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A scoping review to inform care coordination strategies for youth with traumatic brain injuries: care coordination tools
- Authors:
- SHOOK Brandy, et al
- Journal article citation:
- International Journal of Care Coordination, 25(1), 2022, pp.5-20.
- Publisher:
- Sage
Introduction and importance: Children with traumatic brain injury (TBI) report unmet needs several years after their injury and may require long-term care. However, this chronic health condition is often only treated and monitored in the short-term. Care for young persons with TBI often relies on parents to manage their child's complex care network. Effective care coordination can close these gaps and facilitate continuity of care for children with TBI. The purpose of this scoping review was to develop a better understanding of tools that improve care coordination for Children with Special Health Care Needs (CSHCN). This, in turn, can inform care for children with TBI. Methods: A scoping review was conducted following the PRISMA framework and methodology. OVID/Medline, CINAHL, PsycINFO, EMBASE, and ERIC databases were searched for articles relevant to care coordination tools used with CSHCN. Results: 21 articles met the criteria for inclusion in the review, and 6 major categories of care coordination tools were identified: telehealth, online health records and tools, care plans, inpatient discharge protocols, family training, and reminders. Discussion: Studies examining telehealth, online tools, care plans, and family training care coordination interventions for CSHCN have shown positive outcomes and would be relevant strategies to improve the care of children with TBI. Future prospective research should investigate these tools to explore whether they might improve communication, reduce unmet needs, increase service access, and improve long-term outcomes for children with TBI. (Edited publisher abstract)
A scoping review to inform care coordination strategies for youth with traumatic brain injuries: care coordination personnel
- Authors:
- PALUSAK Cara, et al
- Journal article citation:
- International Journal of Care Coordination, 25(1), 2022, pp.21-38.
- Publisher:
- Sage
Introduction and Importance: Effective, patient-centred care coordination has been shown to improve outcomes for children with special healthcare needs (CSHCN), who often have complex, long-term involvement with multiple service providers. Traumatic brain injury (TBI) can result in long-term physical, intellectual, social, and emotional disabilities that persist long after acute treatment. Yet, even though it is a chronic condition, TBI remains an area with scarce standardization and research surrounding the complex, long-term care coordination need in this population. The purpose of this scoping review is to summarize current research on outcomes in CSHCN after implementation of care coordinators, whether individual or teams, to inform future research for youth with TBI. Methods: OVID/Medline, CINAHL, PsycINFO, EMBASE, and ERIC databases were searched for articles relevant to care coordination and CSHCN. Results: 31 articles met inclusion criteria. Outcomes for children and families were grouped into 5 major categories: healthcare utilization, cost of care, disease status, parent and child quality of life, and healthcare satisfaction and perception of care. Discussion: Implementation of care coordinators, whether in the form of individuals, dyads, or teams, resulted in overall positive outcomes for CSHCN and their families across all 5 major outcome domains. Future research should be focused on the efficacy of care coordinators differing in profession, qualifications, and educational attainment specifically for the unique needs of children with TBI. Additionally, the application of care coordination within medical homes should be further investigated to increase proactive, preventative care of children with TBI and further reduce reactive, need-based treatment only. (Edited publisher abstract)
The mechanisms of implementation support - findings from a systematic integrative review
- Authors:
- ALBERS Bianca, et al
- Journal article citation:
- Research on Social Work Practice, 32(3), 2022, pp.259-280.
- Publisher:
- Sage
Purpose: Mechanisms of Change (MoC) explain how strategies used to enhance the uptake of evidence in social and human services enable change in the behaviors of individual practitioners, organizational leaders or entire organizations, and systems. One such strategy is the use of implementation support practitioner (ISPs). This study examines the mechanisms through which ISPs facilitate behavior supportive of the implementation of research-supported interventions. Methods: A systematic, integrative review was conducted. The conceptualization of MoCs built on a model by Dalkin and colleagues. Results: Based on a unique combination of knowledge, skills, and attitudes, ISPs install trust in and among their stakeholders and utilize this trust to promote meaningful and relevant learning; provide ongoing opportunities for learning, reflection, and support; help to span boundaries; and positively motivate stakeholders. Discussion: ISPs do not represent a short cut to better implementation. They represent an additional implementation challenge that requires dedicated attention and resources. (Edited publisher abstract)
Responses to COVID-19 in major social work journals: a systematic review of empirical studies, comments, and editorials
- Author:
- CHEUNG Johnson Chun-Sing
- Journal article citation:
- Research on Social Work Practice, 32(2), 2022, pp.168-185.
