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Journal article

Intensive home care supports, informal care and private provision for people with dementia in Ireland

Author:
et al
Journal article citation:
Dementia: the International Journal of Social Research and Practice, 20(1), 2021, p.47–65.
Publisher:
Sage

Background: This study analysed the cost of intensive home care packages for people with dementia living on the boundary of home care and residential care facilities in Ireland. The cost of community-based services and supports, including informal care and private out-of-pocket expenditure, was compared to the cost of public and private residential care. Methods: The study recruited 42 people with dementia and/or their caregivers, who were living on the boundary of home care and residential care, to an in-depth study on the cost of care. The Resource Utilization in Dementia scale was used to collect data on the utilization of standard formal care and informal care by people with dementia in receipt of an intensive home care package. Information on private out-of-pocket expenditure on care was also collected. Unit costs were assigned and community-based care was compared with public and private residential care alternatives. Results: The average weekly cost of home care, including the intensive home care package, standard formal community care provision, medications, consumption and housing, was estimated at €1127. This is lower than the average weekly cost of public long-stay care facilities (€1526) and around the same as for private nursing home fees in the Dublin region (€1149). When the opportunity cost valuation of informal care is included, the cost of home care is higher than all types of residential care. Adding private care expenditure further inflates the cost of home care. Conclusion: Keeping highly dependent people with dementia living at home is not cheap and raises questions about optimal resource allocation on the boundary of home care and residential care. Even with significant public spending on intensive home care packages, family care costs remain high. So too does private out-of-pocket expenditure on care for some people with dementia. (Edited publisher abstract)

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An essay collection: valuing housing, improving lives

Author:
et al
Editor:
LOCALIS
Publisher:
Localis
Publication year:
2020
Pagination:
39
Place of publication:
London

This collection of essays sets out thoughts on how to embed the value and benefits of housing in the national finances and local government, as well as exploring the vital role of housing in building sustainable communities and supporting lives. The collection is divided into three parts: Part A – the role of housing in supporting the most vulnerable in society; Part B – the role of housing in promoting opportunity and prosperity for all; Part C – the role of planning in creating successful and sustainable communities. (Edited publisher abstract)

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An essay collection: building for renewal: kickstarting the C19 housing recovery

Author:
et al
Editor:
LOCALIS
Publisher:
Localis
Publication year:
2020
Pagination:
100
Place of publication:
London

This paper sets out twenty separate views from individual experts and a wide range of organisations as to how to use the primacy of place to direct a return to housing growth and, with it, renewal. Each separate essay should be read and understood in its own light as offering deep understanding and practical solutions to unlocking some of the many complex problems which the COVID-19 response currently poses to housing. The document is divided into four principal parts: Part A – the role of housing in promoting opportunity and prosperity for all; Part B – the role of investment in place in leading renewal; Part C – the role of housing in supporting the most vulnerable and engaging with society; Part D – the role of planning in creating successful and sustainable communities. (Edited publisher abstract)

Journal article

Effectiveness of brief intervention and case management for children and adolescents with mental health difficulties

Author:
et al
Journal article citation:
Children and Youth Services Review, 79, 2017, pp.362-367.
Publisher:
Elsevier

Objective: To compare the effectiveness of a Brief Intervention (BI) and Treatment As Usual (TAU) in a sample of children and adolescents seeking mental health treatment from a Child and Youth Mental Health Service (CYMHS). BI comprised up to six sessions of psychological therapy from trainee psychologists, and TAU involves case management incorporating assessment and psychological treatment (e.g., individual, parent, family therapy), plus linkage to other services. Method: A matched subjects design was used to evaluate the BI (n = 79) and TAU (n = 79) treatment conditions. Participants were matched according to age, gender, and baseline symptom scores on the Health of the Nations Outcome Scale for Children and Adolescents (HoNOSCA), which was completed at pre- and post-treatment. The HoNOSCA is a clinician-rated measure of symptoms experienced in the previous two weeks. Results: BI and TAU both significantly reduced mental health symptoms, with no significant difference between treatments overall, on Externalising or Emotional problems subscales, or on the percentage of most problematic items for participants. Conclusions: BI was as effective as TAU in reducing mental health symptoms in some children and adolescents. BI however is briefer, and could form part of a Stepped Care model for CYMHS. Further research is required to establish the most effective elements of BI in reducing mental health symptoms. (Publisher abstract)

Journal article Full text available online for free

Presence redefined: the reciprocal nature of engagement between elder-clowns and persons with dementia

Author:
et al
Journal article citation:
Dementia: the International Journal of Social Research and Practice, 16(1), 2017, pp.46-66.
Publisher:
Sage

Elder-clowns are a recent innovation in arts-based approaches to person-centred dementia care. They use improvisation, humour, and empathy, as well as song, dance, and music. The authors examined elder-clown practice and techniques through a 12-week programme with 23 long-term care residents with moderate to severe dementia in Ontario, Canada. Analysis was based on qualitative interviews and ethnographic observations of video-recorded clown-resident interactions and practice reflections. Findings highlight the reciprocal nature of clown-resident engagement and the capacity of residents to initiate as well as respond to verbal and embodied engagement. Termed relational presence, this was achieved and experienced through affective relationality, reciprocal playfulness, and coconstructed imagination. These results highlight the often overlooked capacity of individuals living with dementia to be deliberately funny, playful, and imaginative. Relational presence offers an important perspective with which to rethink care relationships between individuals living with dementia and long-term care staff. (Edited publisher abstract)

