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Adults with cystic fibrosis and barriers to employment
- Authors:
- EDWARDS Jill, BOXALL Cathy
- Journal article citation:
- Disability and Society, 25(4), June 2010, pp.441-453.
- Publisher:
- Taylor and Francis
Concentrating particularly on findings related to employment, this paper discusses findings from a qualitative study which explored the life experiences of adults with cystic fibrosis from a social model perspective, using questionnaires and telephone interviews with a sample of 23 adults with cystic fibrosis. The article provides background information about cystic fibrosis, outlines the methods employed to research participants' employment experiences, and discusses the findings concerning securing and maintaining employment, and underemployment and participants' own solutions. The authors conclude that many of the barriers to employment highlighted by the study participants appear to centre on employers' medicalised understandings of the employment of adults with cystic fibrosis, and discuss the study findings and their implications, arguing that unless the employment of adults with cystic fibrosis is examined from a social model perspective, the discrimination and exclusion from full participation in the labour market which they experience will continue to go unchallenged.