End of life care: resources to strengthen support

MACDONALD Alistair, et al
Journal article citation:
Journal of Dementia Care, 26(1), 2018, pp.28-31.

As more people die with dementia, end of life care discussions are growing in importance. The author, and colleagues report on their study and explain how co-designing new resources could help to strengthen support at the end of life.The authors use findings from one of the largest studies, the Supporting Excellence in End of life care in Dementia programme (SEED study) to produce new resources which help dementia nurse specialists work more effectively with patients and their families and improve the knowledge and skills of patients' health care teams. The approach taken was to initially map existing resources, and in the light of gaps in existing resources, a co-design process to develop a new resource. A prototype (Care Plan Guide, CPG) was created and co-design workshops involving all key stakeholders took place to gain feedback from the different groups. (Edited publisher abstract)

Subject terms:
end of life care, dementia, co-production, family support, patients, carers, information resources, digital technology;
Content type:
practice example
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