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Two views of generic care work in 'end of life' care
- Authors:
- HOLME Neal, HART Susan
- Journal article citation:
- Research Policy and Planning, 25(1), 2007, pp.27-41.
- Publisher:
- Social Services Research Group
This small explorative qualitative study examines the experiences of a small group of 9 home carers trained to work as generic care workers (GCWs) with 'end of life' patients and their carers in Blackpool. The views of 7 informal carers were also sought to see how the service was received. Through a combination of focus group discussion and the completion of a structured questionnaire the GCWs reported increased job satisfaction and motivation, less stress, felt an improvement in professional status and demonstrated a willingness and ability to undertake training. Informal carers reported receiving help with administering personal care and low grade medical tasks, along with domestic assistance and social support with short periods of daily respite; all factors identified in the research literature as crucial to maintaining 'end of life' patients at home. The partnership project was delivered at very little extra cost. Given that an ageing population brings with it increasing demands on health and social care agencies for palliative care services the scheme has the potential, on the evidence provided within the limitations of this study, to provide an effective support to the NHS End of Life Care Programmes.
Consulting with disabled children and young persons: a methodological framework
- Authors:
- HOLME Neal, HANMORE Rosemary
- Journal article citation:
- Research Policy and Planning, 19(1), 2001, pp.25-33.
- Publisher:
- Social Services Research Group
This article describes a consultation exercise undertaken with disabled children and young people who are attending at least one local authority, health or voluntary service in a new unitary authority. Current research has revealed little evidence of the 'wishes and feelings' of children and young people with disabilities being investigated. The method employed to investigate these views, comments on its evaluation and the main findings are described below. The success of this method in ascertaining the views of disabled children and young people is seen as enabling this group to forward their own opinions and assisting them to fulfil the statutory responsibility encapsulated within the Department of Health Looking After Children (L.A.C.) Records: Consultation form.