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Policymaker and stakeholder perspectives on access to assistive technologies in Canada: challenges and proposed solutions for enhancing equitable access
- Authors:
- WANG Rosalie H., et al
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 17(1), 2022, pp.61-73.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: Unmet needs for assistive technologies (ATs) exist and the need for ATs is growing owing to demographic changes worldwide. Little comprehensive research has examined equity of access to ATs in Canada. Our study elucidates perspectives of policymakers and stakeholders on challenges and solutions for enhancing equitable access to ATs to advance policy discussions. Methods: We conducted a qualitative interview study with a purposive sample of policymakers and stakeholders. Stakeholders were from non-profit organisations; private insurance companies; ageing or technology industries; and advocacy, consumer, and support groups. We used thematic analysis to develop themes that summarised and facilitated data interpretation. Results: We conducted 24 interviews involving 32 participants. We present three themes: (1) User experiences, detailing challenges experienced by AT system users; (2) System characteristics: Challenges and solutions, outlining governance, financial, and delivery arrangements that create challenges for accessing AT, as well as participants’ proposed solutions; and (3) Shifts in models and principles, for approaches that may foster equitable access to ATs. We consolidate results into a set of valued qualities of a system that can enhance equitable AT access, and relate results to relevant national and international activities. Conclusions: This is the most comprehensive study of Canadian policymaker and stakeholder views on AT access to date. Identified challenges and solutions point to opportunities for policy action and to support work to create a national vision for AT access that strengthens the potential for ATs to enable daily activity participation, independence, and societal inclusion of seniors and people with disabilities. (Edited publisher abstract)
Towards a clearer understanding of the transformational potential of outreach work
- Authors:
- GRYMONPREZ Hans, ROOSE Rudi
- Journal article citation:
- European Journal of Social Work, 25(1), 2022, pp.26-40.
- Publisher:
- Taylor and Francis
Access to social services is a major concern in welfare policy, service delivery and social work. Outreach work is a social work approach described as an 'active mode of access'. However, the literature on access differentiates between a universal and a transformational view on access. In the first view, access refers to inclusion into the mainstream, for 'them' to become more like 'us'. In the second view, access refers to the transformation of society by challenging the mainstream to move towards a different 'we'. This article is based on a theory-driven model of views on access and elaborates on the transformative potential of outreach work, illustrated by references in a selection of research literature on outreach work. We propose four focal points for outreach workers and service managers to keep in mind while introducing or developing outreach work from a transformational perspective. (Edited publisher abstract)
Social support and access to justice at the kitchen table? An assessment of the legal capabilities of community social care professionals in the Netherlands
- Authors:
- CLAESSEN Dorien, EIJKMAN Quirine, LAMKADDEM Majda
- Journal article citation:
- European Journal of Social Work, 25(1), 2022, pp.51-64.
- Publisher:
- Taylor and Francis
This research examines the legal capabilities of social care practitioners involved in a new decision-making process, 'the kitchen table conversatio', used since the introduction of the 2015 Social Support Act in the Netherlands. This law delegates social care allocation to the local authorities, who employ social care practitioners to assess and decide upon the needs of applicants for personalised services. During the kitchen table conversation, social care practitioners, applicants and specialised services providers discuss the needs of applicants. The extent to which social care practitioners possess legal capabilities to deal with this new process is unknown. In a case study (Utrecht), data from kitchen table conversations with applicants suffering from cognitive impairment were gathered using participant observation techniques, semi-structured individual interviews and one group interview with social care practitioners, between October 2016 and May 2017. Content analysis showed the legal knowledge of social care practitioners and their awareness of the legal consequences of the kitchen table conversation. However, social care practitioners rely heavily on their interpersonal skills and on elective communication to avoid conflicts leading to legal procedures or involving their individual liability. More research is needed on the universal accessibility of social care services in the context of decentralisation. (Edited publisher abstract)
Effectiveness of support groups for caregivers of traumatic brain injury survivors
- Authors:
- SUNTAI Zainab, et al
- Journal article citation:
- Journal of Evidence-Based Social Work, 18(6), 2021, pp.636-649.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Purpose: Caregiver burden refers to the collective adverse outcomes of caregiving and its prevalence amongst caregivers of people with traumatic brain injury (TBI) is amplified by the suddenness of brain injury. This systematic review aimed to determine the effectiveness of support groups for this population. Methods: Studies were retrieved from the following databases: PsycINFO, PubMed, Science Direct, Web of Science, Academic Search Premier, CINAHL, JSTOR and the Cochrane Central Register of Controlled Trials. Results: Only two articles were found to meet the inclusion criteria and both studies showed reduced caregiver burden at the end of the support group interventions. Both studies employed online/remote support groups. Discussion and Conclusion: Social workers should consider the integration of technological advances to address barriers to support group access for caregivers of TBI survivors. More empirical studies are needed to determine the effectiveness of support groups for this population. (Edited publisher abstract)
Development of best practice recommendations to enhance access to and use of formal community care services for people with dementia in Europe: a Delphi process conducted by the Actifcare project
- Authors:
- ROSVIK Janne, et al
- Journal article citation:
- Aging and Mental Health, 25(12), 2021, pp.2298-2309.
