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Why are disabled people with learning difficulties being prevented from leading campaigns, projects and initiatives?
- Author:
- ASPIS Simone
- Journal article citation:
- Disability and Society, 37(1), 2022, pp.154-159.
- Publisher:
- Taylor and Francis
I am a disabled person with learning difficulties. This article describes my perspective on the involvement of disabled people in campaigns, projects and initiatives. I have noticed a gradual change, where LD people are less likely to be in decision-making roles, and more likely to be engaged in subordinate roles such as consultant, research participant, and co-producer of resources. I argue that this situation should be challenged, and that LD people should be supported to lead these activities in a way that contributes to their emancipation. (Edited publisher abstract)
A methodological reflection on investigating children's voice in qualitative research involving children with severe speech and physical impairments
- Authors:
- IBRAHIM Seray, et al
- Journal article citation:
- Disability and Society, 37(1), 2022, pp.63-88.
- Publisher:
- Taylor and Francis
Investigating voice in research that involves children with disabilities is highly challenging. Very few studies have problematised voice for the purposes of designing new technologies for and with children who have disabilities. We embarked on qualitative fieldwork with children who have severe speech and physical impairments with the view to motivate designers to consider new child-centred perspectives for conceptualising new communication technologies. In this article, we use reflexivity as a tool to critically examine how empowering our methodological decisions were for children with disabilities, in advancing child-centred accounts of their communication experiences. We propose four considerations that can be useful for researchers and practitioners when undertaking participatory work involving children with disabilities. These are: 1.Theoretical lenses guiding data collection, analysis and interpretation; 2. Developing credible accounts through strong and prominent ideas; 3. Children's ways of participating evidencing their voices, and; 4. Methods hindering the promotion of child centred accounts. (Edited publisher abstract)
Education for integrated working: a qualitative research study exploring and contextualizing how practitioners learn in practice
- Authors:
- CLOUDER Lynn, et al
- Journal article citation:
- Journal of Interprofessional Care, 36(1), 2022, pp.24-33.
- Publisher:
- Taylor and Francis
Integrated working can be a means of providing efficient and cost-effective care, which benefits both service users and health professionals. However, it does require readiness of practitioners to work in new and innovative ways to achieve integration. This paper describes the findings of a qualitative study exploring the nature of practice-based education and training underpinning successful integrated care teams using an ecological systems theory lens. Nine teams in the West Midlands region of the United Kingdom (UK) participated in this study. A total of 27 participants were involved in semi-structured interviews during which they shared their views and experiences of learning in practice. Thematic analysis of interview transcripts highlighted the shifting context of working in integrated teams impacting on learning, the influence of leadership on education and training, the nature of in-service training, and the knowledge-sharing culture. The findings highlight that the learning climate is highly dependent on the leadership ethos in the practice context, which influences the allocation of time and resources for training and clinical supervision. Whilst formal education and training has an important role to play in fostering integrated working, informal learning is pivotal to successful integration and potentially has greater impact making it worthy of further study. (Edited publisher abstract)
Intervening in domestic violence: interprofessional collaboration among social and health care professionals and the police
- Authors:
- NOTKO Marianne, et al
- Journal article citation:
- Journal of Interprofessional Care, 36(1), 2022, pp.15-23.
- Publisher:
- Taylor and Francis
Encountering domestic violence victims, perpetrators and witnesses in the multiprofessional fields of health and social care and policing includes various challenges. Each professional group perceives domestic violence from its own perspective, linked to its position in the field, core tasks, institutional practices and organizational structures. In this study, we examine interprofessional collaboration among Finnish social and health care professionals and police officers, focusing on the practices and conceptions concerning domestic violence interventions. The data consists of 16 focus group interviews, involving a total of 67 interviewees from social and health care professions and the police. The results indicate that successful interprofessional collaboration requires comprehensive knowledge and education on domestic violence as a phenomenon, on the tasks and the duties of different professionals, as well as tolerance and flexibility in their joint efforts. However, the emphasis on professional relationships often shifts the focus from the institutional and structural challenges of interprofessional collaboration to individual interactions. Organizational barriers and differences in goals may impede good intentions from being materialized into concrete outcomes. These findings challenge all organizations and professionals working on domestic violence intervention to reconsider their training, practices and organizational arrangements. (Edited publisher abstract)
Smartphone apps for transportation by people with intellectual disabilities: are they really helpful in improving their mobility?
