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‘It terrifies me, the thought of the future’: listening to the current concerns of informal carers of people with a learning disability
- Authors:
- MANSELL Ian, WILSON Christine
- Journal article citation:
- Journal of Intellectual Disabilities, 14(1), March 2010, pp.21-31.
- Publisher:
- Sage
- Place of publication:
- London
Carers of someone with a learning disability have additional responsibilities as the person they care for is often dependent on them for their overall health and well-being. The findings from a study that asked carers for their views on a wide range of topics are reported. A mixed method design yielded both quantitative and qualitative data. A total of 647 members of a parent/carer federation were sent a questionnaire with a section on ‘current concerns’. The response rate was 23 percent (151 participants). Two focus groups were held with 15 carers who had completed the questionnaire. Findings revealed such issues of concern to carers that included: access to health and social care information and services; quality and quantity of respite care; suitable educational provision; independence and quality of life (for a person with learning disability); and what would happen to the person with learning disability when the carer was no longer able to carry out their caring role.
Social policy and people with intellectual disabilities in Poland: enhancing quality of life?
- Authors:
- OTREBSKI Wojciech, NORTHWAY Ruth, MANSELL Ian
- Journal article citation:
- Journal of Learning Disabilities, 7(4), December 2003, pp.363-374.
- Publisher:
- Sage
The past decade has been a time of great political, social and economic change within Poland. Such changes have affected the lives of all citizens including those with an intellectual disability. However, within the English language literature there is little published concerning the impact of changes in social policy on this group of people and the extent to which their quality of life has been enhanced. This article thus considers the difficult relationship between quality of life and social policy, provides an overview of key policy developments within Poland (both general and disability specific), and outlines some ways in which they have impacted on the lives of people with intellectual disabilities. It is suggested that further research is required before clear conclusions can be drawn. Areas for service development and research are thus proposed.