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1 of 1 |
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Title: |
Managing my way |
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London: Council for Disabled Children, 2011. 36p. |
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Abstract: |
The Managing My Way project aimed to increase the responsibility disabled children and young people are able to take for managing their own health conditions. This report sets out current policy and published research evidence in this area and outlines the experiences and views of 41 young people and 39 health care professionals obtained through focus groups. Two key overarching themes emerged as a result of these discussions: the importance of getting interactions and relationships between professionals and young people right; and the importance of developing young people’s ability, confidence and independence around managing their own care. This report details the barriers and challenges faced when supporting disabled young people with long-term health conditions to manage their conditions more independently. It then goes on to outline some of the tools and approaches that may help disabled children and young people to manage their conditions more independently and to be more involved in decisions about their healthcare. The report provides a number of recommendations, both at the structural and individual level, designed to improve young people’s experience of and participation in their healthcare. |
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book; |
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children; disabled people; empowerment; health care; independence; self care; young people; |
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www.scie-socialcareonline.org.uk/profile.asp?guid=9a7bde04-7209-4b16-b962-37854c5c2532 |
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