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Empowering younger residents living in long-term care homes as co-researchers
- Authors:
- AUBRECHT Katie, et al
- Journal article citation:
- Disability and Society, 36(10), 2021, pp.1712-1718.
- Publisher:
- Taylor and Francis
This paper draws on research, of lived experiences of disability and the grounded expertise of disabled persons living in long-term care (LTC) homes as co-researchers, to illustrate the value of disability-led participatory research. The approach to a co-designed collaborative project on young adults living in LTC highlights the benefits of research that centers the lived realities of disabled people. Points of interest: Research and knowledge about disabled people living in long-term care (LTC) homes routinely excludes the perspectives of the people who live there; this is especially true for younger residents living in LTC. This article shares information about a study on promising approaches to residential LTC for people under 65 years of age that was co-led with care home resident researchers. The study design provided opportunities and supports to encourage meaningful engagement, such as training and access to research assistants. Resident co-researchers brought lived expertise and experiential insights that enriched the research process and knowledge produced, and that supported them in their own disability advocacy work. Inequities persist when budgets fail to consider and address barriers to residents’ full participation in all aspects of the research. (Edited publisher abstract)
Implementing smartphone technology to support relational competence in foster youth: a service provider perspective
- Authors:
- GOMEZ Efren, et al
- Journal article citation:
- Journal of Social Work Practice, 35(4), 2021, pp.381-402.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The field of child welfare continues to search for effective ways to mitigate risks foster youth often encounter. Research discoveries about the importance of attachments and relational competence for foster youth support greater well-being. However, little is known about the use of smartphone technology and companion software in foster care as a method in promoting relational competence. This qualitative implementation study sought to explore the perceptions of child welfare providers and other stakeholders regarding how smartphone technology facilitated the ability of foster youth to become more connected with trusted adults. Research results reveal challenges associated with child welfare officials’ purposeful issuance and utilisation of smartphones. Stakeholders and providers viewed these challenges as learning opportunities. Three critical themes uncovered - relationship building, youth empowerment, and normalcy - provide direction for how smartphone technology might be more efficiently tapped relative to future child welfare initiatives. (Edited publisher abstract)
Shared decision-making preferences in mental health: does age matter? A systematic review
- Authors:
- BURNS Lauren, DA SILVA Ana L., JOHN Ann
- Journal article citation:
- Journal of Mental Health, 30(5), 2021, pp.634-645.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Background: Research to date suggests older adults prefer a passive involvement in the clinical decision-making process; however, the empirical evidence underlying this claim in the mental health context is yet to be reviewed systematically. Aims: To understand whether older adults desire involvement in mental health-related clinical decisions. Method: A systematic review was conducted to identify primary research that explored mental-health decision-making preferences of people with a mean age of over 55 from January 1990 through to December 2018. Results: Three independent studies of varying design and quality were included. Study settings were in the USA, Germany, and the UK. A preference for shared decision-making was seen in two studies, while a preference for active decision-making was identified in one. Conclusions: In contrast to other reviews on clinical decision-making, this review focused on mental health-related decisions of older adults. The evidence suggests older adults desire involvement in mental health-related clinical decisions. Given the political drive to empower patients and the need to ensure evidence-based clinical practice, more high-quality research regarding the shared decision-making preferences and outcomes of older adults with mental ill-health is needed. (Edited publisher abstract)
Empowering younger residents living in long-term care homes as co-researchers
- Authors:
- AUBRECHT Katie, et al
- Journal article citation:
- Disability and Society, early cite 27 September 2021,
- Publisher:
- Taylor and Francis
This article draws on research, and lived experiences of disability and the grounded expertise of disabled persons living in long-term care (LTC) homes as co-researchers, to illustrate the value of disability-led participatory research. The approach to a co-designed collaborative project on young adults living in LTC highlights the benefits of research that centers the lived realities of disabled people. Points of interest include: research and knowledge about disabled people living in long-term care (LTC) homes routinely excludes the perspectives of the people who live there; this is especially true for younger residents living in LTC; This article shares information about a study on promising approaches to residential LTC for people under 65 years of age that was co-led with care home resident researchers; the study design provided opportunities and supports to encourage meaningful engagement, such as training and access to research assistants; resident co-researchers brought lived expertise and experiential insights that enriched the research process and knowledge produced, and that supported them in their own disability advocacy work.; and inequities persist when budgets fail to consider and address barriers to residents’ full participation in all aspects of the research. (Edited publisher abstract)
Job satisfaction: a positive attribute of work-family integration for female social work faculty
- Authors:
- SIMMONS Catherine A., et al
- Journal article citation:
- Social Work Education (The International Journal), 40(6), 2021, pp.803-819.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Academic literature exploring the experiences and needs among women in the social work professorate has yet to explore the ways in which work-life and family-life are compatible, including work-life enrichment and job satisfaction. To remedy this empirical gap, the current descriptive exploratory study of 504 female tenure-track social work academics investigates components essential to job satisfaction, which are also important to work-life enrichment. A particular emphasis is placed on differences and similarities between women who have dependent children (e.g., under 18 and in the home), women who have adult children, and women who have no children. Data were collected using an on-line survey of social work faculty working at CSWE accredited programs. Variables explored include professional connectedness, workplace empowerment, career satisfaction, and stress. The most salient finding is that having dependent children is not a detriment to factors essential for successful work-life enrichment and job satisfaction, even though overall stress is higher. The three groups have more similarities than differences. Implications for policy, practice, and future research are addressed. (Edited publisher abstract)
Power is knowledge: empowering parents of children with cerebral visual impairment
- Author:
- McDOWELL Nicola
- Journal article citation:
- Disability and Society, 36(4), 2021, pp.596-617.
