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Economics of dementia: a review of methods
- Author:
- CONNOLLY Sheelah
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 19(5), 2020, pp.1441-1473.
- Publisher:
- Sage
Given the expected increase in the number of people with dementia in the coming years, it is anticipated that the resources necessary to support those with dementia will significantly increase. There will therefore likely be increased emphasis on how best to use limited resources across a number of domains including prevention, diagnosis, treatment and supporting informal caregivers. There has been increasing use of economic methods in dementia in the past number of years, in particular, cost-of-illness analysis and economic evaluation. This paper reviews the aforementioned methods and identities a number of methodological issues that require development. Addressing these methodological issues will enhance the quality of economic analysis in dementia and provide some useful insights about the best use of limited resources for dementia. (Publisher abstract)
How do we know what we don’t know? Exploring Deaf people’s experiences of supporting their Deaf family member living with dementia
- Authors:
- FERGUSON-COLEMAN Emma, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 19(5), 2020, pp.1381-1396.
- Publisher:
- Sage
Deaf sign language users living with dementia and their carers, some of whom are Deaf, routinely face everyday barriers in accessing information, support (both formal and informal) and services. The familial care situation is further complicated given that most Deaf people will choose a life partner who is Deaf and most Deaf couples will have hearing children. This study focussed specifically on the everyday experiences of Deaf carers and the impact of caring for a loved one with dementia. Drawing on data from a wider consultation about dementia care, three Deaf carers were directly interviewed in British Sign Language by a Deaf researcher about their everyday experiences of care, support, and services. Thematic analysis focussed on: access is more than the provision of interpreters; effective care for the carers; and unknowing risk taking. Findings demonstrate the multifaceted effects of barriers to knowledge and information when the care partner is also Deaf, the urgent need for effective support for Deaf carers and unrecognised safeguarding concerns that are a result of lack of access to forms of basic knowledge about living with someone with dementia and potential coping strategies. Nonetheless, the participants demonstrated novel solutions and resilience in the face of these multiple challenges. Implications are drawn for future targeted services to supported Deaf carers of people affected by dementia. (Publisher abstract)
Co-creation of a family-focused service model living with younger onset dementia
- Authors:
- HUTCHINSON Karen, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 19(4), 2020, pp.1029-1050.
- Publisher:
- Sage
Families living with younger onset dementia face unique social challenges, which services do not currently address. There is a gap in understanding the experiences of families affected by younger onset dementia, including the interactions and relationships within the family units, and with existing services and supports. In this qualitative research study, semi-structured interviews were conducted across Australia with seven health and social care providers, five persons living with younger onset dementia, six spouse/carers, and 17 children. A thematic analysis was conducted using a theoretical lens drawn from the combined perspectives of the social model of disability and family systems-illness model. Two central themes emerged in the data: (1) Understanding the social demands on the family – lifecycle challenges living with younger onset dementia from a social and family context; and (2) Interactions of health and social care providers with families living with younger onset dementia – opportunities and challenges in providing support and services geared to a whole family approach. In order to provide families for those living with younger onset dementia with optimal assistance and support, co-creation of a family-focused services model is proposed. Its purpose is to support effective therapeutic interactions and service development among service users, service providers, and stakeholders. (Edited publisher abstract)
Examining social service providers’ representation of trafficking victims: a feminist postcolonial lens
- Author:
- HU Ran
- Journal article citation:
- Affilia: Journal of Women and Social Work, 34(4), 2019, pp.421-438.
- Publisher:
- Sage
As anti-trafficking social service providers (SSPs) facilitate the process of victim recovery and empowerment, they also participate in the dissemination of trafficking-related knowledge to the general public. Drawing on a feminist postcolonial framework, this study sought to examine how anti-trafficking SSPs represent trafficking victims in written narratives published on their organizational websites. Thirty-three narratives were drawn from the websites of 10 New York–based anti-trafficking SSPs. Despite the widespread adoption of a strength-based term, “survivor,” the narratives were found to reinforce a gendered and racialized representation of trafficking victims as sex trafficked women from the “global South” and to (re)produce many “ideal” trafficking victim stereotypes that have been dominating the current discourses of trafficking. A “life transformation” discourse was pervasive, discursively foregrounding the positive impact of the SSPs on trafficking survivors. The findings suggested a need for anti-trafficking SSPs to engage with critical reflection on their positionality and intentionality in representing trafficking victims/survivors and to adopt a survivor-led storytelling paradigm. This study also provided a timely reminder for social work practitioners and researchers to continue to challenge the dominant narratives embedded in their fields of practice, to exercise critical self-reflexivity, and to provide a discursive space for those who have been deprived of voices. (Publisher abstract)
The continuity of social care when moving across regional boundaries
- Authors:
- MARSLAND Dave, WHITE Caroline, MANTHORPE Jill
- Journal article citation:
- Journal of Social Work, 19(5), 2019, pp.557-577.
- Publisher:
- Sage
Summary: This paper reports the experiences of adults in receipt of social care when relocating to new local authorities, and of family carers. While many matters need to be considered when moving, the study focused specifically on the ‘portability’ of social care. The study draws on data from semi-structured interviews conducted between July and November 2013 with 12 adults who had relocated between English local authorities. Data were collected prior to the implementation of the Care Act 2014; the potential impact of the Act in respect of relocation is considered. Findings: Although some positive experiences were identified, participants primarily reported challenges when moving with social care support. Five themes were identified, these related to the amount of organisation, planning and activity required; the need for a timely approach and the risk of delays and interruptions to care delivery; differences between the practices of local authorities; a lack of control and involvement; a negative impact on emotional and physical well-being. As a result of such difficulties, some experienced delays or interruptions to their care and support; lost all or some of their care package; experienced stress, anxiety and worry. Applications: The paper documents the experiences of people relocating with social care support, which have been little explored to date within the UK or internationally, and contributes to the evidence base in respect of relocation and portability of care. It highlights the importance of smooth transitions for those relocating between local authorities, and the potential for social workers to assist by addressing potential problems. (Edited publisher abstract)
Organisation and delivery of social services in extreme events: lessons from social work research on natural disasters
- Author:
- MAGLAJLIC Reima Ana
- Journal article citation:
- International Social Work, 62(3), 2019, pp.1146-1158.
