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Transferable learning about patient and public involvement and engagement in gambling support services from health and social care: findings from a narrative review and workshop with people with lived experience
- Authors:
- NORRIE Caroline, et al
- Journal article citation:
- Journal of Integrated Care, 30(2), 2022, pp.189-202.
- Publisher:
- Emerald
Purpose: The involvement of patients or members of the public within public health, health and social care and addictions services is growing in the UK and internationally but is less common in gambling support services. The purpose of this study was to explore Patient and Public Involvement (PPI) infrastructures and engagement channels used in health and care services and debate their transferability to the gambling support sector (including research, education and treatment). Design/methodology/approach: A narrative review examined data from six English language electronic databases, NHS evidence and grey literature covering the period 2007-2019. We identified 130 relevant items from UK literature. A workshop was held in London, England, with people with lived experience of gambling harm to seek their views on and applicability of the review findings to gambling services. Findings: Synthesis of literature and workshop data was undertaken. Main themes addressed "What works" in relation to: building infrastructures and organising involvement of people with lived experience; what people want to be involved in; widening participation and sustaining involvement and respecting people with lived experience. Practical implications: Examination of the literature about involvement and engagement of patients, service users and the public in public health, health and social care and addiction services provides potentially useful examples of good practice which may be adopted by gambling services. Originality/value: The involvement of people with lived experience of gambling harms in gambling support services is under-explored, with little published evidence of what constitutes good practice amongst self-organising groups/networks/grassroots organisations or rights-based/empowerment-based approaches. (Edited publisher abstract)
"Lost in the literature." People with intellectual disabilities who identify as trans: a narrative review
- Authors:
- KEATES Nathan, DEWAR Eleanor, WALDOCK Krysia Emily
- Journal article citation:
- Tizard Learning Disability Review, 27(1), 2022, pp.46-52.
- Publisher:
- Emerald
Purpose: This narrative review aims to examine how trans people with intellectual disabilities are perceived and discussed in the academic literature. Design/methodology/approach: A narrative review was carried out to better understand the positioning of people with intellectual disabilities who identify as trans. Findings: There was a lack of clear terminology, an over medicalization of both people with intellectual disabilities and trans people and evidence that identifying with a non-conforming gender identity was seen as a problem by services. Services need to be better informed about issues around gender identity so that they are able to better support trans people with intellectual disabilities. Originality/value: To the best of the authors' knowledge, no previous literature review has focused only on trans people with intellectual disabilities. (Edited publisher abstract)
What are the priorities for the future development of integrated care? A scoping review
- Authors:
- BURKE Corey, et al
- Journal article citation:
- Journal of Integrated Care, early cite August 2021,
- Publisher:
- Emerald
Purpose: “Integrated care” (IC) is an approach to health and social care delivery that aims to prevent problems arising from fragmented care systems. The collective content of the IC literature, whilst valuable, has become extensive and wide-ranging to such a degree that knowing what is most important in IC is a challenge. This study aims to address this issue. Design/methodology/approach: A scoping review was conducted using Arksey and O'Malley's framework to determine IC priority areas. Findings: Twenty-one papers relevant to the research question were identified. These included studies from many geographical regions, encompassing several study designs and a range of populations and sample sizes. The findings identified four priority areas that should be considered when designing and implementing IC models: (1) communication, (2) coordination, collaboration and cooperation (CCC), (3) responsibility and accountability and (4) a population approach. Multiple elements were identified within these priorities, all of which are important to ensuring successful and sustained integration of care. These included education, efficiency, patient centredness, safety, trust and time. Originality/value: The study's findings bring clarity and definition to what has become an increasingly extensive and wide-ranging body of work on the topic of IC. Future research should evaluate the implementation of these priorities in care settings. (Edited publisher abstract)
Evidence assessment and narrative synthesis of the key characteristics of older people living in service-integrated housing facilities, and their ‘accommodation journey’
- Authors:
- THOMPSON Juliana, et al
- Journal article citation:
- Housing Care and Support, 25(1), 2022, pp.31-45.