- Author:
- ALANAZI Adel
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 17(1), 2022, pp.1-7.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: The paper undertakes a critical assessment of the use of smartphone apps for transportation by people with intellectual disabilities. Although apps for transportation such as Uber and Careem have been developed to assist people with disabilities and have numerous benefits, people with intellectual disabilities tend to encounter their own set of difficulties in accessing these apps. Materials and method: This paper presents the research findings drawn from a focus group discussion conducted with nine people with moderate to mild intellectual disabilities in Riyadh, by using a qualitative study focussed on the interpretative paradigm. Results: From the interview findings, some relevant themes were identified. These were: transportation issues encountered by people with intellectual disabilities, the extent and manner of the use of smartphone apps for transportation, the benefits enjoyed by those individuals in using smartphone apps for transportation and the difficulties encountered by them. Conclusions: The paper also discusses the implications for practice and presents some useful recommendations, including the need for family support and government assistance. (Edited publisher abstract)
Cognition in informal caregivers: evidence from an English population study
- Authors:
- GARCIA-CASTRO F. Javier, et al
- Journal article citation:
- Aging and Mental Health, 26(3), 2022, pp.507-518.
- Publisher:
- Taylor and Francis
Background and objectives: The relationship between caregiving and cognition remains unclear. We investigate this association comparing four cognitive tasks and exploring the role of potential explanatory pathways such as healthy behaviours (healthy caregiver hypothesis) and depression (stress process model). Research design and methods: Respondents were from English Longitudinal Study of Ageing (ELSA) (N = 8910). Cognitive tasks included immediate and delayed word recall, verbal fluency and serial 7 subtraction. Series of hierarchical linear regressions were performed. Adjustments included socio-demographics, health related variables, health behaviours and depression. Results: Being a caregiver was positively associated with immediate and delayed recall, verbal fluency but not with serial 7. For immediate and delayed recall, these associations were partially attenuated when adjusting for health behaviours, and depression. For verbal fluency, associations were partially attenuated when adjusting for depression but fully attenuated when adjusting for health behaviours. No associations were found for serial 7. Discussion and implications: the findings show that caregivers have higher level of memory and executive function compared to non-caregivers. For memory, we found that although health behaviours and depression can have a role in this association, they do not fully explain it. However, health behaviours seem to have a clear role in the association with executive function. Public health and policy do not need to target specifically cognitive function but other areas as the promotion of healthy behaviours and psychological adjustment such as preventing depression and promoting physical activity in caregivers. (Edited publisher abstract)
Technostress in a hostile world: older internet users before and during the COVID-19 pandemic
- Author:
- NIMROD Galit
- Journal article citation:
- Aging and Mental Health, 26(3), 2022, pp.526-533.
