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Journal article

Young carers: challenging the facts and politics of research into children and caring

Author:
OLSEN Richard
Journal article citation:
Disability and Society, 11(1), March 1996, pp.41-54.
Publisher:
Taylor and Francis,

Argues that our knowledge of what young carers do and how they differ from other children, is extremely limited. Without this information, practice recommendations will be base on guesswork and prejudice. Argues that the existing literature pays lip service to the support, or lack of it, that disabled people need to empower them as parents. Also reviews research into the relationship between disability and parenting. Research has tended to involve the search for the negative impact of an adult's disability on a child's growth, intelligence and adjustment. This has therefore told us little about how parental disability affects the domestic and caring tasks of children. Sees that there is a conceptual hole in the middle of our existing awareness about caring and childhood, with which future research must attempt to grapple.

Book Full text available online for free

Adolescents with diabetes: their concerns about services

Authors:
OLSEN Richard, SUTTON Jane
Publisher:
University of Leicester. Nuffield Community Care Studies Unit
Publication year:
1996
Pagination:
43p.
Place of publication:
Leicester

The aim of this project was to analyse the experiences that young people (14-19) with insulin-dependent diabetes mellitus have had in accessing a wide variety of health services. A random sample of 114 young people, stratified by age bands (14-16, 17-19), was drawn from the Diabetes Register, held in the Department of Epidemiology and Public Health at the University of Leicester. Focus groups and interviews were used to explore attitudes and preferences towards different health services and providers, within the context of past and current service use and experiences. Central issues included the trend towards greater involvement of GPs and primary care teams in diabetes management, the transition from childhood to adulthood, and the implications this had for, amongst other things, service use and the renegotiation of family control over factors important in diabetes care. The results were intended to inform the purchasing of diabetes services at a vitally important time in the re-orientation of these services, and in the wake of the implementation of purchaser-provider separation, and incentives for chronic disease management in general practice.

Book

Think parent: supporting disabled adults as parents

Authors:
OLSEN Richard, TYERS Helen
Publisher:
National Family and Parenting Institute
Publication year:
2004
Pagination:
95p.
Place of publication:
London

The key messages of the report include: supportive practice with disabled parents will often involve working closely with professionals in other agencies; disabled parents want support that is timely, appropriate, and flexible and which fits in with, rather than undermines, family life; disabled parents are a diverse group, not only in terms of their impairments and family situation, but in terms of the way they see professionals as helping them. A one-size-fits-all approach to supporting disabled parents will not address this diversity. Good practice may involve large and complex packages of support, but may also include low-cost imaginative solutions to particular problems. Support should be needs-led; disabled parents' perceptions of any difficulties, and their preferred way of solving them, should be at the centre of the relationship between professionals and parents. Support should be flexible enough to respond quickly to the predictable and unpredictable changes in family circumstances as children grow up. The report includes sections on: ·the legislative and policy context; what disabled parents have to say about good practice; what research from a social model of disability perspective has to say about good practice with disabled parents; and strategic issues in the development of policies regarding supporting disabled parents. It also has a section on examples of improving practice, which covers a wide spectrum of social work tasks including referral, assessment service provision and review. It ends with information about a number of other organisations that may be able to provide information, advice and support to disabled parents.

Book Full text available online for free

Disabled parents: examining research assumptions

Authors:
OLSEN Richard, WATES Michele
Publisher:
Research in Practice
Publication year:
2003
Pagination:
70p.,bibliog
Place of publication:
Dartington

This review identifies and reviews the existing research on disabled parents and 'young carers' outlining three perspectives: personal, ecological, and organisational. It addresses new directions that could be taken in terms of good and supportive practice. It places this within the legislative, policy and practice context. review. Although it is crucial to the welfare of children that all parents are well supported, much evidence has emerged over the past decade pointing to the fact that it is very hard for parents with chronic illnesses, physical and/or sensory impairments, Deaf parents, those with learning difficulties, those with particular mental health needs and those with drug or alcohol related issues, to access information, resources and support to help them fulfil their parenting responsibilities. This has had serious implications for the welfare of large numbers of families. These groups of parents are collectively described in this review as disabled parents.

Book

Parenting and disability: disabled parents' experiences of raising children

Authors:
OLSEN Richard, CLARKE Harriet
Publisher:
Policy Press
Publication year:
2003
Pagination:
190p.,bibliog.
Place of publication:
Bristol

This book reports on the first substantial UK study of parenting, disability and mental health, which examines the views of parents and children in 75 families. Covering a range of issues facing disabled parents and their families, the book: provides a comprehensive review of relevant policy issues; explores the barriers to full participation in parenting that disabled parents face; examines the complex ways in which broader social divisions, including gender and socioeconomic status, interact with disability; and advocates measures to support disabled parents and their families by promoting and supporting relationships within the family.

Book

A sideways glance at young carers

Authors:
PARKER Gillian, OLSEN Richard
Publisher:
University of Leicester. Nuffield Community Care Studies Unit
Publication year:
1995
Pagination:
13p.,bibliog.
Place of publication:
Leicester

Paper questioning the balance of recent interest in the topic of young cares.

Journal article

Carers and the missing link: changing professional attitudes

Authors:
OLSEN Richard, PARKER Gillian, DREWETT Alison
Journal article citation:
Health and Social Care in the Community, 5(2), March 1997, pp.116-123.
Publisher:
Wiley-Blackwell

Based on a project mapping the development of services for carers, this article argues that the involvement of carers in planning processes at strategic levels will not guarantee changes in practice at lower levels. Discusses weaknesses in the existing literature regarding user and carer involvement, and suggests ways in which opportunities for 'micro-level' consultation can be developed.

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