This evaluation toolkit is to help provider organisations to improve the quality of support for people with learning disabilities as they grow older. It aims to enable providers to understand the values, knowledge and skills that need to be in place to support people as they grow older so that their lives are as happy, healthy and fulfilling as possible and draw up and deliver an action plan to improve the support provided to people as they grow older. It uses the 8 outcomes from the Association for Real Change 'Real Change Challenge on Older People'. It provides indicators for each of the eight outcome that providers can use to assess themselves against using a traffic light system (red, amber and green). The toolkit suggests resources to help achieve each outcome. There is also a template for developing an action plan to help organisations implement the necessary changes.
(Edited publisher abstract)
This evaluation toolkit is to help provider organisations to improve the quality of support for people with learning disabilities as they grow older. It aims to enable providers to understand the values, knowledge and skills that need to be in place to support people as they grow older so that their lives are as happy, healthy and fulfilling as possible and draw up and deliver an action plan to improve the support provided to people as they grow older. It uses the 8 outcomes from the Association for Real Change 'Real Change Challenge on Older People'. It provides indicators for each of the eight outcome that providers can use to assess themselves against using a traffic light system (red, amber and green). The toolkit suggests resources to help achieve each outcome. There is also a template for developing an action plan to help organisations implement the necessary changes.
(Edited publisher abstract)
Subject terms:
learning disabilities, ageing, person-centred care, performance evaluation, quality of life, outcomes, assessment;
An increasing number of people with learning disabilities are providing regular and substantial care for their ageing relatives. This care ranges from help with personal care, medication, cooking and cleaning, to help with shopping and keeping them company as they go out and about less. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. However, mutual caring amongst older families often remains hidden. This booklet highlights some of the main issues facing mutually caring older families and some of the ways that people in different services and roles can make a positive difference. This booklet should be read by anyone who is working in a service or role where they may come into contact with an older family in which a person with learning disabilities is taking on a caring role for their older relative. It focuses on 3 main topics: understanding mutual caring; responding to the challenge of mutual caring; and getting support right for families who are caring for each other.
An increasing number of people with learning disabilities are providing regular and substantial care for their ageing relatives. This care ranges from help with personal care, medication, cooking and cleaning, to help with shopping and keeping them company as they go out and about less. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. However, mutual caring amongst older families often remains hidden. This booklet highlights some of the main issues facing mutually caring older families and some of the ways that people in different services and roles can make a positive difference. This booklet should be read by anyone who is working in a service or role where they may come into contact with an older family in which a person with learning disabilities is taking on a caring role for their older relative. It focuses on 3 main topics: understanding mutual caring; responding to the challenge of mutual caring; and getting support right for families who are caring for each other.
Subject terms:
learning disabilities, older people, social care provision, ageing, assessment, carers, families;
A number of people with learning disabilities are providing regular and substantial care for their ageing relatives. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. This briefing note sets out the main findings of a project which conducted in-depth studies with older families that include a person with learning disabilities. The aims of the project included directly supporting the development and promotion of good practice in supporting older families to plan for the future where a person with learning disabilities is providing regular and substantial care to an elderly relative. This briefing note sets out some of the main finding of the project. In particular, it lists guidance and strategies to commissioners and care managers on how to develop an effective service response to these families. A conclusion of the project is that the incidence of mutual caring is growing, but its true extent is not known. Mutual care is often not recognised, and responsibility for these families can often fall between older people’s services, learning disability services and carers’ services.
A number of people with learning disabilities are providing regular and substantial care for their ageing relatives. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. This briefing note sets out the main findings of a project which conducted in-depth studies with older families that include a person with learning disabilities. The aims of the project included directly supporting the development and promotion of good practice in supporting older families to plan for the future where a person with learning disabilities is providing regular and substantial care to an elderly relative. This briefing note sets out some of the main finding of the project. In particular, it lists guidance and strategies to commissioners and care managers on how to develop an effective service response to these families. A conclusion of the project is that the incidence of mutual caring is growing, but its true extent is not known. Mutual care is often not recognised, and responsibility for these families can often fall between older people’s services, learning disability services and carers’ services.
FOUNDATION FOR PEOPLE WITH LEARNINGDISABILITIES, (Producer)
Publisher:
Foundation for People with LearningDisabilities
Publication year:
2010
Pagination:
DVD, CD ROM
Place of publication:
London
This 2-disc set include information developed as part of the Mutual Caring Project. The Mutual Caring Project was set up to help promote recognition of good practice and develop improved service provision for older families where the balance of the caring relationship between the long-term family carer (often a parent) and the person with learning disabilities (normally an adult son or daughter) has changed. This disc set highlights this neglected area and provides evidence of practical approaches that can be used in different settings. Disc 1 is a DVD with video stories of personal experiences and covers: being a carer; person centred planning; carers’ assessments; and group and peer support. Disc 2 is a CD-ROM containing all resources, tools and reports developed as part of the Mutual Caring Project. Resources have been made to help families, people with learning disabilities, staff, commissioners and others and include: Supporting You as an Older Family Carer; Supporting You and Your Family as You Grow Older Together; Supporting You to Support Your Family; Supporting Mutual Caring; Circles of Support and Mutual Caring; and Being a Carer and Having a Carer’s Assessment.
