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Young carers: challenging the facts and politics of research into children and caring
- Author:
- OLSEN Richard
- Journal article citation:
- Disability and Society, 11(1), March 1996, pp.41-54.
- Publisher:
- Taylor and Francis
Argues that our knowledge of what young carers do and how they differ from other children, is extremely limited. Without this information, practice recommendations will be base on guesswork and prejudice. Argues that the existing literature pays lip service to the support, or lack of it, that disabled people need to empower them as parents. Also reviews research into the relationship between disability and parenting. Research has tended to involve the search for the negative impact of an adult's disability on a child's growth, intelligence and adjustment. This has therefore told us little about how parental disability affects the domestic and caring tasks of children. Sees that there is a conceptual hole in the middle of our existing awareness about caring and childhood, with which future research must attempt to grapple.
Adolescents with diabetes: their concerns about services
- Authors:
- OLSEN Richard, SUTTON Jane
- Publisher:
- University of Leicester. Nuffield Community Care Studies Unit
- Publication year:
- 1996
- Pagination:
- 43p.
- Place of publication:
- Leicester
The aim of this project was to analyse the experiences that young people (14-19) with insulin-dependent diabetes mellitus have had in accessing a wide variety of health services. A random sample of 114 young people, stratified by age bands (14-16, 17-19), was drawn from the Diabetes Register, held in the Department of Epidemiology and Public Health at the University of Leicester. Focus groups and interviews were used to explore attitudes and preferences towards different health services and providers, within the context of past and current service use and experiences. Central issues included the trend towards greater involvement of GPs and primary care teams in diabetes management, the transition from childhood to adulthood, and the implications this had for, amongst other things, service use and the renegotiation of family control over factors important in diabetes care. The results were intended to inform the purchasing of diabetes services at a vitally important time in the re-orientation of these services, and in the wake of the implementation of purchaser-provider separation, and incentives for chronic disease management in general practice.
A sideways glance at young carers
- Authors:
- PARKER Gillian, OLSEN Richard
- Publisher:
- University of Leicester. Nuffield Community Care Studies Unit
- Publication year:
- 1995
- Pagination:
- 13p.,bibliog.
- Place of publication:
- Leicester
Paper questioning the balance of recent interest in the topic of young cares.