress and family dysfunction, more lone parents and higher levels of unemployment. Often they see their caring responsibilities stretching far into the future. Paid work can help address these problems and parents report that the benefits are not only financial but improve their self-esteem and sense of wellbeing.
Support network on disability: a resource guide to disability groups and organisations
- Author:
- ARAMAYO Manuel
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 2000
- Pagination:
- 98p.
- Place of publication:
- Manchester
Directory and resource guide to disability groups and organisations arranged alphabetically by disability.
The context of work and caring for parents of disabled children
- Authors:
- KAGAN Carolyn, LEWIS Suzan, HEATON Patricia
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 1997
- Pagination:
- 20p., bibliog.
- Place of publication:
- Manchester
The pressures and challenges associated with the care of disabled children are well documented but little is known about how these parents combine paid work with caring. This study analysed detailed accounts of parents from 40 families who are combining employment with care of disabled children. Parents felt that employment had both economic and psychological benefits for them and their children. Those parents who were able to work often did so below their skill level and capacity, because of their need to find work compatible with the requirements of caring. Benefits did not adequately compensate for loss of earnings and the extra costs associated with disability. The earnings thresholds on benefits, combined with the difficulties in sustaining secure but flexible work, trapped many families in poverty. Parents found information about locally based services, benefits and employment policies very difficult to obtain. Hospitals and other health care providers, social services and schools did not take account of parents' hours of work. There was a widespread assumption that mothers of disabled children did not work outside the home and were available at any time. Childcare provision was generally inadequate and inaccessible for disabled children. Parents needed some flexibility to adapt working time and location to respond to family needs. Some employers were very flexible and supportive to these parents; in return parents were loyal and committed workers. Self-employment was one way of achieving flexibility but could be a financially precarious solution. The researchers conclude that there is an urgent need for co-ordination between employers and service providers in the community to support these families in combining work and care.
Regional development for inclusion: community development and learning disabled people in the north west of England
- Author:
- KAGAN Carolyn
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 1997
- Pagination:
- 23p., bibliog.
- Place of publication:
- Manchester
Outcomes of a project of research into the active inclusion of learning disabled people in community development plans in the north west of England.
Inter-generational understanding in the inner city: 'edge effects' and sustainable change in community organisations
- Authors:
- CHOUDHURY Mal, KAGAN Carolyn
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 1999
- Pagination:
- 12p., bibliog.
- Place of publication:
- Manchester
A community organisation, aimed at developing inter-generational understanding and community spirit in the inner city Borough of ‘New Borough’ was developed. The paper presents an action research project conceived from a community psychology perspective, in which a new community setting was created. Three cycles of the Action Research process will be described, illustrating how alliances were formed, and ‘edge effects’ maximised. The project launch, held at Manchester United Football Ground, as well as subsequent inter-generational events will be described. Some of the dilemmas of conducting ‘insider’ action research will be highlighted.
Researching inclusion of disabled people in environmental activities
- Authors:
- BEAZLEY Sarah, et al
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 1997
- Pagination:
- 63p., bibliog.
- Place of publication:
- Manchester
Outcomes of a project of research into the active inclusion of disabled people in environmental regeneration plans in Salford.
Listening to older care-givers: research into aspirations for support
- Authors:
- SKELTON Judd, et al
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 1997
- Pagination:
- 69p., bibliog.
- Place of publication:
- Manchester
There is a need to address the problems identified by the study through multi-sectoral policies and programmes to sustain the health of older care-givers and to maintain their ability to provide adequate care. The fact that older care givers on “24-hour call” are particularly prone to failing health comes as no surprise. Often, there is a combination of factors such as vulnerability, heavy physical demands of care and a sense of losing the quality of life. Other contributory factors are the lack of sleep and rest, the curtailment or suppression of periods of sickness and the inability of maintaining hobbies. The main indicators of negative health effects are depression, fear and a low assessment of one’s own health.
Report of the development of understanding of the Family Based Intervention for Children with Cerebral Palsy and their Inclusion in the Community project from the perspectives of occupational therapy and community psychology
- Authors:
- KAGAN Carolyn, SCOTT-ROBERTS Sally
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 2002
- Pagination:
- 19p.
- Place of publication:
- Manchester
Community psychology and occupational therapy offer some frameworks for self-aware social change, with an emphasis on value based, participatory work: one that is pragmatic and reflexive, whilst not wedded to any particular orthodoxy of method. Thus within a community psychological approach, different sources of information might be combined to develop an integrated picture of a complex change project. This project was conceived as an action research project.
Dual earner parents with disabled children: pressures, needs and supports
- Authors:
- LEWIS Suzan, KAGAN Carolyn, HEATON Patricia
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 1996
- Pagination:
- 32p., bibliog.
- Place of publication:
- Manchester
Family strategies for caregiving and income generation are examined in a qualitative study of employed parents of disabled children in the United Kingdom. Four family patterns for working and caring emerged: modified single earner, one-and-a-half earners, dual earners, and flexible dual earners. A number of social, economic, and ideological factors contributed to decision making for these families. Gender expectations and related ideology of caring were usually the most salient, colouring the meanings ascribed to other influencing factors. Gender assumptions in the wider context underpin the difficulties many families experience in obtaining formal supports. The authors argue that flexible community-based and employer supports are crucial to help parents with disabled children to work and care. Beyond this, however, strategies that challenge gender expectations can extend the range of options available to parents, whereas more traditional approaches perpetuate inequalities and family hardship.