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Transferable learning about patient and public involvement and engagement in gambling support services from health and social care: findings from a narrative review and workshop with people with lived experience
- Authors:
- NORRIE Caroline, et al
- Journal article citation:
- Journal of Integrated Care, 30(2), 2022, pp.189-202.
- Publisher:
- Emerald
Purpose: The involvement of patients or members of the public within public health, health and social care and addictions services is growing in the UK and internationally but is less common in gambling support services. The purpose of this study was to explore Patient and Public Involvement (PPI) infrastructures and engagement channels used in health and care services and debate their transferability to the gambling support sector (including research, education and treatment). Design/methodology/approach: A narrative review examined data from six English language electronic databases, NHS evidence and grey literature covering the period 2007-2019. We identified 130 relevant items from UK literature. A workshop was held in London, England, with people with lived experience of gambling harm to seek their views on and applicability of the review findings to gambling services. Findings: Synthesis of literature and workshop data was undertaken. Main themes addressed "What works" in relation to: building infrastructures and organising involvement of people with lived experience; what people want to be involved in; widening participation and sustaining involvement and respecting people with lived experience. Practical implications: Examination of the literature about involvement and engagement of patients, service users and the public in public health, health and social care and addiction services provides potentially useful examples of good practice which may be adopted by gambling services. Originality/value: The involvement of people with lived experience of gambling harms in gambling support services is under-explored, with little published evidence of what constitutes good practice amongst self-organising groups/networks/grassroots organisations or rights-based/empowerment-based approaches. (Edited publisher abstract)
Burden and benefits-related suicides: "misperception" or state crafted reality?
- Author:
- MILLS China
- Journal article citation:
- Journal of Public Mental Health, 21(1), 2022, pp.46-56.
- Publisher:
- Emerald
Purpose: This article aims to focus on deaths by suicide in relation to UK welfare reform as a case study to question one of suicidology's most dominant theories - the Interpersonal Theory of Suicide (Joiner, 2005) and its influential ideas on "perceived burdensomeness" - as well as wider ideologies on suicide and mental health reflected in this approach. Design/methodology/approach: This article draws on evidence from disabled people's campaigning groups (primary sources) and research literature (secondary sources), which shows the negative psychological impact of burden discourse and how this shows up in people's accounts of feeling suicidal, in suicide notes and in family accounts of those who have died by suicide. It uses this evidence to problematise the Interpersonal Theory of Suicide (Joiner, 2005), specifically its ideas about "burden" as an individual misperception, and the assumption that suicide is always the outcome of mental health problems. Findings: The findings highlight the systemic, intersectional and cumulative production of suicidality by governmental "welfare reform" in the UK, through positioning welfare claimants as "burdens" on society. They show that by locating the problem of burdensomeness in individual "misperceptions", the Interpersonal Theory allows the government’s role in crafting stigmatisation and conditions of suicidality to be overlooked and to be reproduced. Originality/value: The article raises urgent ethical questions about the application of approaches, such as the Interpersonal Theory of Suicide, to benefits-related suicides and calls for approaches to benefits-related harm and suicide to be rooted in social and disability justice. (Edited publisher abstract)
What does well-being mean to mental health peer workers
- Authors:
- EDGE Jenny, WHEATLEY Susan
- Journal article citation:
- Mental Health and Social Inclusion, 26(1), 2022, pp.89-100.
- Publisher:
- Emerald
Purpose: This paper aims to gain a detailed understanding of their experience of well-being from the perspective of mental health peer workers. Design/methodology/approach: An interpretative phenomenological analysis design using semi-structured interviews was conducted with four peer workers. Interviews were transcribed verbatim and then analysed using thematic analysis. Findings: Participants described their experience of well-being in terms of a journey over time that followed an unpredictable course. They understood their well-being in terms of their engagement in occupations. An occupational science framework was used to understand the participants’ experience of their well-being in terms of doing, being and becoming. Originality/value: This paper is among the first to approach the exploration of the experience of well-being for peer workers using an Interpretative Phenomenological Analysis design. (Edited publisher abstract)
Recovery college features and context: advancing a recovery and well-being policy agenda
- Authors:
- WOOLSEY Amadene, MULVALE Gillian
- Journal article citation:
- Mental Health and Social Inclusion, 26(1), 2022, pp.23-33.
