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Palliative and end of life care for Black, Asian and Ethnic Minority groups in the UK: demographic profile and the current state of palliative and end of life care provision

Authors:
CALANZANI Natalia, KOFFMAN Jonathan, HIGGINSON Irene J.
Publisher:
Marie Curie Cancer Care
Publication year:
2013
Pagination:
79
Place of publication:
London

The End of Life Care Strategy highlights that inequalities still exist in the care that different groups of people receive at the end of life. This report draws on an analysis of statistical data and the findings from a systematic review to understand the profile of Black, Asian and Minority Ethnic (BAME) populations living in the UK, and their unmet needs regarding palliative and end of life care. First, the characteristics of BAME groups in the UK (ethnic groups by age and geographical region, religion, language and characteristics of the foreign born population) are described using data from 2001 and 2011 Census. Figures are provided separately for England, Wales, Scotland and Northern Ireland. The report then examines to what extent the BAME populations are expected to increase and grow older in the next few decades according to the most recent population projections. The second part of the report draws on a review of the current literature on the state of palliative and end of life care provision for BAME groups. The reviews primary focus on access to, and receipt of care. They also recognise the importance of social inequalities when analysing unmet needs. Recommendations for policy, practice and research from the literature are then presented. Lastly, based on these two sources of information the report presents further recommendations with the aim to improve care for BAME populations in the UK. Tables are included throughout. (Edited publisher abstract)

Book Full text available online for free

Current and future needs for hospice care: an evidence-based report

Authors:
CALANZANI Natalia, HIGGINSON Irene J., GOMES Barbara
Publisher:
Help the Hospices
Publication year:
2013
Pagination:
48
Place of publication:
London

Commissioned by the Commission into the Future of Hospice Care, this report focuses on crucial factors for planning for the future level of need for hospice care towards the end of life for the adult population in the UK. It is based on analysis of mortality trends and population projections, together with identification and review of studies assessing preferences for place of care or place of death, and survey data about factors associated with choosing hospice/palliative care units as a preferred place to die. The report presents evidence-based findings, covering likely changes in the size and shape of the UK population (including data on actual and projected number of deaths in England, Wales, Scotland and Northern Ireland and on trends in hospice care services), and where people wish to be cared for and die and whether their preferences are being met. It considers evidence about whether hospice care makes a difference to patients and caregivers and the effectiveness and cost-effectiveness of hospice care. It makes recommendations in each of these areas, discusses the implications for future care planning for adequate hospice care, and includes suggestions for further research.

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