Great Britain. Parliament. House of Commons Library
Publication year:
2022
Pagination:
15
Place of publication:
London
This reading list draws together reports and other material demonstrating the interconnectedness of housing and health. It draws attention to literature on the links between housing and major medical conditions, including Covid-19, dementia and mental health problems; the impact of different types of housing on health, looking at the private rented sector, housing with care, social housing
(Edited publisher abstract)
This reading list draws together reports and other material demonstrating the interconnectedness of housing and health. It draws attention to literature on the links between housing and major medical conditions, including Covid-19, dementia and mental health problems; the impact of different types of housing on health, looking at the private rented sector, housing with care, social housing and homelessness; and the various collaborative partnerships in place working to combat these issues. The list comprises a selection of publications – it is not intended to be an exhaustive list.
(Edited publisher abstract)
Subject terms:
housing, housing conditions, Covid-19, health inequalities, mental health problems, dementia, NHS, social housing, homelessness, supported housing, rented accommodation;
This case study describes the development of new resources to support families and staff caring for people living with dementia. To overcome the challenge of high staff turnover and the impact on behavioural and psychological symptoms of dementia (BPSD) and social isolation, the Northern Health and Social Care Trust Dementia Home Support Team developed life story posters and therapeutic letters...
(Edited publisher abstract)
This case study describes the development of new resources to support families and staff caring for people living with dementia. To overcome the challenge of high staff turnover and the impact on behavioural and psychological symptoms of dementia (BPSD) and social isolation, the Northern Health and Social Care Trust Dementia Home Support Team developed life story posters and therapeutic letters that provided information about the person. This supported a greater understanding of how their condition might manifest itself, but also supported engagement with the person with dementia that would reduce their social isolation. In terms of training, the team switched to virtual delivery and reduced class sizes to a maximum of 24 participants. They made use of breakout rooms and developed videos and animations to support training. Together, these changes overcame the reduction in engagement that has been seen when education and training programmes have shifted to online delivery. Recognising the time demands on carers and staff, the team also reduced the size of training modules, and developed an app that could be used to support learning after the training had been completed. Advice on psychological wellbeing for staff was added to training. This approach generated the following benefits and outcomes: reduction in hospital admissions; 50 per cent reduction demand for the specialist dementia team after one year; £94,848 saving in staff time in the first year; improved experience for people with dementia and care professionals.
(Edited publisher abstract)
Subject terms:
dementia, social isolation, loneliness, case studies, intervention, evaluation, training;
This is the Government response to the House of Commons Health and Social Care Committee report on the state of provision of care and support for people with dementia and the progress in the social care funding reform. The response addresses each of the recommendations made by the Committee, covering: reforming the social care system, which is unfair and confusing for people living with dementia...
(Edited publisher abstract)
This is the Government response to the House of Commons Health and Social Care Committee report on the state of provision of care and support for people with dementia and the progress in the social care funding reform. The response addresses each of the recommendations made by the Committee, covering: reforming the social care system, which is unfair and confusing for people living with dementia; reforming the funding of care; timely diagnosis for people with dementia and their carer; personalised and integrated care; developing a skilled workforce; supporting people living with dementia to live the life they choose and feel included in the community; promoting cross-departmental initiatives to ensure people with dementia are able to remain connected to their community; supporting unpaid carers.
(Edited publisher abstract)
Subject terms:
government policy, dementia, access to services, carers, financing, care reform, resource allocation, service provision;
This report examines how sex, gender and sexuality impact on the everyday lives of people with dementia. It explores the different experiences of men and women with dementia with a range of gender identities (e.g. male, female, bi-gender, gender fluid, transgender and non-binary etc.) and a range of sexual identities/ orientations (e.g. straight, gay, lesbian, bisexual, asexual and pansexual...
(Edited publisher abstract)
This report examines how sex, gender and sexuality impact on the everyday lives of people with dementia. It explores the different experiences of men and women with dementia with a range of gender identities (e.g. male, female, bi-gender, gender fluid, transgender and non-binary etc.) and a range of sexual identities/ orientations (e.g. straight, gay, lesbian, bisexual, asexual and pansexual) from an ethical and human rights perspective. It draws on the literature, and a group of health experts to tease out relevant issues and influences which affect the support, treatment and care that people with dementia receive (or should receive), if needed, and their quality of life (as well as that of their friends, family and possible carers). The report also provides recommendations on how to ensure equity in the provision of care, support and treatment to people with dementia regardless of their sex, gender identity or sexual orientation.