- Publisher:
- Emerald
Purpose: Internationally, there has been a move towards more recovery-oriented mental health policies for people living with mental illness, and some countries have included well-being as a population-level objective. In practice, these policy objectives can be difficult to achieve because of deeply rooted policy legacies, including a biomedical approach to care and the stigma associated with mental illness. The purpose of this paper is to investigate how interventions that operate outside the formal mental health system, such as recovery colleges (RCs), may advance these policy objectives more easily than efforts at broader system reform. Design/methodology/approach: This study conducted a scoping review to explore the features and context of RCs that make the model an attractive and feasible opportunity to advance a recovery and well-being agenda. Our research is motivated by the initial and growing adoption of RCs by the Canadian Mental Health Association. This paper applies the consolidated framework for implementation research to analyse features of the model and the context of its implementation in Canada. Findings: The RC’s educational approach, adaptability, coproduced nature and positioning outside the formal mental health system are key features that facilitate implementation without disrupting deeply entrenched policy legacies. Other facilitators in the Canadian context include the implementing organisation’s independence from government, its federated structure and the model’s alignment with national policy objectives. Originality/value: This paper highlights how interventions outside the formal mental healthcare system can promote stated recovery and well-being policy goals. (Edited publisher abstract)
Challenging leisure activities and mental health: are they more beneficial for some people than for others?",
- Authors:
- SANTINI Ziggi Ivan, et al
- Journal article citation:
- Mental Health and Social Inclusion, 26(1), 2022, pp.34-46..
- Publisher:
- Emerald
Purpose: Previous studies have shown a positive association between being engaged or challenged through a leisure activity and good mental health; however, this relationship may vary by the extent to which individuals feel challenged at work or school. This study aims to examine whether a challenging work/study (or the lack of it) moderates the relationship between engaging in challenging leisure activity and mental health. Design/methodology/approach: Data from 2,406 adults 16-64 years old from The Danish Mental Health and Well-Being Survey 2016 were linked to Danish national register-based data. Mental well-being (outcome) was assessed using the Warwick-Edinburgh Mental Well-being Scale and depression/anxiety symptoms (outcome) were assessed using the Patient Health Questionnaire-4. Multivariable linear regressions were performed to estimate the association between challenging leisure activity (predictor) and challenging work/study (potential moderator). Findings: Overall, engaging in a challenging leisure activity was positively associated with mental well-being and negatively associated with anxiety symptoms. For these two, a challenging work/study significantly moderated the relationships. The positive association between a challenging activity and mental well-being was strongest among individuals not employed or studying as well as individuals feeling less challenged at work/school. Similarly, the negative association between a challenging activity and anxiety symptoms was strongest among individuals not employed or studying as well as individuals feeling less challenged at work/school. Among individuals with a very challenging work/study, challenging leisure activity was not associated with anxiety symptoms. Finally, engaging in a challenging leisure activity did not significantly predict depression symptoms. Originality/value: Mental health promotion strategies may focus on promoting challenging leisure activities especially among groups not employed or enrolled in education or among individuals that do not feel challenged through their work or studies. The results may further have implications for efforts to address and protect employee/student mental health at workplaces or schools. (Edited publisher abstract)
Helping with the pressures of the past: service-user perspectives of the sensory approaches within the National High Secure Healthcare Service for Women
- Authors:
- WILKINSON Dawn, BERYL Rachel
- Journal article citation:
- Mental Health Review Journal, 27(1), 2022, pp.18-30.
