The dementia experiences of people from Caribbean, Chinese and South Asian communities in Bristol

Author:
BRISTOL BME PEOPLE DEMENTIA RESEARCH GROUP
Publisher:
Alzheimer's Society
Publication year:
2017
Pagination:
72
Place of publication:
Bristol

Reports on findings from an eight month research project on the experiences of Black and Minority Ethnic (BME) carers of people with dementia, focusing on Caribbean, South Asian and Chinese communities in Bristol. The study carried out interviews with 48 participants and held eight focus groups. It explores the knowledge and attitudes of different communities towards dementia; the role of the voluntary and community sector (VCS) in providing support; and barriers that exist to accessing services. The findings for each community are discussed separately and include individual case studies. The results found that knowledge of dementia symptoms and the diagnostic process varied across communities, and that some communities still stigmatised the condition. Older people from BME groups were also more likely to use groups or services that were run by BME-led VCSOs. Some of the issues identified when using NHS and council-led services included: a lack of interpreters, inappropriate or inadequate service provision and a lack of understanding. Based on the evidence gathered, the report makes a number of recommendations, which include: the need for more awareness of risk factors and prevention amongst BME communities and GPs, improving access to interpreters, and more culturally appropriate services. (Edited publisher abstract)

Subject terms:
black and minority ethnic people, dementia, South Asian people, African Caribbean people, cultural identity, carers, voluntary sector, user views, attitudes, access to services, older people, multicultural approach;
Content type:
research
Location(s):
England
Link:
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