- Publisher:
- Taylor and Francis
Objectives: Home-dwelling people with dementia and their informal carers experience barriers impeding access to community care services. This study is a part of the Actifcare project where eight countries participated. The aim was to achieve consensus on best practice recommendations for enhancing access to and use of formal community care services. Method: A Delphi consensus process was conducted. A total of 48 professional experts, 14 people with dementia and 20 informal carers rated the importance of 72 statements on a 7-point Likert scale. Consensus was based on the median and level of dispersion. Results: Sixty-two statements reached consensus, resulting in three categories of recommendations. An appointed contact person was central in Recommendations to enhance access. Coordination and flexibility in setting and type of services were among the Recommendations to enhance use. Training of health care personnel and person-centred care were central Recommendations that can facilitate access or use indirectly. Conclusion: The Actifcare Best Practice Recommendations suggest practical measures that can be taken by decision makers to enhance access and use of community care services, and thereby enhance quality of care and quality of life for home dwelling people with dementia and their informal carers. (Edited publisher abstract)
Barriers to the NDIS for people with intellectual disability and/or complex support needs involved with the criminal justice systems: the current state of literature
- Author:
- SPIVAKOVSKY Claire
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 46(4), 2021, pp.329-339.
- Publisher:
- Taylor and Francis
Background: This study synthesises current literature concerning the barriers to the National Disability Insurance Scheme (NDIS) faced by people with intellectual disability and/or complex support needs who are involved with the criminal justice system, or at risk of (re)involvement. Method: Through targeted searches of key databases, 41 publications were identified from the scholarly and grey literature. Results: Collected literature raises three main barriers to the NDIS. First, there are (mis)identification and diagnostic tensions hindering eligibility. Second, there are problems with the planning process, including the impracticality of “planning for” chaotic situations. Third, there are market and workforce deficits. Conclusions: Research into the NDIS experiences of justice-involved people with intellectual disability and/or complex support needs is nascent and developing alongside an evolving NDIS landscape. Future research should focus on the effects of forthcoming developments designed to reduce the barriers facing these populations, including the Complex Support Needs Pathway, and workforce capabilities and market strategies. (Edited publisher abstract)
Complex service needs of emerging adults accessing treatment for co-occurring opioid and mental health conditions
- Authors:
- LOMBARDI Brianna M., et al
- Journal article citation:
- Social Work in Mental Health, 19(6), 2021, pp.502-516.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Emerging adults are at high risk for opioid-use disorders (OUDs); however, their service use and co-occurring needs are infrequently described. This study analyzed county-level Medicaid claims across 3 years (2016–2018). A total of 1,665 individuals aged 17–25 received OUD services. More than 54% of the sample received services for a co-occurring mental health (MH) disorder. Only 21.3% received medications for OUDs (MOUDs), yet those with co-occurring MH were less likely to receive MOUDs and more likely to receive high-intensity services. This article will describe the characteristics of OUD and co-occurring treatment for emerging adults and address implications for social work. (Edited publisher abstract)
Parents with physical disabilities and perinatal services: defining parents’ needs and their access to services
- Authors:
- MERCERAT Coralie, SAIAS Thomas
- Journal article citation:
- Disability and Society, 36(8), 2021, pp.1261-1284.
- Publisher:
- Taylor and Francis
Parents with physical disabilities face challenges in their relationships with perinatal and early childhood services. This paper aims to better understand the experiences and needs of parents with physical disabilities regarding perinatal and early childhood services in the public healthcare system in Quebec, Canada. This paper also describes how adequately current services meet the needs of these individuals. Thirteen interviews were conducted with ten mothers and three fathers with physical disabilities. Results indicate challenges in various phases of the parental experience: the decision to have a child and conception; pregnancy follow-up; delivery; postnatal care and parental practices. The main issues reported by participants involved access to information and professionals’ attitudes. Participants also emphasized the importance of keeping control over the parenting process. As there is a growing interest in the questions surrounding parents with disabilities in Quebec, this study can provide useful insights for community organizations and political stakeholders. (Edited publisher abstract)
Help-seeking behavior of South Asian women in domestic violence: a scoping review
- Author:
- SRIPADA Poonam
- Journal article citation:
- Journal of Human Behavior in the Social Environment, 31(6), 2021, pp.729-750.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Domestic violence (DV) has serious implications for the welfare of South Asian (SA) women in the United States. Previous studies have identified significantly lower rates of help-seeking among SA women compared to the dominant culture and other cultural groups. However, there are no scoping reviews that summarize the literature to identify strategies for intervention and future research in order to promote faster and larger systemic wide change that is urgently necessary to meet the needs of this vulnerable population. Therefore, the purpose of this paper is to review and synthesize empirical studies that explore the socio-cultural factors related to the help-seeking behavior of SA women primarily in the United States. Forty-five English language peer reviewed articles met the inclusion criteria. The socio-cultural factors identified in the reviewed studies using a descriptive analytical method with a narrative review are patriarchy, acculturation, socioeconomic status, cultural competency, and immigration status. Implications for research and practice are discussed. (Edited publisher abstract)
What can the experiences of young adult carers tell us about what can make services more helpful for them and their families?
- Authors:
- STEVENS Madeleine, BRIMBLECOMBE Nicola
- Journal article citation:
- Journal of Youth Studies, early cite 25 June 2021,
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Young adults who provide unpaid care for older relatives have poorer outcomes than their peers in education, employment, health and wellbeing. Services that can potentially have a positive impact on their lives include services provided to the person they care for. However, survey research in England has indicated that receipt of such services is not necessarily linked to fewer negative consequences for young adult carers. This study conducted in-depth interviews with fourteen young adult carers who had responded to the original survey. This study explored their experiences with services for the care recipient and what factors limit or enhance the usefulness of those services. This study found three interrelated themes. First, difficulties accessing services can add to stress, and make problems harder to address when services are implemented; second, lack of continuity of services, and practitioners, undermines relationships and future trust in services, whereas consistent relationships are beneficial. Third, young adult carers described the benefits that resulted from their being involved in discussions and decisions about services, and the problems when this does not happen. The wellbeing of the young adult carer and the person receiving care are shown to be inextricably interrelated; this paper draws out implications for efforts to improve services. (Edited publisher abstract)