Hidden at home: the social care needs of people with cancer

Author:
MACMILLAN CANCER SUPPORT
Publisher:
Macmillan Cancer Support
Publication year:
2015
Pagination:
27
Place of publication:
London

A report on the social care needs of people living with cancer and the support they receive. It draws on a research study, comprising: a UK-wide online survey of 1,037 people living with cancer in the UK and their carers; 24 in-depth face-to-face interviews; and 15 week-long online diaries. The research showed that around two in three people living with cancer have practical or personal support needs, and four in five have emotional support needs. Overall, almost one in three people with cancer have practical or personal needs but do not get enough support or get no support at all. Almost half of people with cancer have emotional needs but do not get enough support or get no support at all. Six in ten people caring for someone with cancer experience some kind of impact on their lives as a result of caring and very few receive a formal Carer's Assessment. The report makes a number of recommendations that would improve the lives of people with cancer who have social care needs: clearer information and signposting to improve access to the services that are currently available, at various stages of the cancer journey; provision of a holistic needs assessment and an integrated care plan, which is reviewed and updated at key points of the cancer journey; personalisation and integrated care; and ensuring carers receive an appropriate needs assessment and necessary support. (Edited publisher abstract)

Subject terms:
cancer, social care, needs assessment, carers, carers assessment, integrated care, surveys;
Content type:
research
Location(s):
United Kingdom
Link:
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