- Publisher:
- Emerald
Purpose: This paper aims to provide an evidence assessment and narrative synthesis of literature regarding the key characteristics of older people living in service-integrated housing (SIH) facilities and their “accommodation journey”. Design/methodology/approach: A rapid evidence assessment was conducted: 22 research publications met the inclusion criteria and were analysed using narrative synthesis. Findings: The quality of studies in this area is low, but consistency across components of the results of studies included in the review is apparent. Results suggest key characteristics of older people that drive moves into SIH are a decline in health, increased dependency, increased health service use and carer burden. Suggested key characteristics of SIH residents are high levels of health problems, dependency and health service use, but high self-reported health and well-being. Results indicate that the key driver for older people leaving SIH is a lack of workforce competency to manage further declines in health and dependency status. Research limitations/implications: Current policy may not realise or account for the complex health and care needs of SIH residents. Investment into integrated care, robust community health services and workforce development to facilitate a comprehensive assessment approach may be required to support residents to remain in SIH and live well. Further longitudinal studies are required to map the progression of SIH residents’ health status in detail over time to provide an understanding of preventative and enablement support, development of care pathways and workforce planning and development requirements. Originality/value: This evidence assessment is the first to consider the accommodation journey of older people residing in SIH. (Edited publisher abstract)
Transferable learning about patient and public involvement and engagement in gambling support services from health and social care: findings from a narrative review and workshop with people with lived experience
- Authors:
- NORRIE Caroline, et al
- Journal article citation:
- Journal of Integrated Care, early cite February 2022,
- Publisher:
- Emerald
Purpose: The involvement of patients or members of the public within public health, health and social care and addictions services is growing in the UK and internationally but is less common in gambling support services. The purpose of this study was to explore Patient and Public Involvement (PPI) infrastructures and engagement channels used in health and care services and debate their transferability to the gambling support sector (including research, education and treatment). Design/methodology/approach: A narrative review examined data from six English language electronic databases, NHS evidence and grey literature covering the period 2007–2019. We identified 130 relevant items from UK literature. A workshop was held in London, England, with people with lived experience of gambling harm to seek their views on and applicability of the review findings to gambling services. Findings: Synthesis of literature and workshop data was undertaken. Main themes addressed “What works” in relation to: building infrastructures and organising involvement of people with lived experience; what people want to be involved in; widening participation and sustaining involvement and respecting people with lived experience. Practical implications: Examination of the literature about involvement and engagement of patients, service users and the public in public health, health and social care and addiction services provides potentially useful examples of good practice which may be adopted by gambling services. Originality/value: The involvement of people with lived experience of gambling harms in gambling support services is under-explored, with little published evidence of what constitutes good practice amongst self-organising groups/networks/grassroots organisations or rights-based/empowerment-based approaches. (Edited publisher abstract)
Burdens among familial caregivers of stroke survivors: a literature review
- Authors:
- SUKSATAN Wanich, et al
- Journal article citation:
- Working with Older People, 26(1), 2022, pp.37-43.
- Publisher:
- Emerald
Purpose: This paper aims to identify and examine burden(s) among stroke survivors’ familial caregivers for the purposes of future mitigation of such burdens. The purpose is so because these caregivers become the persons responsible for monitoring the daily living activities of their patients and are thus tasked with providing and managing a whole host of recovery, therapy and re-integrative activities to rebalance and re-establish the physical, mental and social well-being of patients. Design/methodology/approach: This literature review summarized and synthesized existing literature about the burden(s) caregivers experience and the effects upon them across four primary spheres of influence. Findings: Familial caregivers of stroke survivors suffer from high levels of “care burden” because they are the primary participant in the planning and provisioning of care to the patients. Care burden is examined across four primary spheres of influence: physical, psychological, social and economic impacts. The current review shows that familial caregivers experience substantive impacts across all four spheres. Originality/value: A professional multidisciplinary team should support caregivers of stroke survivors. To do this, support should be considered among the patient’s overall family system, as well as expanded to address and consider the specifically designated caregivers’ social circles which at a minimum often consists of co-workers, friends and inter-familial relationships. Ideally, caregiver support would also consist of medical and professional case workers that can address further, and in an integrative delivery approach, all four of the highlighted spheres of influence to establish a “best practices” orientation to familial caregivers. (Edited publisher abstract)
Review of analysis techniques in mental health research with consumer instruments – a guide for researchers
- Authors:
- BADU Eric, O’BRIEN Anthony Paul, MITCHELL Rebecca
- Journal article citation:
- Mental Health Review Journal, 27(1), 2022, pp.65-88.
