Caring for a child with learning disabilities: over a prolonged period of time: an exploratory survey on the experiences and health of older parent carers living in Scotland

Authors:
CAIRNS Deborah, et al
Journal article citation:
Journal of Applied Research in Intellectual Disabilities, 27(5), 2014, pp.471-480.
Publisher:
Wiley

To examine the impacts of a lifetime of caring on older parents of offspring with learning disabilities an exploratory postal survey was completed by 100 older parent carers. The survey including the Medical Outcome Study (Short Form) 36 version 2 (SF-36v2). The reported survey is part of a larger mixed method study including in-depth interviews. The majority of respondents (n = 91) reported caring for 50 h or more per week with multiple caregiving duties. While the SF-36v2 reported physical health of older parent carers to be similar to UK norms, their mental health was significantly reduced. The findings highlight the vulnerability of ageing parents of offspring with learning disabilities. This previously underreported situation warrants further investigation and urgent attention from health and social care agencies and professionals. (Edited publisher abstract)

Subject terms:
carers, learning disabilities, ageing, older people, surveys, health, parents;
Content type:
research
Location(s):
Scotland
Link:
Journal home page
ISSN online:
1468-3148
ISSN print:
1360-2322

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