Giving voice to the lived experiences of people with dementia across the globe, including Australia, Canada, Sweden and the UK, this critical and evidence-based collection engages with the realities of life for people living with dementia at home and within their neighbourhoods. This insightful text addresses the fundamental social aspects of environment, including place attachment, belonging...
(Edited publisher abstract)
Giving voice to the lived experiences of people with dementia across the globe, including Australia, Canada, Sweden and the UK, this critical and evidence-based collection engages with the realities of life for people living with dementia at home and within their neighbourhoods. This insightful text addresses the fundamental social aspects of environment, including place attachment, belonging and connectivity. The chapters reveal the potential and expose the challenges for practitioners and researchers as dementia care shifts to a neighbourhood setting. The unique 'neighbourhood-centred' perspective provides an innovative guide for policy and practice and calls for a new place-based culture of care and support in the neighbourhood.
(Edited publisher abstract)
Subject terms:
dementia, older people, neighbourhoods, community care, place-based approach;
To support people with dementia to live at home, a key national and international policy driver is to create dementia-friendly communities which draws attention to the importance of a local neighbourhood and living well with dementia. However, there is a lack of evidence about how people with dementia define and interact with their neighbourhood. This longitudinal narrative research aimed...
(Edited publisher abstract)
To support people with dementia to live at home, a key national and international policy driver is to create dementia-friendly communities which draws attention to the importance of a local neighbourhood and living well with dementia. However, there is a lack of evidence about how people with dementia define and interact with their neighbourhood. This longitudinal narrative research aimed to uncover the meaning, construction and place of neighbourhood in the lives of people with dementia and their care partners through a participatory approach. Five couples, where one partner had an early diagnosis of dementia and capacity to consent, participated in the (up to) one-year mixed qualitative method study. During this time-frame, 65 home visits were conducted, resulting in over 57 hours of interview data alongside the development of other artefacts, such as neighbourhood maps, photographs, diaries and field notes. Narrative analysis was applied within and across the data-sets. This led to the emergence of three themes to describe a connected neighbourhood. First, ‘connecting to people’ is about the couples’ connections with family members, friends and neighbours through a sense of belonging, group identification and responsibilities. Second, ‘connecting to places’ shares the couples’ emotional and biographical attachment to places. Third, ‘connecting to resources’ refers to the couples actively seeking support to live independently and to retain neighbourhood connections.
(Edited publisher abstract)
Dementia: the International Journal of Social Research and Practice, 20(8), 2021, pp.2957-2981.
Publisher:
Sage
This realist review of the literature provided a contemporary understanding of neighbourhoods and dementia and described how people living with dementia and their neighbourhood interacted via ongoing place-making and remaking processes. Drawing on 44 articles, neighbourhoods were revealed to have fluid and dynamic qualities where people with dementia used their strength and resources to connect...
(Edited publisher abstract)
This realist review of the literature provided a contemporary understanding of neighbourhoods and dementia and described how people living with dementia and their neighbourhood interacted via ongoing place-making and remaking processes. Drawing on 44 articles, neighbourhoods were revealed to have fluid and dynamic qualities where people with dementia used their strength and resources to connect to significant people and places. The review also indicated that the person with dementia–neighbourhood relationship was underpinned by four themes: ‘home’, ‘social interactions’, ‘activities’ and ‘transportation’. Further research is encouraged to use innovative, participatory methods to explore the neighbourhood–dementia nexus in depth whilst paying close attention to social inclusion and diversity.
(Edited publisher abstract)
Subject terms:
qualitative research, literature reviews, neighbourhoods, dementia, social networks, place-based approach, user views;
This study considers appearance and the work invested in maintaining it by people with dementia and those who care for and support them. Specifically the study explores the experience of hairdressing for people with dementia; examines the workplace experience of care-based hairdressers and the perspectives of care workers; documents the constituent elements of hairdressing encounters...
