Independent evaluation of Electronic Palliative Care Coordination Systems (EPaCCS) in England: final report

Whole Systems Partnership
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Independent evaluation of Electronic Palliative Care Co-ordination Systems (EPaCC) which are designed to support the co-ordination of end of life care once it is recognised that someone is likely to be at or near the last year of life. The system provides a shared local record for health and social care professionals, accessible across care boundaries, which provides access to key information about an individual. The aim of the evaluation was to examine the impact of EPaCCS on the experience of care towards and at the end of life, for patents, carers and staff and also look at evidence of its cost effectiveness. The evaluation draws on a range of publicly available qualitative and quantitative sources as well as in-depth work interviews with patients, carers and professional. Findings reported suggest that patients, carers and professionals in EPaCCS locations viewed co-ordination of care as both important and increasingly being realised. 'Systems leaders' also found EPaCCS as an important tool to improve the coordination of care and outcomes at the end of life. The evaluation also notes that to achieve full benefit from EPaCCS there is a need to continue to address contextual and cultural challenges, including the building of capability amongst staff, taking full advantage of technological advances and building strong teams that collaborate effectively across agencies, organisations and professions. (Edited publisher abstract)

Subject terms:
end of life care, information technology, integrated care, palliative care, information sharing, cost effectiveness, death, hospitals, evaluation;
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