- Publisher:
- Emerald
Purpose: This paper aims to explore service-user perspectives of sensory approaches introduced and promoted by the trauma and self-injury service within the National High Secure Healthcare Service for Women (NHSHSW) at Rampton Hospital. Design/methodology/approach: This cross-sectional descriptive study used a semi-structured questionnaire, which was devised for this evaluation and included both open and closed questions. The data collected were then analysed using descriptive statistics and thematic analysis. Findings: The paper evaluates the current use of sensory approaches within the NHSHSW. Sensory approaches were widely used across the service, with essential oils being the most commonly used sensory approach. The use of sensory approaches can be understood according to the following three themes: independence, accessibility and self-regulation. The self-regulation theme contained three sub-themes as follows: safety-seeking, relaxation and reducing distress. The evaluation also highlighted barriers to using sensory approaches and sought service-user feedback as to how these may be overcome. Practical implications: Participants’ feedback informed changes to practice, such as introducing sensory approaches to service-users earlier in their care pathway and increasing the accessibility of sensory items. These approaches may be of relevance to service provision in other forensic or inpatient settings. Originality/value: This paper offers a unique contribution to the current literature with its focus on using sensory approaches to ameliorate trauma symptoms, in the context of a forensic setting. (Edited publisher abstract)
Review of analysis techniques in mental health research with consumer instruments – a guide for researchers
- Authors:
- BADU Eric, O’BRIEN Anthony Paul, MITCHELL Rebecca
- Journal article citation:
- Mental Health Review Journal, 27(1), 2022, pp.65-88.
- Publisher:
- Emerald
Purpose: This integrative review aimed to identify and synthesis literature on analysis techniques and methodological approaches used to analyse consumer measures in mental health research. Design/methodology/approach: The review included papers published up to January 2020 across seven databases: CINAHL, Web of Science, Medline, PsycINFO, EMBASE, Scopus and Google Scholar. Data search and extraction was conducted according to the recommended guidelines for conducting review by Cochrane and Joanna Briggs Institute. Mixed method synthesis was used to integrate both qualitative and quantitative data into a single synthesis. Findings: The initial search yielded a total of 2,282 papers. A total of 32 papers were included in the synthesis. Most of the included papers (25/32; 78.12%) focused on psychometric properties, whereas 14% (5/32) targeted analysis techniques, and 6.3% (2/32) addressed methodological justification. The measurement models (e.g. psychometric properties) were analysed through validity and reliability testing as part of instrument development and adaptation. The structural models were analysed using techniques such as structural equation modelling, multivariable regression models, intraclass correlation coefficient and partial least squares–structural equation modelling. Practical implications: Although consumer-reported instruments are analysed using techniques involving linear, hierarchical and longitudinal effects, no attempt has been given to procedures that applied complex data mining or machine learning. Consumer researchers, clinicians and quality management are encouraged to apply rigorous analysis techniques to critically evaluate consumer outcome measures. Originality/value: This review provides evidence on the analysis techniques in mental health research to inform the training of mental health professionals, students and quality assessment practitioners. (Edited publisher abstract)
Inequalities in women’s medium or low secure mental health settings: a scoping review
- Authors:
- TRUMM A., BRENISIN Kristina, BREEN Kieran
- Journal article citation:
- Journal of Forensic Practice, 23(3), 2021, pp.254-271.