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The dynamics of ageing: evidence from the English Longitudinal Study of Ageing 2002-15: wave 7

Author:
et al
Editor:
BANKS James
Publisher:
Institute for Fiscal Studies
Publication year:
2016
Pagination:
295
Place of publication:
London

This report describes findings from the latest phase of data collection from the English Longitudinal Study of Ageing (ELSA), a multidisciplinary study of a large representative sample of men and women aged 50 and over living in England, conducted between June 2014 and May 2015. The longitudinal study began in 2002 and the sample is re-examined every two years. In wave 7, information was collected from 9,666 participants in ELSA, including 8,249 ‘core’ participants. The report is structured three chapters, covering: employment and labour market transitions at older ages in England; retirement, well-being, engagement and social status; socio-economic differences in healthy life expectancy and mortality. It also includes a detailed set of tables describing findings in the different domains included in ELSA, including demographics, income, pensions and wealth, social and cultural activity, cognitive function, physical and mental health, and biomarkers. (Edited publisher abstract)

Journal article

Media reactions to the Panorama programme “Behind Closed Doors: Social Care Exposed” and care staff reflections on publicity of poor practice in the care sector

Author:
et al
Journal article citation:
Journal of Adult Protection, 18(5), 2016, pp.266-276.
Publisher:
Emerald

Purpose: The purpose of this paper is to present an analysis of media reactions to the BBC Television Panorama programme, Behind Closed Doors’ and to set this in the context of interviews with care staff about their reflections on publicity about poor practice in the care sector. Design/methodology/approach: This paper reports on an analysis of media reactions to recent exposé of abuse in social care in England and data from an interview-based study of care workers. The interviews were analysed to consider the impact of such media reports on staff and to explore their views of action that might be need to be taken about care failings. Findings: There are mixed reactions to exposé of poor care on television and to the debates that precede and follow their broadcast. Debates occur in print and on television, but also in social media. The particular exposé of care home practices by the Panorama programme, Behind Closed Doors, led to debate in England about the potential role of covert cameras in care homes. The interviews revealed that while care staff are affected by scandals in the media about social care, they do not necessarily focus on themes that the media stories subsequently highlight. Overall some are disenchanted while others have ideas of what needs to change to improve practice. Care staff consider that there remain problems in raising concerns about practices and some staff feel unable to stay in workplaces where they have made complaints. Research limitations/implications: The care workers interviewed may not be representative of the sector and they may have wished to provide socially acceptable answers to the researchers. Practice was not observed. Practical implications: Local Safeguarding Adult Boards may wish to develop a communications strategy to deal with requests for reactions to media reports locally and nationally. Safeguarding practitioners may wish to prepare for increased referrals following media coverage of poor care in their areas. They may later be able to use media reports to discuss any local differences of interpretation over matters such as prosecutions for abuse. Trainers and educationalists may wish to clarify the importance given by care providers to raising concerns, the ways in which difficult conversations can be held, and the protections available to whistle-blowers or those raising concerns – with local examples to provide assurance that this is not mere rhetoric. Originality/value: Television reports of problems with social care attract wide media interest but the authors know very little about how care workers respond to depictions of their work and their occupational grouping. This paper links media and expert commentator reactions to television exposé with data acquired from interviews with those on the frontline of care. (Publisher abstract)

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Healthy cities: promoting health and equity: evidence for local policy and practice

Author:
et al
Editor:
DE LEEUW Evelyne
Publisher:
World Health Organization
Publication year:
2014
Pagination:
vi, 23
Place of publication:
Copenhagen

This publication summarises the evaluation of Phase V (2009–2013) of the WHO European Healthy Cities Network. The evaluation process was designed in collaboration with city representatives, academic institutions and public health experts. It adopted a realist synthesis approach, being responsive to the unique social, cultural, political, health and epidemiological circumstances in the 99 cities in the WHO European Healthy Cities Network and 20 accredited national networks. The evaluation findings are rooted in the enduring healthy city values such as equity, governance, partnership, participation and sustainability. Considering also the core Phase V themes, this publication focuses on policy and governance, healthy urban environments and design, caring and supportive environments, healthy and active living, national network performance and effects on health and equity. The evaluation finds good progress among cities and networks but differing in scale and quality. The study concludes that the healthy cities movement adds value and allows local governments to invest in health and well-being and address inequities through novel approaches to developing health (Edited publisher abstract)

Journal article

Using a collaboratory model to translate social work research Into practice and policy

Author:
et al
Journal article citation:
Research on Social Work Practice, 15(1), January 2005, pp.29-40.
Publisher:
Sage

The purpose of this article was to examine how an initiative of 10 collaborative projects focused on children and youth have applied principles of participatory research, collaboratories, and technological solutions. The study analyzed multiple forms of qualitative data, including semiannual formative evaluations and semistructured interviews of participating partners. Both the collaborative method and the infusion of technology were central to the functioning of collaboratory projects and, ultimately, the translation from research to practice and policy. The community-based participatory nature of the research projects resulted in applicable findings that were credible with people affected by the issues studied. The present study suggests that when there is steadfast commitment on the part of a diverse group of partners, even simple applications of technology can make a difference.

Book

The incest perpetrator: the family member no one wants to treat

Author:
et al
Editor:
HORTON Anne L.
Publisher:
Sage
Publication year:
1990
Pagination:
292p., bibliogs.
Place of publication:
London

Chapters on profiling and identifying the abuser, and outlines a variety of treatment programmes.

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