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Looking for an ordinary life: children with complex health needs or dependent on medical technology
- Author:
- DAVIES Jill
- Journal article citation:
- Learning Disability Today, 15(2), March/April 2015, pp.23-25.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Children with complex health needs or who are dependent on medical technology and their families want to lead as ordinary lives as possible, but find many barriers to achieving this. However, they can be broken down through adaptations and using different funding models. In a project carried out by the Foundation of Learning Disabilities nearly 40 children and families across England gave their views about the barriers they faced in trying to achieve an ordinary life and what could be put in place to help them. Families wanted support with practical issues and support in helping them understand how systems such as social care work. Key workers can help reduce stress by helping parents to navigate through the system; ensuring families have access to home adaptations; and helping families have a connection in the community. The study also found families who had tried combined health and social care budgets were positive about the experience. (Edited publisher abstract)
From the grassroots up
- Author:
- MOURANT Andrew
- Journal article citation:
- Mental Health Today, November/December 2014, pp.10-11.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Social isolation can be a big issue for people with dementia. This article looks at how local grassroots initiatives in Yorkshire have helped to improve the quality of life of people with dementia and tackle issues of social isolation. The Tea Cosy Memory Cafe is held every month and provides a place for people with dementia to meet, take place in activities and have a cooked breakfast. Another social initiative was set up with the help of Leeds United football club, where people with dementia and their carers can re-live sporting memories. Other social initiatives have been set up by the West Yorkshire Playhouse in Leeds and at a local pub. All have been set up by individuals in the community who have had some connection with the condition of dementia. (Edited publisher abstract)
Learning disability today
- Author:
- CARNABY Steven
- Publisher:
- Pavilion
- Publication year:
- 2012
- Pagination:
- 220p.
- Place of publication:
- Eynsham
- Edition:
- 3rd ed.
This book examines the current issues of those using and delivering services and support for people with a learning disability. The book strives to renew and extend the enthusiasm of the previous editions in the face of an ever-changing landscape of policy and provision. Many of the chapter themes reflect the learning outcomes of the QCF learning disability qualifications introduced in 2011. Personalised services, quality of life and inclusion for all and key issues are covered in this new edition. Topics include: legislative frameworks person-centred thinking: implementing person-centred approaches in health and social care self-directed support and personalisation intimate lives: sexuality and people with learning disabilities family matters: working with parents with learning disabilities.
Getting a life not a service
- Author:
- CROOKDALE Sara
- Journal article citation:
- Learning Disability Today, 10(10), December 2010, pp.24-25.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Since July 2009, in partnership with Bury Council, the National Autistic Society (NAS) has run an autism-specific support brokerage for the community of Bury. The aim of the brokerage is to support people with autism to get an individual budget and to make it work for them. In April 2010 this work was recognised with a ‘Bury Adult Social Care Award’ for equality and diversity. This article describes the trials and rewards of setting up this brokerage project. The philosophy of self-directed support has had a major impact in helping Bury Council to change its focus from meeting people’s immediate needs to thinking about long-term quality of life and a more individualised approach to support. Individual budgets can be spent, not only on traditional-style services, but also on leisure activities. This article describes key issues that need to be addressed in the implementation of self-directed support and the improvement that it can make to people's lives.
Working for a change?
- Authors:
- JAHODA Andrew, BANKS Pauline, DAGNAN Dave
- Journal article citation:
- Learning Disability Today, 10(8), October 2010, pp.35-37.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Supported employment is a common route to work for people with learning disabilities. In theory, it involves careful job assessment to match individual’s strengths and wishes to potential jobs. This article provides an overview of a study which examined the impact of moving into supported employment on the quality of life and emotional well-being of people with learning disabilities. The 49 participants were recruited from 24 supported employment schemes in Scotland. They worked between 3 and 38 hours a week, with an average of 16 hours. Their jobs were mainly entry level posts in retail, catering, office/administration, factory and domestic work. A number of self-report measures were completed to examine whether there were any changes to the participants’ mental health, social lives, and quality of life when they started work. In addition, the participants took part in 2 semi-structured interviews; the first when they started supported employment and the second 9 months later. The results of the self-report measures showed no changes of note at follow-up. However, the semi-structured interviews provided insight into the participants’ perceptions of work and how their views about employment changed. The article concludes that there was little evidence of people with learning disabilities in work experiencing increased social interaction either within or outside of the work setting. Struggles with work can also raise people’s awareness of the limits of their abilities.
