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Access to health care for carers: barriers and interventions: report for the National Co-ordinating Centre for NHS Service Delivery and Organisation R & D (NCCSDO)
- Authors:
- ARKSEY Hilary, et al
- Publisher:
- National Co-ordinating Centre for NHS Service Delivery and Organisation
- Publication year:
- 2003
- Pagination:
- 158
- Place of publication:
- London
The overall aim of the work was to inform the NHS Service Delivery and Organisation (SDO) R & D Programme about the theory and evidence on carers’ access to health care. Researchers at the Social Policy Research Unit, University of York (SPRU) document key themes from the literature review and consultation, and develop a model of access to health care specifically for carers. Their report considers five different types of barriers in access to health care for carers: professional characteristics; service issues; language or cultural issues; carer or care recipient characteristics; and information and knowledge issues. The report develops a model of access to health care specifically for carers. Detailed information about the interventions reviewed can be found in the supplementary report, ‘Access to health care for carers: intervention evaluations’. The study identified clear gaps in the literature in relation to carers’ access to: hospital-based care; tertiary services; continuing access from primary to secondary care; national screening programmes; chiropody; dental services; and optical care. (Original abstract)
Easing the burden of caregiving: the impact of consumer direction on primary informal caregivers in Arkansas
- Authors:
- FOSTER Leslie, et al
- Publisher:
- Mathematica Policy Research
- Publication year:
- 2003
- Pagination:
- 38p., bibliog.
- Place of publication:
- Princeton, NJ
Informal caregivers provide vital personal care and other supportive services to Medicaid beneficiaries who have physical dependencies, so promoting their well-being is an important policy objective. Caregiver well-being could be greatly affected by the amount, types, and quality of paid supportive services that beneficiaries receive in addition to informal help. This study compares the experiences of informal caregivers under two models of paid supportive services that were tested in the Arkansas Cash and Counseling demonstration. Under the experimental model, Medicaid beneficiaries could receive an allowance to direct their own services. Under the traditional model, beneficiaries relied on home care agencies for services. Participants included 1,433 caregivers who were providing the most informal assistance to their care recipients. Findings showed that, on average, the caregivers of self-directing care recipients provided fewer hours of assistance than their control group counterparts provided, and they were less likely to report high levels of physical, financial, and emotional strain. They also worried less about insufficient care and safety and were more likely to be very satisfied with recipients’ overall care arrangements; they were less likely to report that their health was harmed by caregiving.
Investing in trust building and 'good relations' in a public sector organisation: the relationships in equity, diversity and interdependence (REDI): summary report
- Authors:
- EYBEN Karin, et al
- Publisher:
- University of Ulster. Future Ways Programme
- Publication year:
- 2003
- Pagination:
- 64p.
- Place of publication:
- Belfast
This summary report condenses the story of the Relationships in Equity, Diversity and Interdependence (REDI) process with Newry and Mourne District council in Northern Ireland, and key lessons learned, all of which is set out in a larger reflections report. REDI evolved from the Future Ways report in 1997 on the three principles of equity, diversity and interdependence. The aim was to grow the capacity of Newry and Mourne District Council to learn to make a meaningful and practical contribution to the development of more fair, stable and open communities on an ongoing basis. This summary sets out the steps that were taken, culminating in implementing new models of practice and the lessons learned about: community relations, organisational learning, local government and change and voluntary group-public sector partnerships. REDI was not about imposing change but about exploring possibilities for change in a shifting community and political context. It was about growing new habits amongst and between staff and elected representatives to support parallel fragile initiatives within the wider community.
The evaluation of the validity and reliability of the Youth Justice Board's assessment for young offenders: findings from the first two years of the use of ASSET
- Authors:
- BAKER Kerry, et al
- Publisher:
- Youth Justice Board
- Publication year:
- 2003
- Pagination:
- 122p., bibliog.
- Place of publication:
- London
This report presents the results of an eighteen-month study involving 39 youth offending teams (YOTs) from across the country. The data sample consisted of 3,395 ASSET profiles completed by YOT staff if whom 82% were male and 10% from ethnic minority groups. An introduction gives the context, design and development, components, purpose, sample and scope. Chapter 1 summarises the interim report on users' views on ASSET. Chapter 2 covers profiling from core ASSET and Chapters 3 and 4 its reliability. Chapter 5 asks "What do YOU" - young offenders - "think?" Appendices give statistical and other information.
