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Quality of life for people with dementia: approaches to the challenge measurement
- Author:
- BOND John
- Journal article citation:
- Ageing and Society, 19(5), September 1999, pp.561-579.
- Publisher:
- Cambridge University Press
The different perspectives on dementia within the biomedical, psychological and social models of disability lead to radically different meanings of the concept 'quality of life' and approaches to its assessment. This article examines these different approaches and proposes a broad research agenda which is underpinned by two key principles. First, people with dementia and their informal caregivers should be involved in the development of usable outcome measures relevant to their needs and circumstances. Second, the scientific community in partnership with those directly affected, should develop a pluralistic approach to the assessment of outcome. This should take account of both the meaning of the condition to people with dementia and their informal caregivers and cost utility from a societal perspective.
The politics of caregiving: the professionalisation of informal care
- Author:
- BOND John
- Journal article citation:
- Ageing and Society, 12(1), March 1992, pp.5-21.
- Publisher:
- Cambridge University Press
A social policy and sociological analysis of the literature on caregiving.
Quality of life and older people
- Authors:
- BOND John, CORNER Lynne
- Publisher:
- Open University Press
- Publication year:
- 2004
- Pagination:
- 131p.bibliog.
- Place of publication:
- Maidenhead
Provides a critical approach to the conceptualization and measurement of quality of life in social gerontology and health and social care research. The book re-examines what we mean by 'quality of life' in a post-modern world, and examines the impact of continuous personal and social changes on the lives of older people. The book explores ideas about quality of life in social gerontological literature, and describes the experiences of older people through both their own personal accounts and representations in everyday life, popular culture and scientific research. The book reviews the way that older people talk about their quality of life and how this differs from the ways that younger people, researchers and scientists, policy makers and professionals discuss it. The book draws on a range of behavioural and social science knowledge to present a new way of thinking about and understanding quality of life and older people. While the book provides a critique of existing social science theories underpinning conceptions of quality of life it also address operational issues for the use of quality of life in social gerontological research.
Medicalization of insight and caregivers' responses to risk in dementia
- Authors:
- BOND John, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 1(3), October 2002, pp.313-328.
- Publisher:
- Sage
Lack of insight or impaired awareness of deficits in people with Alzheimer's disease or other dementias (AD) is a relatively neglected area of study. The terms are widely used in professional and everyday life without a shared understanding of what lack of insight means to health professionals, informal caregivers or people with dementia. Content analysis of 49 psychiatry or psychology texts, in which insight or a synonym is mentioned, found lack of clarity in definitions and their operationalization. In general, insight is defined as the ability to understand one's own problems. Lack of insight therefore is a professional judgement grounded in the medicalization of dementia. People labelled as lacking insight of their dementia will consequently experience more acutely depersonalization, loss of independence, loss of social and political rights and they will have their behaviour individualized. Caregivers' understanding of the loss of insight may influence the way they deal with risk during caregiving.
Research dementia: are there unique methodological challenges for health services research?
- Authors:
- BOND John, CORNER Lynne
- Journal article citation:
- Ageing and Society, 21(1), January 2001, pp.95-116.
- Publisher:
- Cambridge University Press
Health services research has been dominated by the biomedical model and positivism, and the funding cultures of biomedicine have dictated the choice of method used by researchers. Social science models, however, have been recognised as increasingly important and both quantitative and qualitative methods are accepted as appropriate. Older people with dementia have often been excluded or marginalised in studies about dementia because of traditional assumptions about the ability or appropriateness of people with dementia to act as participants or respondents. Argues that theory-driven pluralistic approaches to research method will facilitate participation of people with dementia in research.
Informal caregiving for frail older people at home and in long-term care institutions: who are the key supporters?
- Authors:
- BOND John, et al
- Journal article citation:
- Health and Social Care in the Community, 7(6), November 1999, pp.434-444.
- Publisher:
- Wiley
Describes the extent of the informal caregiving unit for older people who are physically or mentally frail living in private households or resident in long-term care institutions using cross-sectional analysis of survey data. A total of 1444 people aged 65 years or more registered with a general practitioner (GP) in four areas in England, and consenting to the study were screened for mental or physical frailty. Qureshi & Walker's hierarchical, decision-making model for selecting informal caregivers was applied to the data and correctly identified over three quarters of the key informal caregivers. This large-scale comprehensive survey of informal care for frail older people supports earlier small-scale localised studies highlighting the key role of spouses and daughters in the provision of informal support.
A summary report of an evaluation of continuing-care accommodation for elderly people
- Authors:
- BOND John, et al
- Publisher:
- University of Newcastle upon Tyne. Health Care Research Unit
- Publication year:
- 1994
- Pagination:
- 4p.
- Place of publication:
- Newcastle upon Tyne
Evaluation of continuing care accommodation for elderly people: vol. 2; the randomised controlled trial of the experimental NHS nursing homes and conventional continuing-care wards in NHS hospitals
- Authors:
- BOND John, et al
- Publisher:
- University of Newcastle upon Tyne. School of Health Care Sciences
- Publication year:
- 1989
- Pagination:
- 130p.,tables,bibliog.
- Place of publication:
- Newcastle upon Tyne
Report of an evaluation of 3 experimental National Health Service nursing homes set up by the Department of Health and Social Security in 1983 and 1984.
Evaluation of continuing care accommodation for elderly people: vol. 3; a multiple case study of NHS hospital wards and nursing homes; some aspects of structure and outcome
- Authors:
- BOND Senga, BOND John
- Publisher:
- University of Newcastle upon Tyne. School of Health Care Sciences
- Publication year:
- 1989
- Pagination:
- 204p.,tables,bibliog.
- Place of publication:
- Newcastle upon Tyne
Report of an evaluation of 3 experimental National Health Service nursing homes set up by the Department of Health and Social Security in 1983 and 1984.
Evaluation of continuing care accommodation for elderly people: vol. 1; evaluating continuing care for very frail elderly people
- Authors:
- BOND John, et al
- Publisher:
- University of Newcastle upon Tyne: School of Health Care Sciences
- Publication year:
- 1989
- Pagination:
- 62p.,tables,bibliog.
- Place of publication:
- Newcastle upon Tyne
Report of an evaluation of three experimental National Health Service nursing homes set up by the Department of Health and Social Security in 1983 and 1984.