Better care in my hands: a review of how people are involved in their care

Care Quality Commission
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Based on an analysis of evidence from the Care Quality Commission national reports and inspection findings, as well as national patient surveys and a literature review, this report describes the extent and quality of people's involvement in their health and social care. It provides an analysis by sector and population group, identifies what helps people and their families to work in partnership with health and social care staff and includes good practice examples from inspection findings. The analysis found that over half of people asked said they felt involved in decisions about their health care and treatment, with little change in people’s perceptions over the last five years. Some groups were found to be less involved in their care than others, including people with long term physical and mental health conditions, people with learning disabilities and people over 75 years old. Barriers to involvement were found to become more significant when people needed to use different services or use them for long periods of time. Enablers that service providers and commissioners can put in place to create a culture that involves people using services include the use of personalised care plans, the coordination of people’s involvement in their care as they move between services, and ensuring that commissioners developing new models of care take into account the enablers of good involvement. (Edited publisher abstract)

Subject terms:
user participation, health care, adult social care, long term conditions, good practice, person-centred care, complex needs, integrated care;
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