- Publisher:
- Taylor and Francis
Objective: Older adults are largely ignored in studies of technostress (stress induced by Information and Communication Technology (ICT) use). This study aimed at exploring individual and contextual antecedents to technostress among older ICT users. Methods: Online surveys with ICT users aged 60 years and above were conducted in 2016 (N = 537) and during the COVID-19 pandemic of 2020 (N = 407), examining technostress level, internet use patterns and sociodemographic background. The 2020 survey also assessed a COVID-19-related Hostile World Scenario (HWS). Results: The two samples had very similar background characteristics, but participants in 2020 were more experienced and their internet use was significantly more diverse and intense than that of their predecessors. The factors predicting technostress in both samples were poorer health, fewer years of use, fewer hours of use per typical week and smaller use repertoire. The technostress level in 2020 was significantly higher than that of 2016, a finding explained by the COVID-19-related HWS. Conclusions: Individual antecedents hardly vary in the presence of significant contextual antecedents, but HWS may leave users with fewer resources to cope with the negative effects of technology use. Future research should explore additional contextual factors and interventions that may alleviate technostress among seniors. (Edited publisher abstract)
Older people's strategies for meaningful social interactions in the context of eldercare services
- Authors:
- SODERBERG Maria, EMILSSON Ulla Melin
- Journal article citation:
- Journal of Social Work Practice, 36(1), 2022, pp.73-85.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Considering that 'social work with older people' refers to something that is carried out with older people, it is of crucial importance to reveal the meaning of 'the social' from the perspective of the elderly. The aim of this article is to reveal how older people go about achieving meaningful social interactions in everyday life in the context of eldercare services and the role of social work practice within this area. Twenty-six older people have been included in 24 open semi-structured interviews. Prominent features in the findings are that care recipients in eldercare services develop strategies to create a sense of meaningfulness. This is a new dimension of 'self-created' person-centred care. The conclusions drawn are that while social work for older people involves someone in charge of something for somebody else, social work with older people indicates an unconditioned practice beyond the performance of services. (Edited publisher abstract)
Working in complex contexts; mother social workers and the mothers they meet
- Authors:
- O'SULLIVAN Nicola, COOPER Andrew
- Journal article citation:
- Journal of Social Work Practice, 36(1), 2022, pp.101-117.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Drawing on findings from a psycho-social qualitative doctoral study, this paper considers the intimate and extraordinary emotional intensity, ambivalence and pain associated with the experience of mother social workers engaging with mothers and their infants in the context of child protection work. In this yearlong study undertaken with a group of female Irish child protection social workers, their role as mothers was an unanticipated emergent theme and was found to be inextricably linked to their work and their capacity for realistic decision-making. This paper considers the wider contexts of societal ambivalence about motherhood, mothering and social work itself, as a way of locating these experiences as fully psycho-social. The work discussion seminars offered as part of the research study afforded a rare opportunity for workers to talk about predicaments, failures and worries, in conditions of containment for anxiety, support for their learning, and a confidential reflective setting. (Edited publisher abstract)
Tinkering as collective practice: a qualitative study on handling ethical tensions in supporting people with intellectual or psychiatric disabilities
- Authors:
- HEERINGS Marjolijn, et al
- Journal article citation:
- Ethics and Social Welfare, 16(1), 2022, pp.36-53.
- Publisher:
- Taylor and Francis
- Place of publication:
- Abingdon
The values of patient autonomy and community participation have become central in health care. However, care practices involve a plurality of possibly conflicting values. These values often transgress the borders of the individual professional-client relationship as they involve family members, other professionals and community organisations. Good care should acknowledge this relational complexity, which requires a collective handling of the tensions between values. To better understand this process, we draw on [Mol, A. 2008. The Logic of Care: Health and the Problem of Patient Choice. Routledge; Mol, A., I. Moser, and J. Pols. 2010a. Care in Practice: On Tinkering in Clinics, Homes and Farms. Transcript Verlag.) by developing the notion of collective tinkering. An ethnographic study was conducted in two teams in community housing services for people with Intellectual Disabilities and Severe Mental Illness. Collective tinkering is analysed (1) within teams; (2) between professionals, family members and professionals from different organisations providing care for the same client; and (3) in organising practices for a collective of clients. Collective tinkering involves assembling goods into a care practice, attentively experimenting with these care practices, and adjusting care accordingly within a collective of those involved in care for a particular client (group). When collective tinkering does not occur, the stakeholders excluded (e.g. clients or family members) may experience poor quality of care. (Edited publisher abstract)