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Improving the health and wellbeing of people with learning disabilities: an evidence-based commissioning guide for clinical commissioning groups (CCGs)
- Authors:
- IMPROVING HEALTH AND LIVES: LEARNING DISABILITIES OBSERVATORY, ROYAL COLLEGE OF GENERAL PRACTITIONERS, ROYAL COLLEGE OF PSYCHIATRISTS
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2013
- Pagination:
- 70
- Place of publication:
- London
- Edition:
- Rev ed.
This practical guide is designed to support clinical commissioning groups (CCGs), with local authorities and learning disability partnership boards, to commission health services in ways that achieve better health outcomes for people with learning disabilities in a challenging financial climate. The guide has been written for CCGs to assist them to (among other things), jointly commission services for people who challenge services and those with complex needs; and work with local authorities. The focus is on specialist adult learning disability services. A section on cross cutting commissioning considerations, such as assistive technology and telecare or telehealth, and transition to other services. (Edited publisher abstract)
People with learning disabilities in England 2012
- Authors:
- EMERSON Eric, et al
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2013
- Pagination:
- 121
- Place of publication:
- London
This third annual compendium of statistics about the lives of people with learning disabilities covers a wide range of information about population numbers, mortality, education, health services, and social care for adults and children. Other sections summarise information collected on employment, abuse of vulnerable adults, deprivaiton of liberty safeguards (DOLS) assessments, benefits, and caerers. It is estimated that in England 1,14 million people had learning disabilities in 2012. This included: 236,000 children (identified at School Action Plus or above in DfE statistics as having either a primary or secondary SEN associated with learning disabilities); and 908,000 adults aged 18+, of whom 199,000 (22%) are known to GPs as people with learning disabilities, and 404,000 (44%) were receiving Disability Living Allowance. An easy read version (17p) is also available. (Edited publisher abstract)
Making reasonable adjusments to dementia services for people with learning disabilities
- Authors:
- KENNEY Amanda, IMPROVING HEALTH AND LIVES: LEARNING DISABILITIES OBSERVATORY
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2013
- Pagination:
- 25
- Place of publication:
- London
'Making reasonable adjusments to dementia services for people with learning disabilities' is part of a series of reports produced by IHaL which focus on reasonable adjustments to mainstream services, so that they meet the needs of people with learning disabilities. The report is a provides sources of evidence, research, policy and guidance, resources, and case studies and good practice examples. It can be used by people with learning disabilities (there is an easy read summary at the start of the report), carers, commissioners, providers, public health leads, and advocacy services, to improve dementia services for people with learning disabilities. (Edited publisher abstract)
Joint strategic needs assessments: how well do they address the needs of people with learning disabilities?
- Authors:
- BAINES Susannah, et al
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2013
- Pagination:
- 13
- Place of publication:
- London
The Local Government and Public Involvement in Health Act 2007 requires Primary Care Trusts and local authorities to produce a Joint Strategic Needs Assessment (JSNA) of the health and wellbeing of their local community. This review of currently available JSNAs suggests that, in many areas of England, JSNAs are failing to take due account of the health needs of people with learning disabilities, especially children with learning disabilities. While four out of five JSNAs do make some mention of people with learning disabilities, only 46% contain a specific section of the JSNA that is devoted to adults with learning disabilities, 9% to children with learning disabilities, and 8% to older adults with learning disabilities. Analysis of the type of information on learning disabilities contained in JSNAs suggests that they are unlikely to be of value in planning future services. (Edited publisher abstract)
Health inequalities and people with learning disabilities in the UK: 2011
- Authors:
- EMERSON Eric, et al
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2011
- Pagination:
- 32p.
- Place of publication:
- Stockton-on-Tees
People with learning disabilities face serious health inequalities, partly arising from difficulties they encounter in using health services. Health services have a duty to make the adjustments necessary to give them equal access. This report summarises the most recent evidence from the UK on the health status of people with learning disabilities and the determinants of the health inequalities they face. In 2002 a comprehensive review was undertaken of the UK research literature on the health needs of people with learning disabilities and the response of health services to people with learning disabilities. This has now been updated to 2011. The report focuses on information relating to the health needs of people with learning disabilities in the UK. It draws attention to studies from other countries where the results are particularly relevant. For this 2011 edition a further section focused on recent evidence of health inequalities and determinants relevant to children with learning disabilities is presented, including new analyses of data extracted from the Millennium Cohort Study and the Longitudinal Study of Young People in England.
Health inequalities and people with learning disabilities in the UK: 2011: implications and actions for commissioners
- Authors:
- TURNER Sue, ROBINSON Carol
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2011
- Pagination:
- 20p.
- Place of publication:
- Stockton-on-Tees
- Edition:
- Rev. ed.
