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Health and homelessness - a whole-systems perspective
- Author:
- READ Sue
- Journal article citation:
- Housing Care and Support, 11(1), July 2008, pp.7-10.
- Publisher:
- Emerald
People who are homeless often have multiple, complex health needs. Health services need to be adapted to ensure that they receive appropriate care in a cost-effective way, and that this is done in partnership with other agencies so that their needs are met in a holistic and productive manner. The author explains how the undertaking of joint strategic needs assessments offers an opportunity to influence commissioners to ensure that the needs of people who are homeless are included in future care and support developments.
How counselling services can help deal with loss and change
- Author:
- READ Sue
- Journal article citation:
- Nursing Times, 18.9.96, 1996, pp.40-41.
- Publisher:
- Nursing Times
Transferring people with learning disabilities from hospitals to community-based homes is generally a positive experience. Some people undergo feelings of loss during the process and need special support. Explores the issues and describes how a new counselling service helped one woman come to terms with her new lifestyle outside hospital.
Using action research to design bereavement software: engaging people with intellectual disabilities for effective development
- Authors:
- READ Sue, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 26(3), 2013, pp.195-206.
- Publisher:
- Wiley
This research aims is to produce a qualitative, flexible, interactive, computerised tool to support the facilitation of emotional expressions around loss for people with intellectual disabilities. This paper explores the process of using Participatory Action Research (PAR) to provide the indicative framework to develop this software tool. People with intellectual disability worked alongside researchers to produce an accessible, flexible piece of software that can facilitate storytelling around loss and bereavement and promote spontaneous expression that can be shared with others. The tool has the capacity to enable individuals to capture experiences in a storyboard format; that can be stored; is easily retrievable; can be printed out; and could feasibly be personalised by the insertion of photographs. (Edited publisher abstract)
Living and dying with dignity: the best practice guide to end-of-life care for people with a learning disability
- Authors:
- READ Sue, MORRIS Heather
- Publisher:
- Mencap
- Publication year:
- 2007
- Pagination:
- 78p.
- Place of publication:
- London
This guide is the outcome of a two-year project in North Staffordshire (funded by the Big Lottery) in which Mencap and Keele University worked collaboratively to support individuals with a learning disability, their family and carers through their journey to the end of their life. The contents were decided on through the outcomes of focus groups and dialogue with parents, carers and health and social care professionals. Chapters include: the challenges of accessing end-of-life care for someone with a learning disability; recognising when someone is ill; holistic end-of-life care; promoting autonomy and choice; preparing for death and challenges to bereavement support. Case illustrations are used throughout. A check list which can be used to evaluate end-of-life care service provision is included. The publication also contains a listing of useful supporting resources.
Exploring a continuum of support for bereaved people with intellectual disabilities
- Authors:
- READ Sue, ELLIOT David
- Journal article citation:
- Journal of Intellectual Disabilities, 11(2), June 2007, pp.167-181.
- Publisher:
- Sage
- Place of publication:
- London
People strive to make meaning out of the death of their loved ones. People with intellectual disabilities, however, may not be actively involved in death and may therefore experience disenfranchised grief. Bereavement support for this population remains at best inconsistent across the UK. The aim of this article is to further explore a bereavement support model recently developed. A case study is utilized to demonstrate the practicalities inherent in the integrated approach offered. A bereavement support framework can provide a holistic perspective for people with intellectual disabilities when integrated with a systems approach to care delivery. The resultant strategy incorporates practical ideas that address the bereavement needs of people with intellectual disabilities, encapsulating all aspects of current and future care delivery. Finally, core recommendations are offered for consideration.
Death and learning disability: a vulnerability
- Authors:
- READ Sue, ELLIOTT David
- Journal article citation:
- Journal of Adult Protection, 5(1), February 2003, pp.5-14.
- Publisher:
- Emerald
Explores issues associated with death and dying from the perspective of people with learning disabilities, and considers proactive ways of working in this area.
Using workshop on loss for adults with learning disabilities
- Authors:
- READ Sue, et al
- Journal article citation:
- Groupwork, 12(2), 2000, pp.6-26.
- Publisher:
- Whiting and Birch
Looks at the use of workshops for adults with learning disabilities who have experienced personal losses. Compared to mainstream bereavement groups the workshop was shorter and more structured. The workshop sessions were pre-planned by three facilitators and took place in a Social Service Day Service Centre in North Staffordshire. A range of creative activities such as brainstorming and collage were used to explore loss experiences. Each session was co-evaluated by the members as well as the facilitators and emerging themes are offered for consideration. Discusses the advantage of using such a workshop format.
Bereavement counselling and support for people with a learning disability: identifying issues and exploring possibilities
- Authors:
- READ Sue, et al
- Journal article citation:
- British Journal of Learning Disabilities, 27(3), 1999, pp.99-104.
- Publisher:
- Wiley
Counselling and support for bereaved people who have a learning disability has historically been a neglected area, for many reasons. This article looks at the work of SHOULDER and explains the challenges of working with people with learning difficulties from a bereavement counselling perspective. Case illustrations are offered in an effort to help the reader to engage with the nature of the work undertaken, and the challenges involved.
Bereavement support for people with learning disabilities
- Authors:
- CLARKE Lynn, READ Sue
- Journal article citation:
- Nursing Times, 15.7.98, 1998, pp.51-53.
- Publisher:
- Nursing Times
The authors describe how they helped a young man with a learning disability come to terms with his father's death.
Using workshops on loss for adults with learning disabilities: a second study
- Authors:
- READ Sue, PAPAKOSTA-HARVEY Vicky
- Journal article citation:
- Journal of Learning Disabilities, 8(2), June 2004, pp.191-208.
- Publisher:
- Sage
This article is the second in a series that catalogues the experiences of both facilitators and participants involved in a group work opportunity to explore loss and change for 10 adults with learning disabilities. Building upon previous research, the article discusses general issues surrounding loss and change and introduces group work as a vehicle that promotes learning. The rationale inherent in developing and establishing the group is explained, and the methods and procedures used within a qualitative framework to evaluate the group work are introduced. Key emerging themes include issues surrounding the importance of group facilitation (such as boundaries and endings); the diverse loss responses experienced by participants; the powerful stories of loss evoked and associated coping strategies; and how group work can be a powerful medium for learning.