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Patient and public involvement in research in the English NHS: a documentary analysis of the complex interplay of evidence and policy
- Author:
- EVANS David
- Journal article citation:
- Evidence and Policy, 10(3), 2014, pp.361-377.
- Publisher:
- Policy Press
The last 20 years have seen significant international shifts towards greater patient and public involvement (PPI) in health research and development (R and D). In England, then first health R and D strategy in 1991 did not mention PPI. Twenty years later, PPI is deeply embedded within the National Institute for Health Research. This article examines the evolving relationship between evidence and policy on PPI in research through a documentary analysis of English health R and D policy documents published between 1991 and 2010. It then considers what model of the research-policy interface best explains the expansion of PPI in research and why this is important. (Publisher abstract)
'We do not use the word "crisis" lightly...': sexual health policy in the United Kingdom
- Author:
- EVANS David
- Journal article citation:
- Policy Studies, 27(3), September 2006, pp.235-252.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This article describes the ambiguous historical inheritance through which sexual health policy in the UK has been shaped, including the focus on sexually transmitted infections and teenage pregnancy, and the emergence of a sexual health policy community. Continuing tensions and silences in policy are identified. The article argues that UK sexual health policy follows a cyclical pattern of neglect interspersed with occasional ‘crises’ resulting in narrowly disease focused incremental change.
Evaluation of a workplace engagement project for people with younger onset dementia
- Authors:
- ROBERTSON Jacinta, EVANS David
- Journal article citation:
- Journal of Clinical Nursing, 24(15-16), 2015, pp.2331-2339.
- Publisher:
- John Wiley and Sons
Objectives: In 2011, a workplace project was established to provide a small group of people who had younger onset dementia with the opportunity to return to the workplace. The project sought to explore the feasibility and safety of engaging these younger people in workplace activities if an appropriate framework of support was provided. Design: A qualitative exploratory approach was used for the project evaluation. Method: Participants were people who were 65 years or younger and had a diagnosis of dementia. They attended a large metropolitan hardware store one day per week and worked beside a store employee for a four hour work shift. Evaluation of the project included observation of participant's engagement in the workplace, adverse events and a qualitative analysis that used participant-nominated good project outcomes. Results: Nine people with a mean age of 58·8 years participated in the project. Six of these participants have been engaged at the workplace for more than two years. All participants were able to gain the skills needed to complete their respective work duties. Participants initially assisted with simple work tasks, but over time, they were able to expand their range of duties to include more complex activities such as customer sales. Participants achieved their nominated good outcomes of improved well-being, engaging in worthwhile activities, contributing to society and socialisation. Conclusion: The evaluation has shown that this workplace programme is a viable model of engagement for younger people with dementia. (Edited publisher abstract)
Older women with intellectual disabilities: overcoming barriers to autonomy
- Authors:
- STRNADOVA Iva, EVANS David
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 12(1), 2015, pp.12-19.
- Publisher:
- Wiley
This study aimed to identify factors both limiting and contributing to a perception of autonomy held by older-aged women with intellectual disabilities. A total of 55 older women with intellectual disabilities resident in New South Wales (Australia) and Czech Republic (Europe) took part in the study. The women were recruited via support groups, employment agencies for persons with disabilities, day centres, sheltered workshops, self-advocacy groups, and nongovernmental organizations. The women were interviewed and the data from the interviews were analysed following a grounded theory approach. The study identified two factors with potential to limit autonomy of women with intellectual disabilities: (1) intra-individual factors (e.g., health issues); and (2) environmental factors (e.g., living arrangements, finances). Drawing on responses from the women, the authors propose factors that may have a potential to strengthen autonomy among these women. The implications of the findings were reviewed and it is suggested that families and service providers should be made aware of ways to support autonomy of older women with intellectual disabilities. (Edited publisher abstract)
Impact of dementia on marriage: a qualitative systematic review
- Authors:
- EVANS David, LEE Emmanuel
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 13(3), 2014, pp.330-349.
