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Stabilise, energise, realise: a long term plan for social care
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2021
- Pagination:
- 80p
- Place of publication:
- London
This report from Future Health and Alzheimer’s Society sets out a vision and ways for Government to deliver a better future for social care through a new social care ten-year long-term plan.The vision in the plan is for a better social care system to deliver more personalised care. The plan also seeks to deliver a system that tailors care around the needs and wants of the individual involved. It includes short case case studies about the workforce, and delivering personalised care.The enablers for change are themed around: funding, workforce, and delivering high quality, personalised care. The 30 recommendations are themed around: funding, public engagement and information, workforce, quality, integration, carers, new technology and investment. (Edited publisher abstract)
A future for personalised care: a discussion paper on reform and the quality of social care
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2021
- Pagination:
- 41
- Place of publication:
- London
This discussion paper starts a conversation on what social care reform needs to deliver in order to meet the needs of people with dementia. The paper considers evidence from legislation, guidance, standards and frameworks that define quality care or drive improvement, from leading bodies across the social care sector. It also examines evidence from research hubs such as the Alzheimer’s Society Centres of Excellence, to understand the hallmarks of quality care, and how social care can best be delivered. It looks at personalised care, what ‘living well’ means for people with dementia, and the importance of social connections. It also considers how the social care system needs to be built to enable personalised care. The paper provides the foundation for future work, calling on the Government to set out and consult on a new vison for social care to re-examine the purpose of social care and start a meaningful reform in 2021. The report include specific national and local recommendations for England, Wales and Northern Ireland. (Edited publisher abstract)
Worst hit: dementia during coronavirus
This report brings together evidence from a wide range of sources to shine a light on the impact of Covid-19 on people who have dementia and those who care for them. It evidences the disproportionate death toll on people with dementia; the surge in loneliness and isolation; and the current inability of the health and care services to cope with the consequences of the pandemic. The report reveals that the most direct and devastating impact of Covid-19 on people affected by dementia is the high death rate – between 1 March and 30 June there were 50,335 Covid-19 related deaths in England and Wales. Furthermore, the restrictions on social contact put in place to slow the spread of Covid-19 had an impact across the population, but were particularly detrimental for people with dementia – for many people with dementia living at home, social distancing guidelines combined with the reduction or cancellation of home care services meant they were left without vital social interaction and support; in residential settings, the cancellation of visits, group activities and communal dining added to the isolation that people experienced. Finally, the rerouting of resources for health and social care towards acute settings and the inability of services to operate as normal due to lockdown measures left people affected by dementia without vital support. The report calls for care (including specialist dementia care) to be universal and free at the point of use and makes specific recommendations to help mitigate against the effects of Covid-19 as winter approaches; and to provide tailored support for people affected by dementia, including recognising the key role that informal carers play in the lives of people living with dementia. (Edited publisher abstract)
The fog of support: an inquiry into the provision of respite care and carers assessments for people affected by dementia
- Authors:
- ALLEN Karen, et al
- Publisher:
- Alzheimer's Society
- Publication year:
- 2020
- Pagination:
- 72
- Place of publication:
- London
This report reviews the support available to informal carers of people with dementia, with specific attention being given to carers’ assessments (or “check ins”) and the provision of short breaks for carers. Evidence for this research was collected from a range of sources, including via desk-based research, a survey of directors of adult social care, a request to local authorities for data, interviews with senior leaders and commissioners in adult social care, a survey of professionals, a survey of carers, and workshops held in England and Wales with people living with dementia and carers. The findings show that there is a reported lack of available services that enable carers of people living with dementia to take a break from caring. Positive support is reported by some (such as that provided by local charities, and the use of community resources); however, both professionals and carers report difficulty in finding care provision which suits the needs of people living with dementia, and this in turn prevents carers from arranging breaks for themselves. The experience of carer assessments reported by carers is mixed; however, this research confirms findings in the wider literature that only a minority of carers have received an assessment of their needs. Furthermore, these assessments were not always experienced positively. The nature of providing short breaks for carers is challenging from a legislative perspective and at a practice level, particularly where support may be delivered to a person living with dementia but is intended primarily for the benefit of the person caring for them. Some evidence highlighted situations where this was the case, as well as situations where the person with dementia may have different wishes to the person caring for them in terms of replacement care. (Edited publisher abstract)
Dementia and COVID-19: social contact
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2020
- Pagination:
- 12
- Place of publication:
- London
This briefing sets out the evidence for action to support social contact for people living with dementia and what the Government need to do next. It covers: the impact of COVID-19 on people with dementia in the UK; the importance of social contact for people living with dementia; maintaining social contact in care homes; supporting the delivery of home care services. The briefing observes that as well as the severe impact of COVID-19 itself, restrictions under lockdown have imposed a lack of social contact and interaction which are known to be contributing factor in the decline of people with dementia. The paper calls on the Government to lead a task force with Local Authorities and expert groups to address how they will support people with dementia as the country emerges from the lockdown over the next 6-12 months, with social contact at the heart of the solution. Specific recommendations for both care homes and home care are included. (Edited publisher abstract)
Coronavirus: information for people affected by dementia
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2020
- Place of publication:
- London
Advice and information for people who are living with dementia and their carers during the Coronavirus (COVID-19) pandemic. It includes advice for carers who live with a person with dementia, information on how best to support someone living alone and tips for supporting for someone living with dementia from a distance. The guide also includes activity ideas, including online and digital activities; and links to additional resources. (Edited publisher abstract)
The dementia guide: living well after diagnosis
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2017
- Pagination:
- 174
- Place of publication:
- London
- Edition:
- 2nd ed.
