A life more ordinary: findings from the long-term neurological conditions research initiative: an independent overview report for the Department of Health

Author:
WINCHCOMBE Maggie
Publisher:
Long Term Neurological Conditions
Publication year:
2012
Pagination:
104p.
Place of publication:
London

The ten studies in the Long-Term Neurological Conditions Research Initiative (LTNC RI) were commissioned to update and extend the available evidence on the nature, quality and outcomes of care for people with LTNCs in England. The very different but complementary projects set out to provide a robust evidence-base to inform all those working to improve the quality of services and care. This overview report brings together all the individual studies and provides a summary of the main findings. These are reported in terms of: the shape of services; the overall picture; and service coordination. With regard to improving outcomes for people with LTNC the discussion focuses on: the continuity framework; relationship continuity, management continuity, information continuity, and continuity of personal agency and social context. The report concludes that the overall picture is one of variable and patchy service provision, characterised by a lack of continuity between services which does not serve people with neurological conditions consistently well.

Subject terms:
joint working, long term conditions, needs, outcomes, palliative care, person-centred care, rehabilitation, social care provision, carers, health care;
Content type:
research
Location(s):
England
Link:
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