(Edited publisher abstract)
This study considers appearance and the work invested in maintaining it by people with dementia and those who care for and support them. Specifically the study explores the experience of hairdressing for people with dementia; examines the workplace experience of care-based hairdressers and the perspectives of care workers; documents the constituent elements of hairdressing encounters; and considers patterns of provision, access and affordability of hairdressing services in different types of dementia care setting. The research involved: interviews to explore how people with dementia managed appearance throughout their lives; in-depth interviews with 10 hairdressers, 9 family carers, 6 key informants and 15 care workers/nursing assistants; and observations of 23 people living with dementia, 16 women and 7 men, during their regular visits to the hairdresser. The findings highlight the importance of understanding the role that appearance plays in identity and self-expression of people with dementia. It also finds that there is a need to raise the profile of care-based hairdressing and its contribution to living well with dementia. It sets out a series of suggestions for policy and practice based on the findings of the study.
(Edited publisher abstract)
Dementia: the International Journal of Social Research and Practice, 12(3), 2013, pp.337-347.
Publisher:
Sage
This paper considers approaches to investigating appearance and the work invested in maintaining it within dementia care. Our focus is upon methodological and methods-related issues associated with the challenge of generating knowledge of the embodied worlds of people with dementia. The authors begin with a brief overview of the literature on appearance and dementia, and consider what it teaches...
(Publisher abstract)
This paper considers approaches to investigating appearance and the work invested in maintaining it within dementia care. Our focus is upon methodological and methods-related issues associated with the challenge of generating knowledge of the embodied worlds of people with dementia. The authors begin with a brief overview of the literature on appearance and dementia, and consider what it teaches about the nature of appearance and ways of understanding it. We describe and discuss the mixing of methods for an on-going investigation into hairdressing in dementia care: The Hair and Care project. Based upon the experience of research in care-based hair salons, the authors argue for a creative use of methods in dementia studies as an avenue to better engaging with the embodied experiences of people with dementia and, as a result, understanding how people use their bodies and senses to create meaningful worlds.
(Publisher abstract)
...and support. The book is separated into 3 parts: growing older - diverse pathways into later life; implications for health and social care practice; and community engagement and support. The chapters explore people's expectations and fears surrounding care and service provision, the impact of discrimination, and specific issues such as HIV, dementia and end-of-life care. The importance of understanding
Lesbian, gay, bisexual and transgender (LGBT) people often face unique challenges as they grow older. The aim of this book is to help those who provide care and support to older LGBT people to understand their needs, wishes and experiences. It demonstrates how biographical approaches can increase understanding about the distinct perspectives of older LGBT people, enhancing inclusive care and support. The book is separated into 3 parts: growing older - diverse pathways into later life; implications for health and social care practice; and community engagement and support. The chapters explore people's expectations and fears surrounding care and service provision, the impact of discrimination, and specific issues such as HIV, dementia and end-of-life care. The importance of understanding people's whole lives in order to meet their needs is demonstrated, drawing on the examples of community projects that provide services and build networks. The voices of older LGBT people are heard throughout the book through the use of case examples and original research. As well as being of interest to practitioners working with older LGBT people, the book is also likely to be of interest to students and researchers in the health and social work fields.
Subject terms:
LGBT people, life story work, older people, social care provision, ageing, health care;
Journal of Dementia Care, 20(6), November 2012, pp.22-24.
Publisher:
Hawker
The ‘Hair and Care project’ is ongoing project which explores the importance of appearance in the everyday lives of people with dementia. In part it does this by exploring the role of hairdressing services in care settings. The arrival of the hairdresser and their efforts to create some kind of salon space is a regular occurrence within dementia care settings. The aim of this project...
