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Meeting the needs of families living with children diagnosed with autism spectrum disorder
- Authors:
- KEENAN Mickey, et al
- Publisher:
- Queens University Belfast
- Publication year:
- 2007
- Pagination:
- 180p., bibliog.
- Place of publication:
- Belfast
This research study was undertaken by the University of Ulster and Queen’s University of Belfast, in collaboration with and on behalf of PEAT, and funded by the Royal Irish Academy. The study aimed to identify the needs of families of children with autistic spectrum disorders in Ireland, assesses services currently provided, and to arrive at recommendations to ensure that support and intervention is tailored to the needs of individual child, parent, and family systems. The report begins with a history of the study of autism, prevalence and incidence rates worldwide and in Ireland, aetiology, symptoms, and risk and protective factors. It then outlines the research methodology and the key results. Comparative data were collected in Northern Ireland and the Republic of Ireland. In total, 95 parents representing 100 children with ASD and 67 multi-disciplinary professionals took part. A mixed-methods approach was used; detailed questionnaires supplied quantitative data and focus group discussions contributed qualitative data. Areas covered include: the diagnostic process and the Special Education Needs Statement (SENS); home tuition programmes and parent training; day service and education provisions; teacher qualifications; financial and multi-disciplinary supports; home and respite support; and care and education plans. Finally, child behaviours that cause difficulties and distress to parents, issues around siblings, parents, and family more generally are outlined before more general topics such as the application of applied behaviour analysis (ABA) to areas other than ASD, psychological well being of the parents, and future needs are drawn out. Policy and practice recommendations are also included. (Original abstract)
The pursuit of permanence: a study of the English child care system
- Authors:
- SINCLAIR Ian, et al
- Publisher:
- Jessica Kingsley
- Publication year:
- 2007
- Pagination:
- 320p., bibliog.
- Place of publication:
- London
This book is the result of a large in depth study of the English childcare system. It looks at the complexities of the care system and aims to provide reasoning for the movements of children. The authors discuss why some placements are more successful than others and how things differ between councils. Children in public care complain that they have too many placements and professionals agree. This book, and the study it is based on, were designed to better understand the reasons for this instability and how it affects different groups of children. The book examines the children (what they need and what they want), their movements into, out of and within the care system, the nature and quality of their placements and the outcomes (whether the children are settled or happy). It goes on to analyse the reasons for movements and outcomes in different groups of children, and the relative impacts of the departments, social work teams and placements. The authors conclude with suggestions about how the care system should work, what it should offer and how it should be managed and inspected. The book is aimed at all professionals and academics involved with fostering, leaving care, adoption and children's services, as well as policy makers and students on social work courses.
Trends in severe disability among elderly people: assessing the evidence in 12 OECD countries and the future implications
- Authors:
- LAFORTUNE Gaetan, et al
- Publisher:
- Organisation for Economic Co-operation and Development
- Publication year:
- 2007
- Pagination:
- 78p., bibliog.
- Place of publication:
- Paris
As the population aged 65 and over will continue to grow steadily in OECD countries over the next decades, improvements in the functional status of elderly people could help mitigate the rise in the demand for, and hence expenditure on, long-term care. This paper assesses the most recent evidence on trends in disability among the population aged 65 and over in 12 OECD countries: Australia, Belgium, Canada, Denmark, Finland, France, Italy, Japan, the Netherlands, Sweden, the United Kingdom and the United States. One of the principal findings from this review is that there is clear evidence of a decline in disability among elderly people in only five of the twelve countries studied (Denmark, Finland, Italy, the Netherlands and the United States). Three countries (Belgium, Japan and Sweden) report an increasing rate of severe disability among people aged 65 and over during the past five to ten years, and two countries (Australia, Canada) report a stable rate. In France and the United Kingdom, data from different surveys show different trends in ADL disability rates among elderly people, making it impossible to reach any definitive conclusion on the direction of the trend. One of the main policy implications that can be drawn from the findings of this study is that it would not be prudent for policymakers to count on future reductions in the prevalence of severe disability among elderly people to offset completely the rising demand for long-term care that will result from population ageing.
Direct payments: a national survey of direct payments policy and practice
- Authors:
- DAVEY Vanessa, et al
- Publisher:
- Personal Social Services Research Unit
- Publication year:
- 2007
- Pagination:
- 149p., bibliog.
- Place of publication:
- London
Direct payments allow people to arrange their own social services. They give individuals control over the social care funding to which they are eligible, and are seen as an important vehicle for promoting independence and choice. Yet there are substantial variations in direct payment arrangements. This UK-wide survey suggests that direct payments packages are provided to people receiving more hours of care per week than the average social care recipient. Significant disparities between local councils were found in the proportions of eligible people receiving direct payments as well as in hourly payment rates, which may affect how individuals attain a fair stake in the market for social care. Also, there were wide variations in the proportion of local community care budgets spent on direct payments, both between areas and across user groups. These were largely reflected in the strength in developments for different users groups; 15.5% of the budgets of English authorities for people with a physical disability was spent on direct payments, compared to 1.1% for people with a learning disability, 0.8% for older people and 0.4% for people with a mental health problem.
