Search results for ‘Author:"zeilig hannah"’ Sort:
Results 1 - 10 of 12
Mark Making: methodologies and methods (innovative practice)
- Author:
- ZEILIG Hannah
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 15(5), 2016, pp.1295-1305.
- Publisher:
- Sage
Mark Making is a recently completed AHRC-funded review exploring the role of the participative arts for people with dementia in the UK. Key concerns underlying Mark Making were both how to privilege the views and feelings of people with a dementia and also how best to understand the value of the arts for people with a dementia. These issues were tackled using a variety of qualitative methods. Methods included a rigorous literature review, the development of a unique web-based map locating many participative arts projects and above all working with people with a dementia to ascertain their views. This brief article will concentrate on some of the innovative methods that the Mark Making team used, with particular reference to comics as a mode of engagement as used in the Descartes project. The article will provide an insight into some of the methodological challenges confronted by Mark Making as well as the inspirations and successes that were enjoyed. (Publisher abstract)
What do we mean when we talk about dementia? exploring cultural representations of "dementia
- Author:
- ZEILIG Hannah
- Journal article citation:
- Working with Older People, 19(1), 2015, pp.12-20.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to contribute to debates about the category "dementia". Dementia is discussed, as it is a social, political and cultural issue, rather than a solely medical phenomenon. Design/methodology/approach: The methodology synthesises perspectives from humanities with the social sciences. Thus a number of cultural texts are analysed critically and set alongside data from two original research projects exploring the use of the arts for people living with a dementia. Central to the research is a close and critical examination of news reports, films, plays and documentaries that represent "dementia". The extent to which metaphorical language frames ways of talking about dementia formed a key part of this analysis. Findings: Until recently, "dementia" has been primarily defined in biomedical terms. This paper demonstrates that understandings of dementia should be extended to encompass social and cultural contexts. Research limitations/implications: The research concentrates on the UK context, but there are lessons that can be extrapolated from to other contexts. Social implications: This paper explores why it is important to understand "dementia" in terms of cultural context, the reasons we should challenge the language often used to describe people living with a dementia, the ways in which prevailing representations of people living with a dementia can affect perceptions and contribute to stigma. Originality/value: This paper presents an alternative perspective, that is not biomedical and draws on original research from both the humanities and social sciences investigating the stories that we tell about this complex condition. (Publisher abstract)
Dementia as a cultural metaphor
- Author:
- ZEILIG Hannah
- Journal article citation:
- Gerontologist, 54(2), 2014, pp.258-267.
- Publisher:
- Oxford University Press
This article contributes to debates about the category “dementia,” which until recently has been dominated by biomedical models. The perspectives of critical gerontology are pertinent for extending knowledge about dementia and guiding this analysis. These perspectives encourage examination of cultural and historical influences and thus question how societies have constructed and defined dementia. This article queries the stories told about dementia and the language that we use to tell these stories. Central to the article is an analysis of some of the stories about dementia that are contained within and framed by contemporary culture. A number of films, TV documentaries, news reports, theatre, memoirs, novels, and poems that portray some of the experiences associated with dementia are interrogated. These representations are examined as they either perpetrate or challenge stereotypes about living with dementia. Analysis of these representations demonstrates the sociocultural construction of dementia and the extent to which dementia is a diachronic phenomenon. Above all, the article considers (a) the social and political dimensions of dementia, (b) the ways in which the metaphors persistently used to explain dementia shape our consciousness about this condition, and (c) the extent to which dementia is an inherent part of contemporary life. (Publisher abstract)
Gaps and spaces: representations of dementia in contemporary British poetry
- Author:
- ZEILIG Hannah
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 13(2), 2014, pp.160-175.
- Publisher:
- Sage
This article considers the work of a number of contemporary British poets who have attempted to articulate some of the experiences that dementia entails. The unique potential of poetry as a means of portraying the dislocations and reinventions of self that dementia involves has been mostly overlooked. The insights offered by critical gerontology are central to this article. This perspective calls for critical thought about the ways in which dementia has been socially constructed. The challenges posed by poets such as Vuyelwa Carlin, Valerie Laws and Jo Shapcott in particular, are examined. The complex poetic representations offered by these poets acknowledge the pathological declines of dementia and simultaneously celebrate the individuality and life of their subjects. Considering dementia with reference to the work of contemporary poets and critical gerontology is one way in which we can deepen our understanding of what this illness involves and humanise those who suffer from it. (Publisher abstract)
Foregrounding the perspectives of mental health services users during the COVID-19 pandemic
- Authors:
- ZEILIG Hannah, et al
- Journal article citation:
- Mental Health and Social Inclusion, 24(3), 2020, pp.131-133.