The ‘Hair and Care project’ is ongoing project which explores the importance of appearance in the everyday lives of people with dementia. In part it does this by exploring the role of hairdressing services in care settings. The arrival of the hairdresser and their efforts to create some kind of salon space is a regular occurrence within dementia care settings. The aim of this project is to identify and share examples of good practice to support this day-to-day aspect of dementia care. Over a 10-month period, observations and filming was carried out with people with dementia in a number of settings, as well as talking to staff, family carers, and people with dementia. Early findings show that the care-based salon offers an opportunity for a different kind of supportive relationship within places such as hospitals and care homes. Two case studies are presented which demonstrate examples of good practice in the area of appearance-related work in health and social care settings. Future plans to develop networks around this area of work are outlined.
Subject terms:
interpersonal relationships, older people, self care, case studies, dementia, good practice;
Journal of Dementia Care, 20(2), March 2012, pp.33-36.
Publisher:
Hawker
This study examined how carers of people with dementia made use of their neighbourhood and what could be done to improve local support. Three discussion groups were held with 30 carers from across Salford, England, recruited through carer support groups. Of these, 14 worked closely with the researchers to provide a better understanding of the significance of neighbourhoods for them. Findings...
This study examined how carers of people with dementia made use of their neighbourhood and what could be done to improve local support. Three discussion groups were held with 30 carers from across Salford, England, recruited through carer support groups. Of these, 14 worked closely with the researchers to provide a better understanding of the significance of neighbourhoods for them. Findings revealed three themes regarding neighbourhood importance for dementia care: the changing meaning of home; being able to get out and about; and proximities. Participants’ experiences varied a great deal, with some having extensive support networks to draw from, and other having a more limited number of contacts. The authors concluded that Neighbourhoods have the facility to support carers in many ways that are not fully understood.
Subject terms:
neighbourhoods, social networks, support groups, carers, dementia;
Dementia: the International Journal of Social Research and Practice, 11(3), May 2012, pp.287-303.
Publisher:
Sage
Two detailed case examples help to explore the friendships of people in the early stages of dementia. The authors also discuss the benefits of looking beyond the family as the ‘go to’ support network that practitioners tend to focus on in their work with dementia sufferers. The value of participatory approaches in both research and practice for understanding the friendship experiences of people...
Two detailed case examples help to explore the friendships of people in the early stages of dementia. The authors also discuss the benefits of looking beyond the family as the ‘go to’ support network that practitioners tend to focus on in their work with dementia sufferers. The value of participatory approaches in both research and practice for understanding the friendship experiences of people with dementia is emphasised. The case studies include a personal narrative on friendships from one of the authors, a person living with dementia employed by the NHS to enhance and support dementia services. The second case is drawn from a local-level Friends for Life support project in Greater Manchester; one of the pilots commissioned by the Department of Health to inform the English National Dementia Strategy. Interactions in the group are explored alongside consideration of the significance and outcomes of creating social spaces for people with dementia. The authors pay particular attention to the emerging phenomenon of ‘facilitated friendships’ as practitioners work to support collective agency on the part of people with dementia. They question whether the broader range of resources and personal communities of people with dementia can coalesce to create a sense not only of being supported but also of belonging and inclusion.
Subject terms:
social inclusion, social networks, support groups, user participation, case studies, dementia, friendship;
Journal of Dementia Care, 19(2), March 2011, pp.26-29.
Publisher:
Hawker
This article outlines the benefits and challenges associated with health promotion for people with dementia and their carers. It then provides an overview of the Manchester Supporting Health Dementia Programme (MSHDP) pilot, which ran from November 2009 to March 2012. The programme provided a health check service and also aimed to improve the availability of access to health improvement
This article outlines the benefits and challenges associated with health promotion for people with dementia and their carers. It then provides an overview of the Manchester Supporting Health Dementia Programme (MSHDP) pilot, which ran from November 2009 to March 2012. The programme provided a health check service and also aimed to improve the availability of access to health improvement opportunities. A summary of the main outcomes from the independent evaluation are provided.
Subject terms:
public health, access to services, carers, dementia, health care;