- Publisher:
- Sage
This qualitative review explored the impact of dementia on marriage. The method was informed by systematic review and qualitative research methodologies. A comprehensive search of major databases was undertaken. The search identified 115 studies on the topic; 23 met the inclusion criteria and 19 were appraised as being of good methodological quality. Two major themes and five sub-themes emerged from the analysis of included studies, transition and loss. The theme of transition encompassed the three sub-themes of relationship, roles and intimacy and reflected the changes in the marriage and marital relationship that accompanied dementia. The theme of loss encompassed the two sub-themes of loss of a partner and loss of a marriage, which reflected the many losses that accompanied dementia. However, transition and loss were inter-related, because each change was accompanied by loss and each loss produced another change in the marriage. (Publisher abstract)
Teenage pregnancy and sexual health
- Authors:
- HADLEY Alison, EVANS David T.
- Journal article citation:
- Nursing Times, 109(46), 2013, pp.22,25,26-27.
- Publisher:
- Nursing Times
Despite improvements in sexual health education and services fro young people, pregnancy rates and sexually transmitted infections in this group remain high. The article looks at the current rates of teenage pregnancy and sexually transmitted infections, the steps been taken to improve young people's sexual health, and the role nurses can play in reducing teenage pregancy. The article includes two short case studies. The case studies describe the inititative No Worries, a school and practice nurses integrated prevention network coordinated by the public health team in Wiltshire County Council; and the development of a post pregnancy contraception outreach nurse in the London Borough of Hackney. (Original abstract)
Subjective quality of life of women with intellectual disabilities: the role of perceived control over their own life in self-determined behaviour
- Authors:
- STRNADOVA Iva, EVANS David
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 25(1), January 2012, pp.71-79.
- Publisher:
- Wiley
Using participants recruited in Australia and the Czech Republic, this study examined the subjective perception of quality of life in adult women with intellectual disabilities, the level of self determination shown, and the barriers to self-determination. Women aged 40 years or older with intellectual disabilities were recruited through agencies for people with intellectual disabilities in Sydney (28 women) and Prague (27 women). Semi-structured interviews were carried out, transcribed and analysed using a grounded theory approach. The strongest theme identified in the interviews was the lack of control participants perceived they had over their lives. The article discusses the findings, with examples from the interviews, including causes of women experiencing reduced or lack of control over their own lives and strategies to gain control over their lives.
Public involvement in research: how can organisations collaborate to improve involvement?
- Authors:
- DAVIES Rosie, EVANS David
- Publisher:
- University of the West of England. Faculty of Health and Social Care
- Publication year:
- 2010
- Pagination:
- 75p.
- Place of publication:
- Bristol
There is an emerging evidence base for the benefits of public involvement in research. A recent literature review has demonstrated the benefits of such involvement to research quality and impact. For example, public involvement has been shown to improve research tools such a patient information sheets and questionnaires, to improve recruitment to trials and to ensure appropriate outcomes are assessed. This report presents findings from a scoping exercise to identify experiences and share learning on current systems and practice relating to public involvement in health and social care research. Interviews were conducted with researchers and service user research partners from 14 stakeholder organisations in the South West region of England. The authors identified the key issues and challenges for the organisations involved in terms of taking forward public involvement and also in terms of collaborative working. They propose five different options for future collaboration. In the course of the interviews, they also identified a range of ways of in which the public have been involved in research in the region. A number of case studies describe what difference this involvement made.
Sexual, reproductive and mental health: safer relationships and safer sex
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, EVANS David
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2011
- Place of publication:
- London
This e-learning resource is one of 8 modules developed to help mental health professionals deal with aspects of sexual and reproductive health in the context of mental illness. Sections cover sexual health and safety planning, identifying people at risk and one to one care.
Sexual, reproductive and mental health: sexual health matters: for mental health
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, EVANS David
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2011
- Place of publication:
- London
This e-learning resource is one of 8 modules developed to help mental health professionals deal with aspects of sexual and reproductive health in the context of mental illness. Sections cover sexual health and sexuality, sexual risk assessment, sexual violence, abuse and trauma and making a difference in your practice. A self assessment checklist covering the key points of each module is also included.