- Publisher:
- Emerald
Purpose: This paper aims to highlight the critical importance of the perspectives of mental health service-users during the COVID-19 pandemic. Design/methodology/approach: This viewpoint is based on a review of recent research and literature and draws on consultations with experts by experience, including the lead author. Findings: The authors argue that expertise-by-experience is critical to policy, service development and research; but there is a risk it will be neglected at a time of rapid and reactive clinical development. Research limitations/implications: Understanding and responding to the nuances of individual need can only be achieved through coproducing service strategy design, delivery and research with mental health service users. The consultation outlined in this viewpoint gives some indication of the type of valuable insights that can be gained through seeking and listening to the perspectives of experts by experience. Originality/value: The discussions revealed that experience of managing severe and complex mental health conditions can actually be advantageous when facing a crisis such as COVID-19. (Edited publisher abstract)
The arts in dementia care education: a developmental study
- Authors:
- ZEILIG Hannah, et al
- Journal article citation:
- Journal of Public Mental Health, 14(1), 2015, pp.18-23.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to outline the first stage of an innovative developmental study addressing the educational and emotional needs of dementia care home staff using arts-based materials. Design/methodology/approach: The arts workshop was developed using a mixed methods approach. This included ethnographic observation within a dementia care home, in-depth interviews with senior care home managers, a thematic analysis of focus groups and the development of a comic. At all stages, the multi-disciplinary project team collaborated closely with the care home staff. A comprehensive literature review of the policy, practice and academic background to dementia workforce education provided a contextual framework for the study. Perspectives from the medical humanities informed the project. Findings: Despite the high prevalence of people living with dementia in care homes, there is a lack of appropriate training for the workforce that provides their care. This study found that an arts-based workshop offering an interactive mode of education was an effective way to engage this workforce. The workshop empowered participants to recognise their skills and focus on person-centred care; reflecting current recommendations for dementia care. Research limitations/implications: The workshop was delivered in a single dementia care home and therefore findings may not be generalisable. In addition, the management did not take a direct part in the delivery of the workshop and therefore their views are not included in this study. Practical implications: The arts-based approach can offer a means of engaging the dementia care workforce in education linked to their experience of caring. Originality/value: The paper identifies the gap in relevant education for the dementia care workforce and outlines one possible way of addressing this gap using the arts (Publisher abstract)
Grandparents: coming of age?
- Authors:
- ZEILIG Hannah, et al
- Journal article citation:
- Generations Review, 10(3), September 2000, pp.4-7.
- Publisher:
- British Society of Gerontology
The role of grandparents in Britain has recently been attracting unprecedented attention in both social policy and media arenas. For a multiplicity of reasons linked with demographic, social policy and economic factors, it seems likely that more grandparents will play increasingly pivotal roles both within the private sphere of the family, and within wider society at large in many western industrial nations. Presents an overview of research from a variety of disciplines have been prompted to investigate the complexity of issues surrounding 'grand parenting'.
Health Action Zones: improving the health of older people?
- Authors:
- BAULD Linda, ZEILIG Hannah
- Journal article citation:
- Generations Review, 9(3), September 1999, pp.18-19.
- Publisher:
- British Society of Gerontology
Examines to what extent Health Action Zones have chosen to focus on the health of older people. Looks at the diversity of Health Action Zones; outlines to what extent the programmes and activities focus on older people; provides two examples specifically aimed an improving the health of older people.
Rights in mind: thinking differently about dementia and disability
- Authors:
- SHAKESPEARE Tom, ZEILIG Hannah, MITTLER Peter
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 18(3), 2019, p.1075–1088.
- Publisher:
- Sage
The aim of this paper is to argue for the utility of a relational model of disability, as a way of conceptualising dementia. This study explores whether dementia should be considered as a disability, and whether people with dementia might consider themselves as disabled people. Examples of, and issues raised by, the political activism of people with dementia, are reviewed. The study also considers how language constructs dementia negatively. The paper also discusses how the environment influences the experience of dementia. In conclusion, this study shows that a relational model of dementia lays the basis for a human rights approach to the condition, based on collaborative partnerships between people with dementia and people from other disability communities.
The participative arts for people living with a dementia: a critical review
- Authors:
- ZEILIG Hannah, KILLICK John, FOX Chris
- Publisher:
- University of the Arts London
- Publication year:
- 2014
- Pagination:
- 36
- Place of publication:
- London
In the last decade interest has increased in the role of the participative arts for people who are living with a dementia. The growth of this area can be partly understood due to an awareness of the potential for art to deliver health-care outcomes. In addition, there is widespread agreement that non-pharmacological interventions are important for people living with a dementia. Therefore, participative arts activities have attracted attention as representing beneficial interventions. This review of the academic and grey literature contextualises the participatory arts for people living with a dementia and provides an overview of some of the art forms that are most widely used. It also looks at the benefits the participatory arts can have for people living with dementia, such as improving communication and cognitive function, increasing confidence, self esteem and social participation. The review also highlights some of the current gaps in the knowledge base. The focus is on the UK context but the role of the participative arts for those with a dementia is equally relevant to practitioners in Europe and US and therefore some attention was also given to international literature. (Edited publisher abstract)