A bit good but a bit not good too: children and young people's views about specialist health services

Care Quality Commission
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The Care Quality Commission (CQC) is undertaking a national review of the support given to families with disabled children in order to promote improvement in the delivery and commissioning of health support for families with disabled children. This document reports on the findings of research to gather the views of disabled children and young people undertaken as part of the review. A total of 22 children and young people aged between 7 and 27 were consulted; 14 of these in 2 consultative groups, 4 were visited at home, and 4 took part by e-mail. The groups used different methods of communication including art, sign, music and play. All 22 children and young people had experience of specialist health services, 17 have long term physical disabilities or learning disabilities and 19 have long term complex health care needs. The majority of children reported that they and their families do get support with their health care needs, but the level of support does not match their support needs. The report describes the main findings with regard to: the children and young people’s experiences of health services; their experience of being involved in planning their care; and their ideas regarding improvement of specialist health services.

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user views, young adults, young people, children, disabilities, health care, health needs;
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