- Publisher:
- Taylor and Francis
For parents of children with cerebral visual impairment, the greatest need during the diagnostic period is to gain knowledge about their child’s visual difficulties. Unfortunately, through lack of information, many parents are often left confused and unsure how to help their child. To better understand the impact this lack of information has in relation to empowering parents and helping them to confidently develop into parental advocates, parents of children with cerebral visual impairment were invited to participate in an online survey. Responses were received from nine different countries in North America, UK, Australasia and Europe. Information gathered included: parents’ experiences during the diagnostic period, their attainment of knowledge as their child developed and their level of empowerment in relation to the services their child receives. Findings suggest that parents who did receive information at time of diagnosis have more positive relationships with professionals, feel more empowered and are more confident in being parental advocates. (Edited publisher abstract)
Powerlessness in the moral self: a social cognitive perspective on drug users
- Author:
- KIM DooJong
- Journal article citation:
- Journal of Social Work Practice in the Addictions, 21(2), 2021, pp.162-178.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Powerlessness resides in devalued self-images of drug users. This study, drawing on social and moral psychology, examined the moral functioning of drug users compared to non-drug users. Self-reported data concerning moral identity and moral judgment on drug use were assessed and compared between groups. Drug users appeared to have significantly weaker moral identity centrality and pro-drug moral judgment than non-drug users. They also showed dissociation in the relationship between moral identity and moral judgment. As a result, the study proposed a moral identity model of drug use to better approach social cognitive powerlessness in drug users’ moral self. (Edited publisher abstract)
The girls work method: what is the role of empowerment in building girls’ agency?
- Authors:
- BOOMKENS Cynthia, et al
- Journal article citation:
- European Journal of Social Work, 24(2), 2021, pp.224-237.
- Publisher:
- Taylor and Francis
Girls Work, as one of the methods used by professional youth work, focuses on helping vulnerable girls to shape their own lives (a capacity also referred to as ‘agency’). In this study, it is hypothesised that the methodical principles (i.e. the guiding principles of the methodical actions of the youth worker) contribute to the empowerment process of girls, which in turn leads to the development of girls’ agency. Serial mediation was used to test this hypothesis. Results indicate that all of the methodical principles, with the exception of the use of context, are important in helping girls develop agency. Four of the methodical principles contribute to both empowerment and agency, while the other methodical principles contribute to agency only through empowerment. This paper also addresses the importance of focusing on the empowerment of girls, as empowerment is positively linked with agency. All of the components of individual empowerment are important when helping girls develop their agency. (Edited publisher abstract)
“We know what we are talking about”: experiences of young people with a chronic condition involved in a participatory youth panel and their perceived impact
- Authors:
- SCHELVEN Femke van, et al
- Journal article citation:
- Child Care in Practice, 27(2), 2021, pp.191-207.
- Publisher:
- Taylor and Francis
There is a growing recognition that research and implementation projects should be carried out “with” or “by” young people with chronic conditions, instead of “about” or “for” them. The current study aimed to explore how young people with chronic conditions experience their involvement in a participatory youth panel. This panel was a structural part of a three-year program addressing the social position of young people with chronic conditions in the Netherlands. It hosted 45 research and implementation projects to improve the social position of young people with chronic conditions in five areas: care, school, work, sport, and personal strength. Output from these projects were, for example, a tool to improve self-management, an evidence-based method to facilitate the transition to adult-care, and a digital platform about performing physical activity with a disability. During the program, six focus groups consisting of four to eleven panel members were conducted. The transcripts were analysed using the principles of thematic analysis. The results show panel members took part in multiple projects and activities, such as assessing project applications, evaluating the progress of projects and organizing a political lobby. They were enthusiastic about their role in the panel. The structural nature of the panel enabled them to achieve personal growth and professionalization of their participation. Consequently, panel members experienced an increasing impact on the program and separate projects, and on national politics. Therefore, it is suggested that a structural form of participation, such as a participatory panel, is suitable to facilitate meaningful participation of young people with chronic conditions. (Edited publisher abstract)
Making the transition from casework to group work
- Author:
- CAREY Lois
- Journal article citation:
- Social Work with Groups, 44(2), 2021, pp.139-151.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This article examines the meaningful difference in mind-set that distinguishes group work from casework. It illustrates the importance of the worker making a cognitive shift from social work with individuals (casework perspective), to work with a group, which consists of multiple members (group work perspective). This mind-set transition utilizes the framework of thinking group. The guiding principle of thinking group is viewed through the lens of group-as-a-whole first and individuals second. Trusting and empowering a group to do its work affords members the opportunity to realize the value of people who have been drawn together by common issues and the wisdom of shared experience. Excerpts from group process recordings and supervisory insight are included to illuminate the worker’s developmental process that contribute to new-found perspectives, while simultaneously becoming grounded in the group work process and its potential for member empowerment. (Edited publisher abstract)