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Title: |
Measuring the experience and perception of suffering |
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Reference: |
Gerontologist, 50(6), December 2010, pp.774-784. |
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ISSN paper: |
0016-9013 |
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ISSN online: |
0016-9013 |
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Abstract: |
Suffering is an important but understudied domain, in part because of a lack of good measures of suffering. The aim of this study was to assess the psychometric properties of scales developed to assess experience and perception of suffering in older individuals. Three instruments were developed to assess each of the three domains of suffering: physical, psychological, and existential. The scales were administered to three populations of older persons and their family caregivers: 105 individuals with Alzheimer’s disease and their family caregivers; 53 married couples in whom 1 partner had osteoarthritis; and 121 African American and Hispanic caregivers of care recipients with Alzheimer’s disease. The care recipients rated their own suffering, whereas caregivers provided ratings of perceived suffering of their respective care recipients. In addition, quality of life, health, and functional status data were collected from all respondents via structured in-person interviews. The results demonstrated that the three scales showed high levels of internal consistency, test–retest reliability, and convergent and discriminant validity. The scales were able to discriminate differences in suffering as a function of type of disease, demonstrated high intra-person correlations and moderately high inter-person correlations and exhibited predicted patterns of association between each type of suffering and indicators of quality of life, health status, and caregiver outcomes of depression and burden. |
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Format: |
article; |
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Topics: |
Alzheimers disease; arthritis; carers; instruments; long term conditions; older people; pain; quality of life; |
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www.scie-socialcareonline.org.uk/profile.asp?guid=1f98ddcc-f012-4dde-8015-fd323557be6c |
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