People with learning disabilities face serious health inequalities, partly arising from difficulties they encounter in using health services. Health services have a duty to make the adjustments necessary to give them equal access. This document provides guidance for those people with responsibility for commissioning services about ways to increase access to, and improve healthcare. The guidance will also be of interest to family carers and professionals interested in the welfare of people with learning disabilities. Effective commissioning to address these inequalities will involve a number of key actions including: Ensuring that the health inequalities faced by people with learning disabilities are carefully documented in the Joint Strategic Needs Assessment (JSNA); Taking action to commission with all relevant partner agencies, services which address the determinants of health inequalities; Improving the number and quality of annual health checks; and Improving the number and quality of annual health checks.
People with learning disabilities in England 2010
- Authors:
- EMERSON Eric, et al
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2011
- Pagination:
- 71p.
- Place of publication:
- Stockton-on-Tees
Information is collected by several government departments on the characteristics of people with learning disabilities and on the services and supports used by them and their unpaid carers. The aim of this report is to provide a concise summary of this information and to provide links to key data collections. The report estimates that in England in 2010 1,198,000 people had learning disabilities. This includes: 298,000 children (188,000 boys, 110,000 girls) age 0-17; and 900,000 adults (526,000 men and 374,000 women), of whom 191,000 (21%) are known to learning disabilities services. The report includes data on health services, education, adult social care, employment, benefits and carers. Some of the information highlights progress being made on the implementation of key health and social care policies for people with learning disabilities, including: increased rates of uptake of annual health checks by adults with learning disabilities; a reduction in NHS long-term accommodation for adults with learning disabilities; and increased uptake of direct payments and personal budgets by people with learning disabilities. Other information, for example the very low rates of employment among adults with learning disabilities, highlights the progress that still needs to be made in order to meet the aspirations of current policies.
Health inequalities and people with learning disabilities in the UK: 2010
- Authors:
- EMERSON Eric, BAINES Susannah
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2010
- Pagination:
- 20p.
- Place of publication:
- Stockton-on-Tees
Designed to assist primary, acute and specialist NHS trusts in fulfilling their responsibilities for meeting the health needs of people with learning disabilities, this report summarises recent evidence from the UK on the health status of people with learning disabilities. It notes that people with learning disabilities have poorer health than their non-disabled peers and that the health inequalities they face start early in life, and draws attention to aspects of health where people with learning disabilities fare particularly poorly. It looks at inequalities in health status, summarising the available UK research literature on the health status and needs of children and adults with learning disabilities since 2002. It also discusses determinants of health inequalities faced by people with learning disabilities, covering increased risk of exposure to social determinants of health, increased risk associated with specific genetic and biological causes of learning disabilities, communication difficulties and reduced health literacy, personal health risks and behaviours, and deficiencies in access to and quality of health care provision. The authors conclude by suggesting actions which can be taken to respond to the health inequalities identified.
Health checks for people with learning disabilities: a systematic review of evidence
- Authors:
- ROBERTSON Janet, ROBERTS Hazel, EMERSON Eric
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2010
- Pagination:
- 55p.
- Place of publication:
- Stockton-on-Tees
A total of 38 peer reviewed articles published in English between 1989 and 2010 were included in this systematic review. Most were based on studies conducted in the United Kingdom. The majority of the studies looked at the outcome of a single health check; only three publications were based on randomized controlled trials. The content of the health checks varied widely and they were conducted in a variety of settings. It was common for the health check to be carried out by a general practitioner. The results of the studies indicated that introduction of health checks for people with learning disabilities typically leads to the detection of unmet, unrecognised and potentially treatable health conditions (including serious and life threatening conditions such as cancer, heart disease and dementia); and targeted actions to address health needs. Few studies investigated the extent to which the provision of health checks leads to short, medium or long term changes in health status and the authors emphasise the importance of this provision. The authors conclude that, given the specific difficulties faced by people with learning disabilities targeted health checks should be considered to constitute an effective and important adjustment to the operation of primary health care services in the UK. Areas for future research are outlined.
The Health Equalities Framework (HEF): an outcomes framework based on the determinants of health inequalities
- Author:
- ATKINSON Dave
- Publishers:
- National Development Team for Inclusion, Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2013
- Pagination:
- 125
- Place of publication:
- Bath
Provides a way for all specialist learning disability services to agree and measure outcomes with people with learning disabilities. The framework recognise five discernible determinants of the health inequalities commonly experienced by people with learning disabilities: social determinants, genetic and biological determinants, communication difficulties and reduced health literacy, personal health behaviour and lifestyle risks, deficiencies in access to and quality of health provision. Against each determinants the framework identifies and describes a set of indicators and assesses their impact. The document also includes: a commissioning guide, which places the HEF within the national commissioning context, and sets out other evidence and information sources that can be used to measure the impact of local services; a framework for identifying evidence based commissioning intentions and service priorities, to help commissioners summarise evidence of health inequalities locally, priorities for action, plans to reduce health inequalities, and evidence of change; the eHEF user manual, a Microsoft Excel-based tool that has been designed to support the framework; the Health Equalities Framework – a guide for family carers, which provides guidance for families who may wish to use the HEF independently of service providers/commissioners; and the HEF – an accessible guide for people with learning disabilities, who may wish to use the HEF to review their own situation. (Edited publisher abstract)