- Publisher:
- Emerald
Purpose: The more disadvantaged members of society generally experience poorer outcomes following the development of mental ill-health. The purpose of this paper is to scope the literature and synthesise findings on the inequalities and mental health within secure mental health settings. Design/methodology/approach: Six electronic databases were searched to identify relevant studies. These were included if they examined the association between inequalities and mental health in women’s secure mental health settings. Findings: Of the 608 studies reviewed, 14 met the inclusion criteria. In these papers, violence and/or abuse were described as the most prevalent inequalities. The second most frequent group of inequalities identified were socio-economic. Only three published studies researched the impact of ethnicities. Physical health, alcohol abuse and a dysfunctional family upbringing were only mentioned in one of the studies. Gender identity, transitioning and sexual orientation was not considered in any papers. These are areas, which require further investigation to determine their specific impact in this setting. Research limitations/implications: This review highlights the dearth of high-quality research-based evidence underpinning an understanding of the impact of inequalities on women in secure mental health settings. The existing studies suggest that inequalities have a very particular impact and that intersectionality plays a key role. Further research is required to further understand how inequalities impact the lives of women in secure mental health settings. Practical implications: The inequalities that women experience in relation to mental health need to be further researched in the context of intersectionality. There are also research gaps in terms of gender identity, sexual orientation and socio-economic background. Further primary research using a more complex methodological paradigm is required to explore these factors and their impact on mental health service provision. Social implications: The role of inequalities should be considered as part of an overall care package, including the experiences of adverse childhood experiences and this should contribute towards the development of a trauma-based care approach. Originality/value: To the best of the authors’ knowledge, this is the first study to scope literature about inequalities experienced in women’s secure psychiatric settings considering intersectionality. (Edited publisher abstract)
“I got into a very dark place”: addressing the needs of young people leaving care during the Covid-19 pandemic
- Authors:
- KELLY Berni, et al
- Journal article citation:
- Journal of Children's Services, 16(4), 2021, pp.332-345.
- Publisher:
- Emerald
Purpose: This paper aims to report on the findings of a qualitative study that explored the views and experiences of young people leaving care during the first phase of the Covid-19 pandemic in Northern Ireland. Design/methodology/approach: A qualitative approach was adopted involving semi-structured interviews with 24 care leavers 18–25 years old from across the region. Interviews were conducted remotely online or by telephone and explored young people’s lived experiences during the pandemic including their views on the formal support services and how best to provide ongoing for support care leavers during the pandemic. Findings: Study findings highlight how known adversities for care leavers are exacerbated during the pandemic, having a detrimental impact, particularly on their emotional well-being. The response of the state as a corporate parent in mitigating the impact of the pandemic was found to be inadequate; with a need for much clearer communication, transparent and prompt decision-making and targeted specialist mental health services. The account given by the young people also highlighted the importance of participation and relationship-based practice to build on the young people’s resilience in the context of high levels of social isolation and limited access to informal support systems. Originality/value: This research, based on the views of care experienced young people themselves, is the first study in Northern Ireland to report on the impact of the Covid-19 pandemic on care leaving. As such it makes a contribution to this emerging international field of study and, given the persistence of the pandemic, provides empirical findings and a social justice perspective of ongoing relevance to policy and practice with young people leaving care. (Edited publisher abstract)
Is co-production working well in recovery colleges? Emergent themes from a systematic narrative review
- Authors:
- BESTER Karen Louise Bester, MCGLADE Anne, DARRAGH Eithne
- Journal article citation:
- Journal of Mental Health Training Education and Practice, 17(1), 2022, pp.48-60.
- Publisher:
- Emerald
Purpose: “Co-production” is a process in health and social care wherein service users and practitioners work in partnership. Recovery colleges (RCs) are educational establishments offering mental health education; a cornerstone feature is that courses are designed and delivered in parity by both mental health practitioners and “peers” – people with lived experience of mental illness. This paper aims to consider, through the identification of key themes, whether co-production within RCs is operating successfully. Design/methodology/approach: The paper is a systematic review of qualitative literature. Relevant concept groups were systematically searched using three bibliographic databases: Medline, Social Care Online and Scopus. Articles were quality appraised and then synthesised through inductive thematic analysis and emergent trends identified. Findings: Synthesis identified three key themes relating to the impact of co-production in RCs: practitioner attitudes, power dynamics between practitioners and service users, and RCs’ relationships with their host organisations. As a result of RC engagement, traditional practitioner/patient hierarchies were found to be eroding. Practitioners felt they were more person-centred. RCs can model good co-productive practices to their host organisations. The review concluded, with some caveats, that RC co-production was of high fidelity. Originality/value: RC research is growing, but the body of evidence remains relatively small. Most of what exists examine the impact of RCs on individuals’ overall recovery and mental health; there is a limited empirical investigation into whether their flagship feature of parity between peers and practitioners is genuine. (Edited publisher abstract)