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Title: |
Care at the end of life for people with dementia living in a care home: a qualitative study of staff experience and attitudes. |
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Reference: |
International Journal of Geriatric Psychiatry, 27(6), June 2012, pp.643-650. |
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ISSN paper: |
0885-6230 |
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ISSN online: |
1099-1166 |
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Abstract: |
Despite many changes and improvements in end of life care, dementia is still seldom regards as a terminal illness. This study examined barriers and facilitators to care home staff delivering improved end-of-life care for this group of patients. Individual qualitative interviews were carried out with 58 staff in a 120-bed nursing home where the staff and the residents' religion differed. This was a Jewish Care home in London where the staff members were mostly Christian but from a wide range of countries; about 20% were Filipino. The staff felt warmly towards the residents and felt they could recognise when they were near death. Care staff, nurses and doctors did not see themselves as a team and communicated poorly with relatives about approaching death. The staff used opaque euphemisms and worried about being blamed. They were often unaware of or had concerns about the validity of advance care plans. They knew of the religious rituals around death but frequently misunderstood religious tradition. The authors conclude that there is a need for education and support about discussing and implementing plans around care at the end of life in dementia, and about cultural issues around death to improve practice. This needs to include communicating the complicated, unpredictable path of dementia near the time of death explicitly but sensitively. |
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Format: |
article; |
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Topics: |
advance care planning; attitudes; care homes; care workers; communication skills; death; dementia; end of life care; Jewish people; multicultural approach; religions; |
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Cited in: |
SCIE research briefing 40: end of life care for people with dementia living in care homes |
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Record ID: |
www.scie-socialcareonline.org.uk/profile.asp?guid=1c12261e-0dd6-484c-9249-585f14a41333 |
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