(Edited publisher abstract)
Subject terms:
dementia, service provision, sexuality, gender, sexual orientation, LGBT people, rights based approach, self-concept, access to services, person-centred care, quality of life, equal opportunities;
WORLD HEALTH ORGANIZATION. Regional Office for Europe
Publisher:
World Health Organization. Regional Office for Europe
Publication year:
2022
Pagination:
22
Place of publication:
Copenhagen
The pandemic of coronavirus disease 2019 has revealed and accentuated important gaps in the provision of appropriate, community-based, long-term care services for a rapidly growing number of people experiencing decline in functional ability, across the WHO European Region. As countries work to rebuild and strengthen health and long-term care systems, it is essential to support broad dialogue, a common vision for change and focused interventions to bridge existing divides. This policy brief proposes a conceptual framework that maps long-term care actions within the health and social policy landscape and highlights the need and potential for deeper integration and coordination across systems.
(Edited publisher abstract)
The pandemic of coronavirus disease 2019 has revealed and accentuated important gaps in the provision of appropriate, community-based, long-term care services for a rapidly growing number of people experiencing decline in functional ability, across the WHO European Region. As countries work to rebuild and strengthen health and long-term care systems, it is essential to support broad dialogue, a common vision for change and focused interventions to bridge existing divides. This policy brief proposes a conceptual framework that maps long-term care actions within the health and social policy landscape and highlights the need and potential for deeper integration and coordination across systems.
(Edited publisher abstract)
Subject terms:
long term care, policy, ageing, service provision, community care, social policy, models, older people, dementia;
This themed review brings together the evidence on dementia and continence problems. Continence problems can have a profound and distressing impact on the lives of people living with dementia and their carers. There is evidence of an over-reliance on "containment" and the use of products such as pads. Staff in all settings often lack training, not only to promote continence but to manage...
(Edited publisher abstract)
This themed review brings together the evidence on dementia and continence problems. Continence problems can have a profound and distressing impact on the lives of people living with dementia and their carers. There is evidence of an over-reliance on "containment" and the use of products such as pads. Staff in all settings often lack training, not only to promote continence but to manage incontinence sensitively and well. Recent evidence highlights the demeaning language and behaviour among some hospital staff. The review explores the impact of continence problems on people living with dementia and their carers; strategies to support continence in people living with dementia; the evidence on improving continence care for people living with dementia at home; the evidence on improving continence care for people living with dementia in care homes; and the evidence on improving continence care for people living with dementia in hospital. The paper concludes with a set of key messages for policy makers and commissioners, service providers, care regulators and the NIHR, calling for the prioritisation of continence care in all settings as a key component of high quality care.
(Edited publisher abstract)
Subject terms:
dementia, older people, incontinence, dignity, adult social care;
This paper discusses the potential of personalised care and support to promote the wellbeing of people living with dementia. It explores the evolution of thinking and practice around person-centred dementia care, including its relationship with personalised care and support more generally. The intention is to link the two areas and enrich and inform future strategy and action in relation both...
(Edited publisher abstract)
This paper discusses the potential of personalised care and support to promote the wellbeing of people living with dementia. It explores the evolution of thinking and practice around person-centred dementia care, including its relationship with personalised care and support more generally. The intention is to link the two areas and enrich and inform future strategy and action in relation both to people living with dementia and personalised care and support more widely. It concludes considering the system challenges that need to be addressed to optimise the wellbeing of people living with dementia. It is based on desk research, interactions and conversations with people living with dementia, people 'informally' supporting people with dementia and with professionals in the field of support and care for people living with dementia. It is also based upon personal experience and reflection of striving to support someone I loved to have as good a life as possible while living with dementia. The core proposition of this paper echoes that of Tom Kitwood (1997) and others, that our personhood lies at the heart of our wellbeing, whether we are living with dementia or not. Moreover, our personhood is constructed and reaffirmed (or held) through our interactions with the world around us. This paper breaks this down into four interdependent dimensions of place and things, power and agency, people and relations, and purpose and routines.
(Edited publisher abstract)
Subject terms:
dementia, wellbeing, person-centred care, good practice, personalisation;
This toolkit comprises a set of online resources of culturally appropriate assessments and interventions which support people from South Asian communities at various stages across the dementia care pathway. The toolkit consists of two sections. The first section deals with three stages of the dementia care pathway: dementia awareness; dementia diagnosis and assessment; and interventions...