The second edition of a guide providing advice for people with dementia, and their carers, to help them come to terms with their diagnosis, and to plan ahead and enable them to live well with the condition. It includes sections focusing on the emotional impact of a diagnosis; drug treatments that are available; signposting to services available through the NHS; social services, charities and private organisations; and support for carers. The guide has been endorsed by the Royal College of Psychiatrists (RCP), the Royal College of General Practitioners (RCGP) and the Association of Directors of Adult Social Services (ADASS). (Edited publisher abstract)
Dementia-friendly housing charter: guidance on delivering a dementia-friendly approach to housing
- Authors:
- MOORE Bruce, et al
- Publisher:
- Alzheimer's Society
- Publication year:
- 2018
- Pagination:
- 56
- Place of publication:
- London
- Edition:
- Version 2
Updated version of the Dementia-friendly housing charter, which provides professionals working in the housing sector information on how housing, its design and supporting services can help improve and maintain the wellbeing of people living with dementia. It aims to help the housing sector to become more aware of the challenges of living with dementia, improve their home environments, and encourage consistency and good practice. It provides practical information, advice and examples of good practice from across the sector on addressing dementia-related housing needs. It looks at the difference that suitable housing can make, the scale of the challenge, and how to bring about change so that staff, building design and systems and processes taken into account the needs of people living with dementia. The charter also includes a number of commitments which organisations are encouraged to sign up to and deliver. The commitments cover three areas: people, places, and processes and systems are intended as a guide for activity or to inform an organisations current work on dementia. Links to additional resources and relevant organisations are included. This is version 2 of the Charter, which was updated March 2018. (Edited publisher abstract)
Dementia: the true costs: fixing the care crisis
- Authors:
- HUTCHINGS Rachel, CARTER Dominic, BENNETT Katie
- Publisher:
- Alzheimer's Society
- Publication year:
- 2018
- Pagination:
- 43
- Place of publication:
- London
This report highlights the struggle many people living with dementia experience with failing health and care support services. It draws on the experiences of over 70 people, including people affected by dementia and health and social care professionals who attending five listening events. Although people living with dementia may get a diagnosis through the NHS, they receive support to help with daily living through social care, so are disproportionately affected by failures in the social care system. The report finds that people living with dementia face costs to pay for their care and support that they wouldn’t be expected to pay if they had another medical condition, that they struggle to access the care they need, and often experience poor quality care. The report calls for governments in England, Wales and Northern Ireland to improve services for people living with dementia. It recommends that the state covers extra care charges for dementia care, improve access to preventative and integrated care and support and for health and social care workers to have access to good quality training. It makes specific recommendations for government in England, Wales and Northern Ireland. (Edited publisher abstract)
Dementia-friendly rural communities guide
- Authors:
- BOULD Emma, et al
- Publisher:
- Alzheimer's Society
- Publication year:
- 2018
- Pagination:
- 52
- Place of publication:
- London
This guide provides good practice advice on how to create a dementia friendly community in rural areas and provides case study examples of current initiatives in rural communities. It provides information about how dementia affects people’s experience of living and working in a rural community and highlights the ways that people with can be better supported. These include people gaining a better understanding of dementia, volunteering to support an individual and making communities more dementia-friendly. It provides a step-by-step guide for creating dementia-friendly rural communities and also includes links to useful organisations and resources. (Edited publisher abstract)