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The policy environment of dementia care: the role of a regional dementia strategy
- Author:
- MCCABE Louise
- Journal article citation:
- Journal of Care Services Management, 5(3), July 2011, pp.128-136.
- Publisher:
- Taylor and Francis
The policy environment of dementia care is influential on how care and treatment are delivered to people with dementia. It is this policy environment that is the central concern of this article. There is currently a drive in many European countries to develop dementia strategies at the national level. This is in response to a growing awareness of the needs of people with dementia and to the significant predicted increases in prevalence in coming years. This article briefly explores current national strategies before moving on to look in detail at a regional dementia strategy developed in Fife, Scotland. The strategy has 19 aims and 41 recommendations and actions that should lead to 9 intended outcomes at the end of the 10 year plan. The article examines the processes of strategy development and implementation, reflecting on the influence of the strategy on dementia care and treatment and the impact of the strategy. It concludes that local and regional strategies for dementia care will influence outcomes for people with dementia but this may not be as a direct result of strategy implementation but rather the impact of the strategy on the awareness and motivations of professionals and practitioners providing care and support to people with dementia and their carers.
Working with people with alcohol-related brain damage
- Author:
- MCCABE Louise
- Publisher:
- University of Stirling. Dementia Services Development Centre
- Publication year:
- 2006
- Pagination:
- 35p., bibliog.
- Place of publication:
- Stirling
This report details a research project funded by the Alcohol Education and Research Council. This project looked in more detail at staff currently working with people with alcohol-related brain damage (ARBD) with two aims. First, to explore the knowledge and attitudes of staff working with people with ARBD exploring how their knowledge had developed, and second, to draw on their knowledge and experience to learn about caring for people with ARBD in care homes. The project also investigates the management of alcohol within care homes. The management of alcohol is influenced both by formal policy and by the knowledge and views of care staff. This project explores these two aspects influencing alcohol management in care services, with the aim of providing useful information for care staff, their managers, the families and carers of people with ARBD. The first part of this report reviews current literature on ARBD exploring both the medical and social aspects of the condition. The report goes on to describe the methods used within this research and provides descriptions of the four field sites. The findings from the project are discussed in detail in the light of current research literature. In conclusion, recommendations for further research are proposed.
Alcohol in care homes: what rules to play by?
- Author:
- MCCABE Louise
- Journal article citation:
- Journal of Dementia Care, 15(1), January 2007, pp.34-36.
- Publisher:
- Hawker
The author reports on a study of four care homes in Scotland, and the management of alcohol within those homes. Care home residents included older people, people with dementia and people with alcohol related brain damage. The study revealed a variety of ways of managing alcohol consumption. It is argued that more training is needed if care homes are to respond consistently to this complex issue.
Alcohol, ageing and dementia: a Scottish perspective
- Author:
- McCabe Louise F.
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 10(2), May 2011, pp.149-163.
- Publisher:
- Sage
There is a complex relationships between alcohol misuse, ageing and cognitive impairment. This article uses Scotland as a case study to examine these relationships and their implications for people who drink as they age. In recent years several policy documents have been published in Scotland that acknowledge the increasing prevalence of alcohol problems among people as they age. The article is based on a review of the literature, analysis of recent Scottish policy documents and two previous research projects carried out by the author. The links between alcohol use and dementia are discussed, focusing on biological and social implications for individuals as they age. Current responses in Scotland to these different issues are examined from individual, cultural and policy perspectives. The article concludes that the needs of older individuals who experience alcohol-related morbidity are not adequately addressed in Scotland.
The cultural and political context of the lives of people with dementia in Kerala, India
- Author:
- McCabe Louise F.
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 5(1), February 2006, pp.117-136.
- Publisher:
- Sage
This article draws on available literature and empirical data to discuss the experiences of people with dementia in Kerala, India. India is currently undergoing considerable demographic change. The state of Kerala in the south-west of the country is demographically advanced in comparison with other parts of India and as such is experiencing demographic change and modernization ahead of other parts of the country. The proportion and numbers of older people in Kerala are increasing, which in turn is leading to a higher prevalence of dementia. This article reviews existing literature to describe the context for people with dementia in Kerala. It also draws on empirical data to further illustrate and explore their experiences. People with dementia in Kerala are disadvantaged, as the process of modernization is breaking down traditional forms of care ahead of any significant service provision to replace them. Recent development of services in Kerala aims to provide quality care for people with dementia to counteract these demographic changes.
Supporting user participation in local policy development: the Fife Dementia Strategy
- Authors:
- MCCABE Louise, BRADLEY Brittany Ellis
- Journal article citation:
- Social Policy and Society, 11(2), April 2012, pp.157-169.