(Edited publisher abstract)
This toolkit comprises a set of online resources of culturally appropriate assessments and interventions which support people from South Asian communities at various stages across the dementia care pathway. The toolkit consists of two sections. The first section deals with three stages of the dementia care pathway: dementia awareness; dementia diagnosis and assessment; and interventions for people living with dementia and their families. The section was developed on the basis of a review of existing literature and resources to identify what interventions (including printed and digital information, as well as formal tools) have been developed and adapted for people living with dementia and their families from South Asian communities. The research team also conducted workshops with South Asian families affected by dementia, voluntary organisation staff, and healthcare professionals to discuss issues relating to diagnosis and service support. The second section looks at how large organisations like the NHS and smaller voluntary or community-based organisations can work together to provide good dementia care. From looking at previous research and from carrying out interviews with people working in small and large organisations, we were able to develop a series of short stories to illustrate some of the challenges of working together - or partnership working as it is sometimes called. Drawing on the workshop discussions, we have identified some of the problems that can arise, along with strategies and recommendations to improve partnership working between large and small organisations. We make three different types of recommendations: for commissioners and managers of area-wide services; for local team leads and managers; and for clinicians and dementia workers.
(Edited publisher abstract)
Subject terms:
ethnicity, South Asian people, dementia, good practice, assessment, joint working, commissioning, service development, diagnosis;
This report is the result of a year-long programme of work engaging people with dementia, retailers and policy experts across the country to understand the barriers people with dementia face on the high street, and develop innovative solutions to bridge this gap. Our research found that people with dementia often: struggle to get to and around the shops and buy what they want and need; find...
(Edited publisher abstract)
This report is the result of a year-long programme of work engaging people with dementia, retailers and policy experts across the country to understand the barriers people with dementia face on the high street, and develop innovative solutions to bridge this gap. Our research found that people with dementia often: struggle to get to and around the shops and buy what they want and need; find shopping is stressful; are misunderstood or disrespected by staff and other customers; experience and worry about financial abuse and people taking advantage of them; Key changes can make a real difference for those living with dementia who want to continue doing the things they love with confidence. Our report calls for: regulators to recommend shops provide training for front-line staff to understand how to support people with dementia in shops; shops and online services to explore adopting 'slow shopping', developing ways for people to take their time to buy things; technological innovations such as a hidden disabilities digital lanyard could easily identify and support people with dementia and cognitive impairments to shop safely; transport providers to provide better real-time transport information to help people with dementia navigate around towns and cities; a review of the Lasting Power of Attorney process which will help people with dementia enjoy their money more while dealing with the risk of financial abuse.
(Edited publisher abstract)
Subject terms:
dementia, older people, participation, leisure activities, social activities;
This evaluation takes a phenomenological qualitative approach to understand the why and how of human behaviour in situations surrounding dementia care - looking at communities, cultures, and individuals within Black Asian Minority Ethnic people primarily in Scotland. The research method taken was to look at the effectiveness of the Dementia Dekh Bhaal Scotland (Dekh Bhaal meaning to 'look after...
(Edited publisher abstract)
This evaluation takes a phenomenological qualitative approach to understand the why and how of human behaviour in situations surrounding dementia care - looking at communities, cultures, and individuals within Black Asian Minority Ethnic people primarily in Scotland. The research method taken was to look at the effectiveness of the Dementia Dekh Bhaal Scotland (Dekh Bhaal meaning to 'look after') project in Scotland, using evaluations of webinars, interview responses, surveys, and support material produced such as information postcards. Perspectives and insights from the participants themselves meant that experience, how they see something as lived / perception, could be analysed, and so the evaluation is not biased or based on opinions. The evaluation is structured around three main interrelated overarching outcomes that the Dementia Dekh Bhaal Scotland project has brought out: consultation and engagement; establishing trust; raising awareness. While the evaluation has highlighted significant challenges, the DDBS project has already planted the seed and members of the forum are talking to their colleagues, passing information on, questioning why there are few referrals from BAME, thinking about having a service that is appropriate for the ethnically diverse, and wanting to continue the work.
(Edited publisher abstract)
Subject terms:
dementia, carers, South Asian people, black and minority ethnic people, multicultural approach;