- Publisher:
- Sage
Purpose: The main objective of this study was to provide a comprehensive overview of the latest studies on COVID-19-related social work issues. Method: This systematic review aimed to collect, review, and synthesize all COVID-19-related papers published in 43 major social work journals, a year after the first known case was reported. Results: The final sample (n = 256) consisted of 85 research articles and 171 in other formats. All the studies involved a total of 46,195 research participants. The majority of papers (75.4%) could be accessed freely online. Service users including families, students, older adults, caregivers, refugees, patients, health care workers, etc. were either researched or discussed. Discussion: Gerontological social work was one of the fields that received ample attention. Papers published in the Journal of Gerontological Social Work yielded the highest number of citations. Academics and social workers came up with innovative ways of practicing and researching during the pandemic. (Edited publisher abstract)
Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: a scoping review
- Authors:
- MASTERSON-ALGAR Patricia, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 21(2), 2022, pp.648-676.
- Publisher:
- Sage
This article reports on findings of a scoping review aimed to map the published literature concerning the impact of Covid-19 on the care and quality of life of people living with dementia and their carers. Twenty-nine articles were included in the review. Three overarching themes were identified: (1) Impact on people with dementia – unmet and increased care needs; (2) Impact on carers – increased stress and burden and (3) Impact according to demographics. Overall, findings show that Covid-19 has led to a reduction in support from health and social services and to a move towards technology-based support. Furthermore, Covid-19 has had a negative impact on the care and quality of life of people living with dementia and their carers, and that this impact was influenced by the severity of dementia. (Edited publisher abstract)
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: a scoping review of European literature
- Authors:
- DURAN-KIRAC Gozde, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 21(2), 2022, pp.677-700.
- Publisher:
- Sage
The number of persons with dementia from ethnic minority backgrounds is increasing. However, ethnic minority groups use health care services less frequently compared to the general population. The researchers conducted a scoping review and used the theoretical framework developed by Levesque to provide an overview of the literature concerning access to health care for ethnic minority people with dementia and (in)formal caregivers. Studies mentioned barriers in (1) the ability to perceive a need for care in terms of health literacy, health beliefs and trust, and expectations; (2) the ability to seek care because of personal and social values and the lack of knowledge regarding health care options; and (3) lack of person-centered care as barrier to continue with professional health care. Studies also mentioned barriers experienced by professionals in (1) communication with ethnic minorities and knowledge about available resources for professionals; (2) cultural and social factors influencing the professionals’ attitudes towards ethnic minorities; and (3) the appropriateness of care and lacking competencies to work with people with dementia from ethnic minority groups and informal caregivers. By addressing health literacy including knowledge about the causes of dementia, people with dementia from ethnic minorities and their informal caregivers may improve their abilities to access health care. Health care professionals need to strengthen their competencies in order to facilitate access to health care for this group. (Edited publisher abstract)
Themes describing social isolation in family caregivers of people living with dementia: a scoping review
- Authors:
- LEE Joonyup, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 21(2), 2022, pp.701-721.
- Publisher:
- Sage
Introduction: The number of people with dementia has been increasing. Evidence shows that over 16 million family caregivers provide unpaid care for people with dementia. However, family caregivers experience several challenges throughout their caregiving role, including that of social isolation. Although social isolation in people with dementia has been well documented, social isolation in their family caregivers has not received as much scholarly attention. This scoping review sought to address this dearth of research through the following research question: “What are themes, concepts, or constructs that describe social isolation of family caregivers for people living with dementia?”. Method: An electronic search was conducted in PubMed, PsycInfo, and Scopus, using the following Boolean search phrase: dementia AND “social isolation” AND (caregiver OR carers). Content analysis was conducted to identify relevant themes. Findings: The initial search yielded 301 studies. Through screening processes, 13 studies were eligible for review. Based on a synthesis of evidence, five themes emerged from the data: disease progression, psychological state, social networks, social supports, and technology. Discussion: This review demonstrates that caregiving is related to social isolation in family caregivers of people living with dementia. The experience of social isolation was related to the progression of dementia, psychological states, and lack of supports. In contrast, social supports, social networks, and using technology may reduce social isolation. Identifying themes provides policy and practice implications, such as using information and communication technology to create and redefine social networks. (Edited publisher abstract)
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers
- Authors:
- BANNON Sarah M, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 21(2), 2022, pp.519-539.