Dementia in my family: taking an intergenerational approach to dementia
- Authors:
- HARDING Ed, et al
- Publisher:
- Alliance for Health and the Future
- Publication year:
- 2007
- Pagination:
- 27p.
- Place of publication:
- London
There are around 5.5 million Europeans with dementia. There are more new cases of dementia per year than of stroke, diabetes or breast cancer. With the ageing of the population and no cure in the foreseeable future for dementia, these numbers are bound to increase in years to come. This report helps to promote an intergenerational approach to dementia. The report begins by highlighting key facts about dementia. It then describes the role that the family plays as well as the impact of dementia on the entire family, before moving on to looking at successful initiatives across Europe in which different generations work together to lessen the burden of dementia in their communities. Finally, the book proposes ways in which communities may support all generations as they cope with dementia within their families. The report is based on a workshop held in June 2006 at the European Social Services conference in Vienna.
Joint area review: Southampton Children's Services authority area: review of services for children and young people
- Authors:
- AUDIT COMMISSION, et al
- Publisher:
- OFSTED
- Publication year:
- 2007
- Pagination:
- 29p.
- Place of publication:
- Manchester
The Joint Area Review describes the outcomes achieved by children and young people growing up in the area and evaluates the way local services contribute to their well-being. The review assesses the contribution of local services in achieving good outcomes for: those children at risk or requiring safeguarding; looked after children; and for those with learning difficulties and/or disabilities. The contribution of local services in raising educational attainment of children in reducing the number of young people not in employment, education and training were also reviewed.
Joint area review: London Borough of Islington Children's Services authority area: review of services for children and young people
- Authors:
- OFSTED, et al
- Publisher:
- OFSTED
- Publication year:
- 2007
- Pagination:
- 32p.
- Place of publication:
- Manchester
The Joint Area Review describes the outcomes achieved by children and young people growing up in the area and evaluates the way local services contribute to their well-being. The review assesses the contribution of local services for: Being healthy; Staying safe; Enjoying and achieving; Making a positive contribution; Achieving economic well-being; and Service management. The performance of education service, social care services for children and health services were also given general assessments.
Direct payments: a national survey of direct payments policy and practice: executive summary
- Authors:
- DAVEY Vanessa, et al
- Publisher:
- Personal Social Services Research Unit
- Publication year:
- 2007
- Pagination:
- 5p.
- Place of publication:
- London
Presents the main findings of a UK wide survey of direct payments. The findings report on who was in receipt of direct payments, levels of expenditure, rates of payment, commissioning practices, the provision of support to direct payments users and factors aiding or hindering in the implementation of direct payments.
Money, rights and risks: a scoping review of financial issues for people with learning disabilities in the UK
- Authors:
- WILLIAMS Val, et al
- Publisher:
- Friends Provident Foundation
- Publication year:
- 2007
- Pagination:
- 53p., bibliog.
- Place of publication:
- Dorking
This report reviews financial issues for people with learning disabilities and their families, across the UK. It draws on a wide range of recent and ongoing research in the field of learning disability, as well as three focus groups for 25 people with learning disabilities in different areas of the country and ten individual interviews. There is also some reflection about the issues for financial providers, based on a small sample of interviews, and the report ends with recommendations for practice and further research. Key findings show that many people with learning disabilities had little control of their own resources. They were mostly given ‘pocket money’, which they spent on small non-essential items. People had few opportunities to improve their financial knowledge. Personal incomes were low, and some had taken on credit that they did not understand, and could not afford. The report concludes that those with learning disabilities need planned financial support packages when they move into independent living. They also need safeguards, to ensure minimal financial risk. Family carers and support staff need advice, information and training in offering financial support
Challenging behaviour: a unified approach
- Authors:
- BANKS Roger, et al
- Publisher:
- Royal College of Psychiatrists
- Publication year:
- 2007
- Pagination:
- 79p., bibliog.
- Place of publication:
- London
This report is the result of a joint working group of the learning disability faculties of the British Psychological Society and the Royal College of Psychiatrists, in consultation with the Royal College of Speech and Language Therapists. This report concerns standards of clinical practice in supporting adults with learning disabilities who present behavioural challenges. It unites the clinical theory and practice of health professions that have specific models for the assessment and management of challenging behaviour. The fundamental unifying principle is to improve the quality of life for people whose behaviour challenges others. The report focuses primarily on adults with moderate to severe learning disabilities. This report has been produced with aims including: to revise and develop the interpretation of the term challenging behaviour; to provide guidance for service developers and commissioners; and to inform and empower service users and their carers.