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Independent living strategy: a review of progress
- Author:
- MORRIS Jenny
- Publishers:
- In Control, Disability Rights UK
- Publication year:
- 2014
- Pagination:
- 25
- Place of publication:
- Wythall
This report summarises the findings of a review of evidence about the impact of the 2008 Independent Living Strategy and seeks to measure progress against some of the most important specific aims of the strategy. The review found that there is no evidence of significant progress in disabled people’s experiences of choice and control in their lives since 2008. Personal budgets for social care tend to improve outcomes but there is evidence that inadequate funding and restrictions on how personal budgets/direct payments may be used can inhibit choice and control. Disabled people who need support in their daily lives and older people are experiencing diminishing opportunities to participate in family and community life. People with high levels of support needs are at increasing risk of institutionalisation while access to mental health services is becoming more difficult. There have been significant reductions in advice and advocacy services, particularly those funded by legal aid. There is no evidence that current policies to support disabled people into work are improving employment opportunities and large numbers of disabled people have experienced a reduction in their household income since 2010. Disabled people are experiencing a reduction in housing opportunities and an increasing number are living in accommodation which is not suited to their needs and there have been significant reductions in expenditure on important programmes intended to increase transport opportunities. (Edited publisher abstract)
Rethinking disability policy
- Author:
- MORRIS Jenny
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2011
- Pagination:
- 20p., bibliog.
- Place of publication:
- York
There are concerns that reductions in benefits and public services will significantly and disproportionately affect disabled people. This report examines the progress that has been made in disability policy in the last 20 years. It shows that there have been some key improvements in both the socio-economic experiences of disabled people, and in related government policies. Nevertheless, few disabled people are optimistic about what the future holds. Some aspects of the arguments made by disability organisations have been capitalised on by the politics and ideology driving recent and current policies in ways which disadvantage disabled people. In particular this has happened with the social model of disability and concepts of ‘independent living’, ‘user involvement’ and ‘co-production’. In order to experience equal access to full citizenship, disabled people require some kind of collective and redistributive mechanism. Such redistribution needs to be in the context of a value system which values diversity and in which disabled people are treated as belonging and contributing to the communities in which they live.
Independent living and community care: a disempowering framework
- Author:
- MORRIS Jenny
- Journal article citation:
- Disability and Society, 19(5), August 2004, pp.427-442.
- Publisher:
- Taylor and Francis
The British disability movement has had significant achievements in its struggle for independent living. However, the current community care framework contains many barriers to independent living. This article sets out a conceptual framework for an understanding of independent living and provides an analysis of the barriers posed by the social care system. These range from financial incentives for placing disabled people in residential care, to a failure to address needs relating to employment, parenting and leisure. Disabling attitudes held by social services professionals about 'risk' and 'capacity' are also major barriers. It is clear that, unless the legislative framework is amended to include an entitlement to independent living, disabled people will continue to be denied their full human and civil rights.
Social exclusion and young disabled people with high levels of support needs
- Author:
- MORRIS Jenny
- Journal article citation:
- Critical Social Policy, 21(2), May 2001, pp.161-183.
- Publisher:
- Sage
There are significant differences between the concept of social exclusion adopted by the mainstream policy agenda and what social exclusion means to young disabled people, particularly those with high levels of support needs. Currently, the experiences and concerns of this group are not being heard in the arenas where policies are developed. The silence about their experiences masks an assumption that, to have high levels of support needs, means dependency and exclusion are inevitable. It is unlikely, therefore, that current initiatives to tackle social exclusion will address the experiences of these young disabled people as they grow into adulthood. In contrast, a human rights agenda offers greater opportunities to challenge the way young disabled people with high levels of support needs are "shut out" from society.
Care or empowerment? a disability rights perspective
- Author:
- MORRIS Jenny
- Journal article citation:
- Social Policy and Administration, 31(1), March 1997, pp.54-60.
- Publisher:
- Wiley
This article challenges the notion of "care", arguing that people who need support in their daily lives have been constructed as "dependent people". Instead, the author argues, if we want to empower people we must learn from the Independent Living Movement, from the people who struggled against segregation and insisted that access to personal assistance over which they have control is a civil rights issues. Argues that the new direct payments legislation is an important stage in the achievements of a civil rights movement in any work which they develop on issues which are not of mere academic interest but which concern people's rights to choice and control in their lives.
Community care or independent living?
- Author:
- MORRIS Jenny
- Journal article citation:
- Critical Social Policy, 40, Summer 1994, pp.24-45.
- Publisher:
- Sage
Community care policies are based on an ideology of dependency. This means that community care practice - in particular the changes in the Independent Living Fund and the way that statutory services are delivered - often constitutes a barrier to independent living. Research on the experience of receiving personal assistance with daily living activities found that receiving cash to pay for assistance enables disabled people to make the kinds of choices in their lives which non-disabled people take for granted
No home from home
- Author:
- MORRIS Jenny
- Journal article citation:
- Community Care, 8.7.93, 1993, pp.20-21.
- Publisher:
- Reed Business Information
Disabled young people often have difficulty in creating an independent life away from their parents and residential care can seem to be their only option. Shows how the experience can often be bitter and demeaning; and a difficult situation to move away from, even when residential establishments support people's wishes to live independently. Concludes that a better understanding of what it is like in residential care is needed particularly in the light of government plans to consign people to such care if their personal assistance costs are more than five hundred pounds a week.
Achievable goals
- Author:
- MORRIS Jenny
- Journal article citation:
- Community Care, 18.2.93, 1993, pp.22-23.
- Publisher:
- Reed Business Information
The author in her research, looked at the experience of people with physical disabilities in the community. She found that community care practice can be restrictive and create dependency, but also discovered the benefits of genuine independence, when that is achieved.
Advocating true reform
- Author:
- MORRIS Jenny
- Journal article citation:
- Community Care, 4.2.93, 1993, pp.16-17.
- Publisher:
- Reed Business Information
Community care reform has meant loss of access to Independent Living Fund grants. Looks at the success of an independent living advocate at Stoke Mandeville Hospital and considers why community care reforms may lead to greater institutionalisation for many.
Community care or independent living
- Author:
- MORRIS Jenny
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1993
- Pagination:
- 46p.,bibliog.
- Place of publication:
- York
Report exploring some of the experiences of people with disabilities of receiving assistance from partners and other family members, in the form of statutory services and through the direct purchase of the help required. Raises issues for the implementation of community care policies at both local and national levels, including human and civil rights issues.