Care Programme Approach: documentation of past risk-related behaviour
- Authors:
- DICK Peter, et al
- Journal article citation:
- Psychiatric Bulletin, 27(8), August 2003, pp.298-300.
- Publisher:
- Royal College of Psychiatrists
The aim of the study was to assess the practicality of extracting past risk-related information from case records and to assess how this process might be cost-effectively incorporated in routine practice. Case records of 43 patients referred to the Care Programme Approach in Dundee were examined. The study yielded relevant information - 39% of patients had a history of violence, 58% of self-harm or suicide, 58% of severe self-neglect and 72% of non-compliance with medication. However, it took an average of 5 hours to conduct a thorough review of each case because the notes were bulky and poorly organised. Retrospective review of conventional case records in routine practice is likely to be incomplete and misleading. Prospective recording should be practicable if used selectively, but requires a standardised approach to clinical recording and case note maintenance. The risk recording system we developed, incorporating a dated index of incidents by risk category, followed by brief summaries of each incident, provides key clinical information not available from a simple check list while not sacrificing brevity.
Financial benefits and child health
- Authors:
- DOWLING Sarah, et al
- Publisher:
- City University. Child Health Research and Policy Unit
- Publication year:
- 2003
- Pagination:
- 91p., bibliog.
- Place of publication:
- London
Does money make a difference in reducing inequalities in child health? What is more effective – additional cash, improved services or a combination of the two? This report presents a systematic review of studies. Produced by City University with support from Barnardo’s.
The mental health of looked after children in public care: drop in the ocean: an examination of current specialist mental health projects for 'looked after' children within England
- Authors:
- COCKER Christine, et al
- Publisher:
- Barnardo's
- Publication year:
- 2003
- Pagination:
- 56p.
- Place of publication:
- Ilford
This report looks at work that is addressing the mental health needs of looked-after children, who are a particularly vulnerable group. The report also presents areas of concern and proposals for change.
Life's labours lost: a study of the experiences of people who have lost their occupation following mental health problems
- Authors:
- BODMAN Richard, et al
- Publisher:
- Mental Health Foundation
- Publication year:
- 2003
- Pagination:
- 69p.
- Place of publication:
- London
Description of the experiences of people who have lost their occupation following mental health problems. This research is part of the Foundation's Strategies for Living project.
Measuring deprivation in Scotland: developing a long-term strategy: final report
- Authors:
- BAILEY Nick, et al
- Publisher:
- Scotland. Scottish Executive Central Statistics Unit
- Publication year:
- 2003
- Pagination:
- 51p.
- Place of publication:
- Edinburgh
The final report from a project to produce a long-term strategy for measuring deprivation in Scotland is presented. The project was commissioned by the Central Statistics Unit of the Scottish Executive with three main objectives: to provide a clear definition and conceptual basis for measuring deprivation, to set out a long-term strategy for measuring area deprivation, and to explore approaches to measuring deprivation for individuals. In addition to work reviewing existing research, consultations with a wide range of organisations and individuals were central to the process of this research.
Aroma therapy for dementia (review)
- Authors:
- THORGRIMSEN L., et al
- Publisher:
- John Wiley and Sons; Cochrane Collaboration
- Publication year:
- 2003
- Pagination:
- 13p.
- Place of publication:
- Chichester
Aroma therapy is the use of pure essential oils from fragrant plants such as Peppermint, Sweet Marjoram, and Rose) to help relieve health problems and improve the quality of life in general. The healing properties of aroma therapy are claimed to include promotion of relaxation and sleep, relief of pain, and reduction of depressive symptoms. Hence, aroma therapy has been used to reduce disturbed behaviour, to promote sleep and to stimulate motivational behaviour of people with dementia. Of the three randomized controlled trials found only one had useable data. The analysis of this one trial showed a significant effect in favour of aroma therapy on measures of agitation and neuropsychiatric symptoms. More large-scale randomized controlled trials are needed before firm conclusions can be reached about the effectiveness of aroma therapy.