- Publisher:
- Sage
Based on a rapid review of social work research literature on natural disasters, this article offers an original synthesis of lessons about the nature and organisation of social services in the context of natural disasters. Drawing on social practice theory, existing intervention models are problematised, offering a deeper understanding of the complex dynamics between diverse types and levels of organisation, differing constituencies of disaster survivors and differing environments in which they are encountered. The article also identifies elements of good organisational practice and sets an agenda for wider professional debate on the role of social work in international social development practice. (Edited publisher abstract)
Complexity in social work
- Author:
- HOOD Rick
- Publisher:
- Sage
- Publication year:
- 2018
- Pagination:
- 240
- Place of publication:
- London
Complexity lies at the heart of social work practice and this book is designed to help students and newly-qualified social workers plan for and manage complex cases in an increasingly complex environment. The book is in two parts, which reflect the journey of qualifying social work students from learning ‘on the job’ through working with service users in practice settings, and then assuming a more senior role in management, administration and training. Key topics covered in the chapters include managing volatility and uncertainty, making judgements and decisions, building and maintaining relationships, using reflection and supervision, working interprofessionally, managing risk, exploring cause and effect. (Edited publisher abstract)
If telecare is the answer, what was the question? Storylines, tensions and the unintended consequences of technology-supported care
- Authors:
- LYNCH Jennifer, GLASBY Jon, ROBINSON Suzanne
- Journal article citation:
- Critical Social Policy, 39(1), 2019, pp.44-65.
- Publisher:
- Sage
Telecare – services employing technology to monitor people’s movement, medication and home environment at a distance – has emerged as a key component of global social care and health policies. The relationship between policies about telecare and the experiences and aspirations of service users has been under-interrogated. This article draws on findings from an organisational case study involving people living with complex conditions using various telecare devices and employs Hajer’s (1995) concept of argumentative discourse analysis to identify two key storylines arguing that telecare improves people’s quality of life and promotes independence. While these storylines point to seemingly logical and incontestable objectives, uncritical policy and practice fails to recognise and prioritise the aspirations of service users, leading to unintended consequences that can deepen people’s isolation and minimise organisational benefits. (Edited publisher abstract)
Street-level bureaucrats as strategy shapers in social and health service delivery: empirical evidence from six countries
- Authors:
- VIRTANEN Petri, LAITINEN Ilpo, STENVALL Jari
- Journal article citation:
- International Social Work, 61(5), 2018, pp.724-737.
- Publisher:
- Sage
This article discusses the social construction of public services within the conceptual and theoretical framework provided by Lipsky. The authors are interested in what it means if/when street-level bureaucrats (SLBs) have an active role in the construction of a service system. They argue that there are multiple realities in terms of the construction of public services and approach the question by deploying Lipsky’s notion on SLBs by empirically analysing middle managers’ views on how SLBs act and their role in this construction process. This article is based on empirical interviews (N=100) collated in 2012 from Barcelona, Den Bosch, Glasgow, Melbourne, Toronto, Vancouver, the Greater London area, and the US state of Vermont. The research collation strategy was to include reform-oriented cities and countries in terms of developing and delivering public services. The research found that SLBs have three different kinds of strategies in the construction process: policy-making, working practices, and professionalism. It also found that there are no conflicts arising from SLBs’ beliefs, organisational demands, and rules and regulations. Instead, SLBs try to solve conflicts or bridge gaps between policy-making and practical work in the boundaries between SLBs and service users. Based on this research, the role of SLBs and the built-in flexibility and agility of public service leadership and organisations must be addressed and developed further. The role of organisational learning and changing organisational cultures must also be scrutinized in the context of public service systems. The analysis of professional resilience in the context of public services planning needs more theoretical and empirical attention. The resilience of organisations and the capacities of SLBs need to be researched more. Finally, there is the need for better cultivation of the role of the SLBs and service users with regard to accountability aspects (horizontal and vertical). (Edited publisher abstract)
Australian social work research on ageing and aged care: a scoping review
- Authors:
- HUGHES Mark, BIGBY Christine, TILBURY Clare
- Journal article citation:
- Journal of Social Work, 18(4), 2018, p.431–450.
- Publisher:
- Sage
Summary: Little is known about the quantity, nature and range of Australian social work research on ageing and aged care. This scoping review involved a comprehensive search of seven online bibliographic databases. The review identified 108 peer-reviewed journal articles, published between January 2007 and June 2014, that reported Australian social work research on ageing and aged care. Findings: The average number of authors per paper was 2.10 with most social work researchers co-authoring papers with non-social workers. The main topics of research focus were health and rehabilitation, elder abuse, asset management, community services and caregiving, housing and residential aged care, and ageing with an intellectual disability. The findings highlight the contribution social work researchers make to multidisciplinary gerontological research, and to understanding the lived experiences of older people and the provision of services. However, they also point to the relative paucity of research focusing on direct social work practice with older people, and the little evidence of the participation of older people and carers in the design and delivery of research. Applications: The findings indicate the need for capacity-building strategies, such as developing networks of Australian social work researchers on ageing and aged care, to improve research outputs in this area. (Edited publisher abstract)