- Publisher:
- Emerald
Purpose: This integrative review aimed to identify and synthesis literature on analysis techniques and methodological approaches used to analyse consumer measures in mental health research. Design/methodology/approach: The review included papers published up to January 2020 across seven databases: CINAHL, Web of Science, Medline, PsycINFO, EMBASE, Scopus and Google Scholar. Data search and extraction was conducted according to the recommended guidelines for conducting review by Cochrane and Joanna Briggs Institute. Mixed method synthesis was used to integrate both qualitative and quantitative data into a single synthesis. Findings: The initial search yielded a total of 2,282 papers. A total of 32 papers were included in the synthesis. Most of the included papers (25/32; 78.12%) focused on psychometric properties, whereas 14% (5/32) targeted analysis techniques, and 6.3% (2/32) addressed methodological justification. The measurement models (e.g. psychometric properties) were analysed through validity and reliability testing as part of instrument development and adaptation. The structural models were analysed using techniques such as structural equation modelling, multivariable regression models, intraclass correlation coefficient and partial least squares–structural equation modelling. Practical implications: Although consumer-reported instruments are analysed using techniques involving linear, hierarchical and longitudinal effects, no attempt has been given to procedures that applied complex data mining or machine learning. Consumer researchers, clinicians and quality management are encouraged to apply rigorous analysis techniques to critically evaluate consumer outcome measures. Originality/value: This review provides evidence on the analysis techniques in mental health research to inform the training of mental health professionals, students and quality assessment practitioners. (Edited publisher abstract)
Homelessness and integrated care: an application of integrated care knowledge to understanding services for wicked issues
- Authors:
- CLARK Michael, et al
- Journal article citation:
- Journal of Integrated Care, 30(1), 2022, pp.3-19.
- Publisher:
- Emerald
Purpose: People experiencing homelessness often have complex needs requiring a range of support. These may include health problems (physical illness, mental health and/or substance misuse) as well as social, financial and housing needs. Addressing these issues requires a high degree of coordination amongst services. It is, thus, an example of a wicked policy issue. The purpose of this paper is to examine the challenge of integrating care in this context using evidence from an evaluation of English hospital discharge services for people experiencing homelessness. Design/methodology/approach: The paper undertakes secondary analysis of qualitative data from a mixed methods evaluation of hospital discharge schemes and uses an established framework for understanding integrated care, the Rainbow Model of Integrated Care (RMIC), to help examine the complexities of integration in this area. Findings: Supporting people experiencing homelessness to have a good discharge from hospital was confirmed as a wicked policy issue. The RMIC provided a strong framework for exploring the concept of integration, demonstrating how intertwined the elements of the framework are and, hence, that solutions need to be holistically organised across the RMIC. Limitations to integration were also highlighted, such as shortages of suitable accommodation and the impacts of policies in aligned areas of the welfare state. Research limitations/implications: The data for this secondary analysis were not specifically focussed on integration which meant the themes in the RMIC could not be explored directly nor in as much depth. However, important issues raised in the data directly related to integration of support, and the RMIC emerged as a helpful organising framework for understanding integration in this wicked policy context. Practical implications: Integration is happening in services directly concerned with the discharge from hospital of people experiencing homelessness. Key challenges to this integration are reported in terms of the RMIC, which would be a helpful framework for planning better integrated care for this area of practice. Social implications: Addressing homelessness not only requires careful planning of integration of services at specific pathway points, such as hospital discharge, but also integration across wider systems. A complex set of challenges are discussed to help with planning the better integration desired, and the RMIC was seen as a helpful framework for thinking about key issues and their interactions. Originality/value: This paper examines an application of integrated care knowledge to a key complex, or wicked policy issue. (Edited publisher abstract)
A rapid evidence assessment of psychological treatment approaches for stalking behaviour
- Authors:
- LEIGH Shonagh, DAVIES Jason
- Journal article citation:
- Journal of Forensic Practice, 24(1), 2022, pp.48-62.