Getting to the heart of advocacy
- Author:
- MACARTHY John
- Journal article citation:
- Learning Disability Today, 10(8), October 2010, pp.20-21.
- Publisher:
- Pavilion
- Place of publication:
- Hove
This article discusses how independent advocates can still be effective when their advocacy partner is unable to instruct them. People with profound and multiple learning disabilities may be unable to voice their views, hopes, concerns or complaints to their advocate. This has led to the development and implementation of a viable and principled approach to non instructed advocacy (NIA). Non-instructed advocates still put aside their own views, feelings and preconceptions, but use a number of techniques through which they put together sufficient information about their partners to be able to ask the questions that those partners would have asked if they were able. In order to achieve this level of knowledge and understanding the advocate has to use techniques which work to give the advocate a real insight into the life and rights of their advocacy partner. The techniques are: being person centred; examining a partner’s rights; being a witness and understanding a partner’s life; and asking the right questions. The advocate is required to examine any proposal relating to their partner in the light of a number of universal values. The most commonly used set of values are competence, community presence, continuity, choice and influence, individuality, status and respect, relationships, and well-being.
Quality Guaranteed
- Author:
- LEESON Jayne
- Journal article citation:
- Learning Disability Today, 10(7), August 2010, pp.28-29.
- Publisher:
- Pavilion
- Place of publication:
- Hove
This article highlights the work of an audit teams made up of self-advocates. The Changing Our Lives audit team was formed in 2004 when a group of self-advocates decided they wanted to find out how they could check that services giving people with learning disabilities a good quality life. Over the next two years this group wrote a set of sixteen quality of life standards and developed a person-centred strategy of auditing services. Six years later, the team is made up of eight trained, paid auditors with learning disabilities. In the last two years this team has carried out one hundred and fifteen audits across a range of services including residential, nursing and supported living services, short breaks, day services, acute hospital services, mental health inpatient units, a low security forensic unit and learning disability mental health step down services. One of the auditors summed up their work saying, “We need to make sure people with learning disabilities are leading quality lives and being treated as equal in the community.”
Positive goals for positive behavioural support: interventions to improve the quality of life for people with learning disabilities whose behaviour challenges
- Authors:
- FOX Peter, EMERSON Eric
- Publisher:
- Pavilion
- Publication year:
- 2010
- Pagination:
- 80p., CD ROM
- Place of publication:
- Brighton
This resource is written to help with the selection and evaluation of outcomes of intervention for people with learning disabilities whose behaviour presents challenges for services. The authors cover a range of potential outcomes, enabling selection of those which are most relevant in order to evaluate progress towards achieving those outcomes. They look at both the personal and social consequences of the person's challenging behaviour and the effect of interventions on these quality of life factors, rather than simply focusing on attempting to reduce the challenging behaviour itself. The book is designed to act as an addition to existing assessment and intervention processes and documentation, and can be adapted to suit individual circumstances. Sections include: positive goals and positive behavioural support (PBS); development of positive goals; and how to use positive goals. It is aimed at carers, clinical psychologists, psychiatrists, behaviour therapists, community learning disability nurses, social workers, care managers, members of community learning disability teams and members of challenging behaviour teams. The resource is presented in ring-bound format with a CD-rom containing video clips and photo stories.
The life Greg wants
- Author:
- MASON Rachel
- Journal article citation:
- Learning Disability Today, August 2009, pp.32-33.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Profiles Greg Mason, who has autism and learning disabilities, and how his personal budget has improved his quality of life.
Architects of reform
- Author:
- KAEHNE Axel
- Journal article citation:
- Learning Disability Today, 9(5), July 2009, pp.34-36.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Highlights the key themes from a series of research papers delivered at a round table summit involving academics and practitioners from the US, UK, Netherlands, Germany and Australia looking at what really improves lives for people with learning disabilities.