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Supporting you as an older family carer: a booklet to support older family carers of people with learning disabilities to get the right support now and to plan for emergencies and the long term
- Authors:
- MAGRILL Dalia, PEARCE-NEUDORF Justin
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 50p.
- Place of publication:
- London
This booklet has been developed to help older family carers who are caring for people with learning disabilities to think and plan for the future as they get older. It covers: Getting the right support now; Practical support you may find useful; Preparing for emergencies; Preparing for the future. It aims to present different options and present a good starting point to finding solutions. It includes checklists and notes boxes to record information and service needs. It is one of a series of publications to come from the Mutual Caring project, set up to promote good practice and improve service provision for older families caring for people with learning disabilities.
Supporting you and your family as you grow older together: a booklet for people with learning disabilities who live at home with an older family carer
- Authors:
- MAGRILL Dalia, PEARCE-NEUDORF Justin
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 30p.
- Place of publication:
- London
A practical booklet for people with learning disabilities who are cared for by an older person in their family. It aims to help the family live together now, and also to think about things that may need to be done in the future. This booklet provides: good questions to ask; things that can help you now and in the future; and some of the people who can help you. It also looks at how to get ready for emergencies. Boxes to tick and write in are included throughout the booklet, providing a useful list of things to do or find out. This is one of a series of publications to come from the Mutual Caring project, set up to promote good practice and improve service provision for older families caring for people with learning disabilities.
Supporting mutual caring: a booklet for workers in services who are supporting older families that include a person with learning disabilities
- Author:
- FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 26p.
- Place of publication:
- London
An increasing number of people with learning disabilities are providing regular and substantial care for their ageing relatives. This care ranges from help with personal care, medication, cooking and cleaning, to help with shopping and keeping them company as they go out and about less. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. However, mutual caring amongst older families often remains hidden. This booklet highlights some of the main issues facing mutually caring older families and some of the ways that people in different services and roles can make a positive difference. This booklet should be read by anyone who is working in a service or role where they may come into contact with an older family in which a person with learning disabilities is taking on a caring role for their older relative. It focuses on 3 main topics: understanding mutual caring; responding to the challenge of mutual caring; and getting support right for families who are caring for each other.
Need 2 know: mutual caring: supporting mutual caring amongst families that include a person with learning disabilities
- Author:
- FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 7p.
- Place of publication:
- London
A number of people with learning disabilities are providing regular and substantial care for their ageing relatives. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. This briefing note sets out the main findings of a project which conducted in-depth studies with older families that include a person with learning disabilities. The aims of the project included directly supporting the development and promotion of good practice in supporting older families to plan for the future where a person with learning disabilities is providing regular and substantial care to an elderly relative. This briefing note sets out some of the main finding of the project. In particular, it lists guidance and strategies to commissioners and care managers on how to develop an effective service response to these families. A conclusion of the project is that the incidence of mutual caring is growing, but its true extent is not known. Mutual care is often not recognised, and responsibility for these families can often fall between older people’s services, learning disability services and carers’ services.
Mutual caring: multimedia resources
- Authors:
- FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES, (Producer)
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- DVD, CD ROM
- Place of publication:
- London
This 2-disc set include information developed as part of the Mutual Caring Project. The Mutual Caring Project was set up to help promote recognition of good practice and develop improved service provision for older families where the balance of the caring relationship between the long-term family carer (often a parent) and the person with learning disabilities (normally an adult son or daughter) has changed. This disc set highlights this neglected area and provides evidence of practical approaches that can be used in different settings. Disc 1 is a DVD with video stories of personal experiences and covers: being a carer; person centred planning; carers’ assessments; and group and peer support. Disc 2 is a CD-ROM containing all resources, tools and reports developed as part of the Mutual Caring Project. Resources have been made to help families, people with learning disabilities, staff, commissioners and others and include: Supporting You as an Older Family Carer; Supporting You and Your Family as You Grow Older Together; Supporting You to Support Your Family; Supporting Mutual Caring; Circles of Support and Mutual Caring; and Being a Carer and Having a Carer’s Assessment.
Circles of support and mutual caring
- Author:
- TOWERS Christine
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 5p.
- Place of publication:
- London
A number of people with learning disabilities are providing regular and substantial care for their ageing relatives. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. This booklet is aimed at workers and other people who know these families. The aim is to encourage people to think about the importance of support networks for these families and to develop Circles of Support to improve these. A Circle of Support is a group of family, friends and supportive workers who come together to give support and friendship to a person. The booklet describes: why Circles of Support are a good idea for older families where there is mutual caring; how Circles of Support can make a difference to older families where people are supporting each other; and 10 steps to setting up a Circle of Support. It also describes a case study of how a Circle of Support is helping a mother and daughter make choices and changes.
Adult family placement schemes for older carers: perceptions of users, family carers, placement providers and social workers
- Authors:
- McCONKEY Roy, et al
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 55p., bibliog.
- Place of publication:
- London
This report culminates from research undertaken into the feasibility of adult placement schemes in meeting the needs of older carers and their relatives with learning disabilities in Northern Ireland. This research was funded in part by a grant from the Foundation for People with Learning Disabilities, as part of the GOLD (Growing Older with Learning Disabilities) Programme.
Planning for tomorrow: report on the findings of a survey of Learning Disability Partnership Boards about meeting the needs of older family carers
- Author:
- FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2003
- Pagination:
- 42p.
- Place of publication:
- London
This report is part of the on-going Older Family Carers Initiative, a three-year project led by the Foundation for People with Learning Disabilities in partnership with organisations working to improve the lives of people with learning disabilities and their families, and the Valuing People Support Team. It is aimed at supporting Partnership Boards to identify, meet the needs and plan