- Publisher:
- Emerald
Purpose: This paper aims to provide practitioners with a brief but comprehensive review of the current evidence base for psychological treatment approaches used in the UK that may be useful for stalking therapies. Design/methodology/approach: A rapid evidence assessment was conducted on papers (post the UK Protection from Harassment Act, 1997) that discuss treatments of stalking (with or without a conviction) and associated offences/disorders. Therapies reviewed were Acceptance and Commitment Therapy, Cognitive Analytic Therapy, Cognitive Behavioural Therapy, Dialectical Behaviour Therapy and Schema Therapy. Searches for Mentalization-Based Therapy and Psychodynamic Therapy in relation to stalking were also performed but yielded no results that met inclusion criteria. Findings: There is currently a severely limited evidence base for the efficacy of the psychological treatment of stalking behaviours. Some interventions show promise although a multifaceted, formulation-based approach is likely to be required. Practical implications: Future research would benefit from robust studies focused on stalking with long-term efficacy follow-ups. Originality/value: to the best of the authors’ knowledge, this is the first rapid evidence review of psychological treatments that directly address stalking behaviour. (Edited publisher abstract)
Inequalities in women’s medium or low secure mental health settings: a scoping review
- Authors:
- TRUMM A., BRENISIN Kristina, BREEN Kieran
- Journal article citation:
- Journal of Forensic Practice, 23(3), 2021, pp.254-271.
- Publisher:
- Emerald
Purpose: The more disadvantaged members of society generally experience poorer outcomes following the development of mental ill-health. The purpose of this paper is to scope the literature and synthesise findings on the inequalities and mental health within secure mental health settings. Design/methodology/approach: Six electronic databases were searched to identify relevant studies. These were included if they examined the association between inequalities and mental health in women’s secure mental health settings. Findings: Of the 608 studies reviewed, 14 met the inclusion criteria. In these papers, violence and/or abuse were described as the most prevalent inequalities. The second most frequent group of inequalities identified were socio-economic. Only three published studies researched the impact of ethnicities. Physical health, alcohol abuse and a dysfunctional family upbringing were only mentioned in one of the studies. Gender identity, transitioning and sexual orientation was not considered in any papers. These are areas, which require further investigation to determine their specific impact in this setting. Research limitations/implications: This review highlights the dearth of high-quality research-based evidence underpinning an understanding of the impact of inequalities on women in secure mental health settings. The existing studies suggest that inequalities have a very particular impact and that intersectionality plays a key role. Further research is required to further understand how inequalities impact the lives of women in secure mental health settings. Practical implications: The inequalities that women experience in relation to mental health need to be further researched in the context of intersectionality. There are also research gaps in terms of gender identity, sexual orientation and socio-economic background. Further primary research using a more complex methodological paradigm is required to explore these factors and their impact on mental health service provision. Social implications: The role of inequalities should be considered as part of an overall care package, including the experiences of adverse childhood experiences and this should contribute towards the development of a trauma-based care approach. Originality/value: To the best of the authors’ knowledge, this is the first study to scope literature about inequalities experienced in women’s secure psychiatric settings considering intersectionality. (Edited publisher abstract)