- Publisher:
- Cambridge University Press
The Fife Dementia Strategy was driven by services managers with health and social work looking to improve dementia care across Fife and to plan for future increases in numbers of people with dementia. This article reviews the consultation process during the development of this local dementia strategy. The processes of involvement by the range of stakeholders involved and how their different views shaped the strategy are considered. A range of techniques were adopted to encourage participation in the consultation strategy for the dementia strategy. A consultation document was prepared and made available in different forms and people were asked to respond. Posters were placed in public places such as GP surgeries and post offices. It was felt to be particularly important to involve people with dementia, so a series of group interviews were held with people with dementia, other service users, and carers. The formal consultation took place over a 6 week period. In total 97 written and verbal responses were received from a broad range of stakeholders, including GPs, carers, social workers, nurses, people with dementia, and other people using the same services. The article demonstrates the value of including a wide range of stakeholders in the development of local policy and the importance of involving people with dementia in policy development.
Evaluating the Harmony project
- Authors:
- MCCABE Louise, GREASLEY-ADAMS Corinne
- Journal article citation:
- Journal of Dementia Care, 20(3), May 2012, pp.38-39.
- Publisher:
- Hawker
The charity Harmony provides musical concerts for older, frail people who live in care homes and attend day centres. This article reports on the key findings on an evaluation of Harmony. The evaluation drew on the perspectives of care service managers and explored what impact, if any, the project had on the lives of frail and older people, the impact on professionals and frontline carers, and the impact on family and friends. An online survey was developed and sent to services that interact with the Harmony project. Fifteen people completed the survey, and 5 people also took part in a follow-up interview. All participants had been involved with the Harmony project for at least 2 years. The evaluation showed that the project is having a positive impact for all those engaging in the concerts. The concerns provide opportunities for fun and enjoyment for service users and have a positive emotional, social and cognitive impact. They also have a positive impact on the frontline care staff as well as friends and family of service users. The benefits are not just during and immediately after the concerts but were also noted to have a longer lasting impact.
RemoDem: delivering support for people with dementia in remote areas
- Authors:
- BOWES Alison, DAWSON Alison, MCCABE Louise
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 17(3), 2018, pp.297-314.
- Publisher:
- Sage
RemoDem aimed to develop, test and evaluate services for people with dementia in remote areas of the Faroe Islands, Greenland, Sweden and Scotland. Formative and summative evaluation used a flexible research design including collection of baseline data, interviews and focus groups with key informants and data relating to service users, i.e. people with dementia and their carers. Challenges for service providers included organisational difficulties, lack of clear information about their populations with dementia and lack of knowledge in local communities. Test sites which developed services building on their particular local starting points adopted both specialist and ‘off the shelf’ technologies and found that these were generally helpful for people with significant support needs. The flexible research design was found to be essential in the real world conditions of the service development and evaluation. Services were more successful where more mature and less experimental technologies were used. The new services promised to address effectively challenges of remoteness including distance, communication and workforce deployment issues. (Publisher abstract)
Scaffolding and working together: a qualitative exploration of strategies for everyday life with dementia
- Authors:
- MCCABE Louise, ROBERTSON Jane, KELLY Fiona
- Journal article citation:
- Age and Ageing, 47(2), 2018, pp.303-310.
- Publisher:
- Oxford University Press
Background: Living with dementia has been described as a process of continual change and adjustment, with people with dementia and their families adopting informal strategies to help manage everyday life. As dementia progresses, families increasingly rely on help from the wider community and formal support. Methods: This article reports on a secondary analysis of qualitative data from focus groups and individual interviews with people with dementia and their carers in the North of England. In total, 65 people with dementia and 82 carers took part in the research: 26 in interviews and 121 in focus groups. Focus group and interview audio recordings were transcribed verbatim. A qualitative, inductive, thematic approach was taken for data analysis. Findings: The article applies the metaphor of scaffolding to deepen understanding of the strategies used by families. Processes of scaffolding were evident across the data where families, communities, professionals and services worked together to support everyday life for people with dementia. Within this broad theme of scaffolding were three sub-themes characterising the experiences of families living with dementia: doing things together; evolving strategies; and fragility and fear of the future. Conclusions: Families with dementia are resourceful but do need increasing support (scaffolding) to continue to live as well as possible as dementia progresses. More integrated, proactive work is required from services that recognises existing scaffolds and provides appropriate support before informal strategies become unsustainable; thus enabling people with dementia to live well for longer. (Publisher abstract)
‘What I want to do is get half a dozen of them and go and see Simon Cowell’: Reflecting on participation and outcomes for people with dementia taking part in a creative musical project
- Authors:
- MCCABE Louise, GREASLEY-ADAMS Corinne, GOODSON Katy
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 14(6), 2015, pp.734-750.
- Publisher:
- Sage
This paper presents the findings from an evaluation of a creative musical project led by Scottish Opera. The project included people with dementia and their carers in the development, writing, design and performance of a musical production about their experiences of love. The project involved professional singers, artists and choreographers from the opera company. Activities involved practice sessions and performances. People with dementia and their carers reflected on positive outcomes from the project including improved confidence; being part of a group; improved physical strength and people seeing them in a new way. Within the evaluation framework they also reported on how the project had been run and gave ideas for future development. Key elements in the success of this project were the involvement of professionals, the kudos of working with a national organisation and the performances that, while daunting, provided unique and rewarding experiences. (Publisher abstract)