- Publisher:
- Sage
Background and Objectives: Young onset dementias (young onset dementia) produce a myriad of stressors for persons with young onset dementia and their caregivers, yet there is a critical shortage of supportive services that address their needs. To develop such services, it is necessary to first comprehensively understand persons’ with young onset dementia and their caregivers’ service preferences. Therefore, the researchers conducted a meta-synthesis to integrate and summarize qualitative data on persons’ with young onset dementia and caregivers’ preferences for supportive services for young onset dementia, defined as support provided by medical providers, psychosocial interventions, and any other resources/services provided to promote positive adjustment in persons with young onset dementia and their caregivers. Research Design and Methods: the researchers searched five electronic databases for qualitative articles from inception to January 2020. The researchers extracted and synthesized data from eligible articles using thematic analysis. After removal of duplicates, the researchers screened 219 articles identified through database and hand searches. Findings: Forty-three studies met the inclusion criteria. Researchers extracted findings from these 43 studies on preferences within three a priori defined domains: 1) general characteristics of supportive services, 2) format and modality of supportive services, and 3) content for supportive services. Persons with young onset dementia and caregivers predominantly expressed common preferences, with some unique preferences based on their specific roles within the partnership. Discussion and Implications: Persons with young onset dementia and their caregivers endorsed largely overlapping preferences, including having direct contact with providers and the ability to participate together in programs that have content and skills relevant to their specific needs and challenges. Findings can directly inform the format, content, and procedures of supportive services for persons with young onset dementia and their caregivers. (Edited publisher abstract)
Social work core competencies in disaster management practice: an integrative review
- Authors:
- SIM Timothy, DOMINELLI Lena
- Journal article citation:
- Research on Social Work Practice, 32(3), 2022, pp.310-321.
- Publisher:
- Sage
Purpose: Though social workers are increasingly engaged in the disaster management, there has been a lack of professional guidelines for social work practice and training in this emerging field. This study aims to develop a rudimentary social work competence framework to plug this gap. Method: the researchers conducted an integrative review of 183 international empirical studies and practice reflections, comprising a systematic search, selection, review, and content analysis, guided by ecological systems theory. Results: This rudimentary framework consists of 73 competencies, including 33 micro-level competencies, 18 meso-level ones and 22 macro-level ones, covering knowledge, values and skills in four disaster management phases. Conclusion: Compared to other competence frameworks, this framework further elucidated and classified the salient knowledge, values, and skills in disaster management training and practice for social work. (Edited publisher abstract)
The impact of a power mobility device on occupational participation and quality of life for people with chronic diseases: a scoping review
- Authors:
- KEMMIS Emma, ASHBY Samantha, MACDONALD-WICKS Lesley
- Journal article citation:
- British Journal of Occupational Therapy, 84(12), 2021, pp.745-764.
- Publisher:
- Sage
Introduction: The aim was to explore occupational participation and quality of life (QoL) for power mobility device users with chronic disease. Methods: Arksey and O’Malley’s framework for scoping reviews was used. Six data bases were searched using keywords: wheelchair, scooter, QoL and participation. Data were extracted with coding and thematic analysis performed. Results: Forty-one articles met the inclusion criteria. An overarching theme of enhanced QoL was identified with subthemes of (i) independence, (ii) enabling participation in instrumental activities of daily living, (iii) enhanced social participation and leisure, (iv) environmental barriers to occupational participation, (vi) power mobility device (PMD) performance concerns impacting occupational participation and (vii) overcoming risk of harm through PMD training. Conclusion: The scoping review identified a heterogeneity of study designs and outcome measures, which makes comparison between studies difficult. For people with chronic diseases, PMDs improve independence in occupational participation, particularly in IADL, social participation and leisure. Unfortunately, improved QoL was often inferred, without the use of an outcome measure. Areas which impacted occupational participation for PMD users were environmental barriers and a lack of PMD training. Further research is needed to understand the impact of a PMD on QoL and occupational participation for those with chronic disease. (Edited publisher abstract)