This 2-disc set include information developed as part of the Mutual Caring Project. The Mutual Caring Project was set up to help promote recognition of good practice and develop improved service provision for older families where the balance of the caring relationship between the long-term family carer (often a parent) and the person with learning disabilities (normally an adult son or daughter) has changed. This disc set highlights this neglected area and provides evidence of practical approaches that can be used in different settings. Disc 1 is a DVD with video stories of personal experiences and covers: being a carer; person centred planning; carers’ assessments; and group and peer support. Disc 2 is a CD-ROM containing all resources, tools and reports developed as part of the Mutual Caring Project. Resources have been made to help families, people with learning disabilities, staff, commissioners and others and include: Supporting You as an Older Family Carer; Supporting You and Your Family as You Grow Older Together; Supporting You to Support Your Family; Supporting Mutual Caring; Circles of Support and Mutual Caring; and Being a Carer and Having a Carer’s Assessment.
A number of people with learning disabilities are providing regular and substantial care for their ageing relatives. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. This booklet is aimed at workers and other people who know these families. The aim is to encourage people to think about the importance of support networks for these families and to develop Circles of Support to improve these. A Circle of Support is a group of family, friends and supportive workers who come together to give support and friendship to a person. The booklet describes: why Circles of Support are a good idea for older families where there is mutual caring; how Circles of Support can make a difference to older families where people are supporting each other; and 10 steps to setting up a Circle of Support. It also describes a case study of how a Circle of Support is helping a mother and daughter make choices and changes.
A number of people with learning disabilities are providing regular and substantial care for their ageing relatives. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. This booklet is aimed at workers and other people who know these families. The aim is to encourage people to think about the importance of support networks for these families and to develop Circles of Support to improve these. A Circle of Support is a group of family, friends and supportive workers who come together to give support and friendship to a person. The booklet describes: why Circles of Support are a good idea for older families where there is mutual caring; how Circles of Support can make a difference to older families where people are supporting each other; and 10 steps to setting up a Circle of Support. It also describes a case study of how a Circle of Support is helping a mother and daughter make choices and changes.
...of the Valuing People Support Team and the National Institute for Mental Health in England by the Foundation for People with LearningDisabilities working in partnership with the South West London NHS Mental Health Trust and St George's Hospital Medical School.
Green Light is a framework and self audit toolkit for improving mental health support services for people with learning disabilities. It provides a picture of what services should be aiming to achieve, including quality outcomes, and a self assessment checklist. It is aimed at Mental Health Local Implementation Teams and Learning Disability Partnership Boards. The pack was produced on behalf of the Valuing People Support Team and the National Institute for Mental Health in England by the Foundation for People with LearningDisabilities working in partnership with the South West London NHS Mental Health Trust and St George's Hospital Medical School.
Extended abstract:
Author
COLE Angela, GREGORY Margaret.
Title
Green Light for mental health: a service improvement toolkit.
Publisher
Foundation for People with Learning Disabilities, 2004
Summary
Green Light is a framework and self audit toolkit for improving mental health support services for people with learning disabilities, providing a picture of what services should be aiming to achieve, including quality outcomes, and a self assessment checklist, and aimed at Mental Health Local Implementation Teams and Learning Disability Partnership Boards.
Contents
Part A is a guide to the pack itself and to improving services and support for people with mental health problems who have learning disabilities. Section One introduces Green Light, telling users about the pack and what it's for and giving some ideas about getting the most benefit from the toolkit. Section Two is an easy to read summary designed primarily for use with and by people with learning disabilities. Section Three has two parts which, when added together, give an overall picture of what services should be aiming to achieve. The first gives the national policy context and highlights what the government expects of services in relation to people with mental health problems who have learning disabilities. The second is about quality outcomes for people with mental health problems who have learning disabilities and for their carers, from their own perspectives. Section Four creates a concrete picture of what needs to happen ‘out there' in the reality of services. It highlights key challenges for services in moving towards integrated mental health services for people with learning disabilities; explores what the national policy objectives actually look like in practice, i.e., accessible, integrated mental health support services, using examples from around the UK wherever possible. Section Five is about how to work out what needs to be sustained or changed locally. It introduces the self-assessment checklist and some ready-to-use survey tools which are found in Part B. The self-assessment checklist is at the core of the service improvement toolkit. There is guidance about getting information and evidence to underpin your local self-assessment, and about presenting findings to the Local Implementation Teams and Partnership Board. Part B – the toolkit – has four sections. Section One contains the self-assessment checklist and an action planning proforma. Section Two is a survey of in-patient experience Section Three is a survey of community support experiences. Section Four is a survey of carers' experiences. Throughout the guide there are quotations from the test sites and from people with mental health problems who have learning disabilities, which reinforce points in the text, and references to publications, resources and sources of information. These are listed at the end.
23 references
Subject terms:
learning disabilities, long term outcomes, quality assurance, vulnerable adults, vulnerable children, assessment;